@saving_liv: My daughter Liv has MPS Type 3, a form of childhood Alzheimer’s. While I’d give anything for her to be able to grow up and have a family of her own, it’s not in cards. And that’s a tough pill to swallow sometimes. #sanfilipposyndrome #fyp #anticipatorygrief #grief #griefjourney

Saving Liv
Saving Liv
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Region: US
Saturday 05 September 2026 20:19:02 GMT
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chris_anderson17
chris_anderson17 :
That’s so hard. But it’s really special that the he sees liv as an ordinary sister, having a brother that treats her with such dignity is amazing and a credit to the way you’ve raised him
2026-09-05 21:13:17
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the_informationist
Nora :
my disabled cousin had a life expectancy of 5 years and died at the age of 36
2026-09-06 21:58:47
28
katiekatiekatie66
Katie Katie Katie :
thank u for naming it I didn’t know it was called anticipatory grief
2026-10-09 18:54:02
0
etherbunny51
Etherbunny51 :
On a positive note, it’s so sweet that your son sees his sister just like he is, devoid of her challenges
2026-09-05 22:09:45
596
teachert961
TeacherT :
Oh, my momma heart cries with you.
2026-09-06 02:32:49
150
mamanorrie
noreen :
My heart hurts for your hurting heart. 💔
2026-09-05 20:33:28
279
betterthanmyself920
Better Than Myself :
OMG. I am unprepared for my daughter to realize her brother is different. Thanks for your vulnerability to help me understand I’m not alone.
2026-09-06 02:04:50
63
mystery.maya46
Mystery Maya :
As someone who lived through anticipatory grief for a parent when I was a child, anticipatory grief, in my opinion, is worse than “grief grief”. To mourn someone who is alive is the most painful thing I’ve ever been through.
2026-09-20 15:05:24
10
v.v..de.wilde
V.V. De Wilde🇨🇦 :
I'm so sorry. It's so very hard to anticipate loss. Sending so much peace and happier days.
2026-09-06 02:18:48
24
samanthasloanekr
Samantha Sloane Kres :
So hard ❤️sending hugs
2026-09-05 20:24:31
178
sgh1866
Shelly1966🇨🇦 :
So much love and respect for Liv and you and the family.
2026-09-06 01:17:57
16
sjay.c
SJay C. :
thats very cute of your son. 🥰 anticipatory grief was horrible with my mom so I cant even imagine the pain it brings for you thinking about your child. ❤️
2026-09-05 21:10:23
14
lisadavis0321
Lisa Sibit :
Your one strong moma! ❤️
2026-09-05 20:24:14
25
deborahmorrison29
deborahmorrison29 :
Oh, Sweet Love. I'm so sorry. Love and praying for your family family.
2026-09-05 20:27:37
32
flashfire101
Ellie Cary :
Alrighty we are all crying today. Got it. 😭 this hits so hard mama. I see you. ❤️💔
2026-09-05 21:01:58
22
chrisgette0
chrisgette0 :
im so sorry....
2026-09-06 00:49:39
11
ahorton83
ADex83 :
So heartbreaking. Bless your heart and your family. I can’t imagine how difficult this must be for you all.
2026-09-05 20:46:42
33
katiekatiekatie66
Katie Katie Katie :
ohhh girl I know this feeling so well
2026-10-09 18:53:25
0
aretigika8
Αρετή Γκίκα :
💔💔💔Love from Athens Greece
2026-09-05 20:25:07
15
teresa.lopez146
teresa lopez ❌ :
I am so sorry both you and your daughter are missing out on so many milestones of her growing up. You are a very strong woman. ❤️
2026-09-05 21:52:48
8
lillianstreet129
Lillianstreet129 :
I’m so sorry that happened to you.
2026-09-06 00:47:51
6
livvy1983
Livvy :
I am so sorry , you are so incredibly strong . Sending you enormous love ❤️
2026-09-05 20:23:29
6
joycemacdonald7
joycemacdonald7 :
My heart breaks for you. Everyone has these wishes for their children. She is the most beautiful child and it is just so sad these things will not happen for her . Blissfully unaware for Liv but heartbreaking for you. Wishing so much that special things happen in your lives. Big hugs . 🥰
2026-09-05 20:34:17
5
bessycestoni
Bessycestoni :
I don’t want to say be strong, so I will say continue enjoying every moment with faith and loving your children. God is always watching and listening, he sees you loving them and he is happy, because he made the right choice, he knew your special child will have the best mom. God bless you and your family.
2026-09-24 03:30:46
1
healingwithgeorgie
Georgie | Healing & Home 🤍 :
Oh mama❤️‍🩹
2026-09-12 20:29:35
0
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