@thefertilitysurgeon: Does endometriosis always worsen over time? Should I worry about endometriosis spreading to other organs if I don’t urgently pursue surgery? The answer is that endometriosis can certainly progress in some patients, though studies have not been able to predict who will develop severe disease and who will have stable lesions over time. Endometriosis lesions on imaging do not necessarily correlate with symptoms. So some patients may have debilitating worsening pain, but imaging may appear unchanged. Others may have “silent endometriosis” with asymptomatic disease that can lead to scarring and organ dysfunction without major pain symptoms. I am interested in studying progression of disease over time, which requires following my patients prospectively before and after surgery and other treatments. #endometriosis #fertilitydoctor #endometriosisawareness #endometriosissurgery #ivf
How can I get my Dr to take me seriously when I have concerns about Endo? Or even Peri- "Im too young" they say. 39 and neurodivergent. I have so much pain. Already diagnosed with PMDD and PCOS. I have tracked for months and months and they just will not give me any resolution or testing. :(
2026-09-11 18:56:45
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Linda Hoover Barbuto :
Only 30% 😳. I wouldn’t use the word “only “ I would say it HAPPENS IN 30 PERCENT of patients. 🥺😡😖
2026-09-11 21:12:21
1
Emely :
Yeah and IVF worsened my and I’ve never been the same.
2026-09-09 17:13:04
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Ksteph4 :
It has definitely worsened for me. I’m stage IV with severe pelvic adhesion disease and cysts that are choking out my ovaries. trying to get in with a specialist now who can help 😢
2026-09-05 12:39:32
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Jessica :
I have “silent” DIE that was diagnosed through ultrasound and MRI. I’m still trying to decide if I should have surgery since my MRI shows my colon is tethered to my uterus 😩 I’m scared that it will get worse.
2026-09-05 06:50:37
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Yes I'm Angry :
my endo specialist could not answer this question 🚩
2026-09-05 13:20:21
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Yeahilz :
I had my lap surgery in June. I’m 29 had problems with fertility and a lot of pain. I haven’t been able to conceive yet but my surgeon told me if i don’t conceive by october i need to see a fertility specialist to talk about my options. I had stage 4 endo. Any recommendations? And also any thoughts why I only have 3 months to try naturally? 😭
2026-09-05 11:59:43
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🐆💋🎱✨ :
Im scared but I’ve already booked the surgery 🫤
2026-09-06 20:56:59
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burnett.AK :
I had no idea I had it until a year ago when my symptoms kept getting worse and worse
2026-09-05 22:48:03
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Alisa :
Mine caused a bowel obstruction surgery how they found it they said they got out what they could when they did that surgery. Its gotten worse the cramping as I get older. Cramping 3 half weeks out of the month all day everyday 😫 Not even on my cycle. I got on depo every 3 months has been amazing but can only be on it 2 years and im at the end of 2 years.idk what to do now
2026-09-06 06:10:30
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cloud9heavenx :
My endo got worse after surgery 🙄
2026-09-05 20:53:43
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katpotkin :
it seems like such a basic part of knowledge to have about a disease but "we just don't know because women are a medical fuckin mystery" is way too common
2026-09-05 13:47:55
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