@the.nourished.path: Fibromyalgia is so much more than pain and I think that’s one of the hardest things to explain. If you have fibro too, what symptom do you wish people understood better? #fibromyalgia #ChronicIllness #fibromyalgiaawareness #invisibleillness
It's a nightmare 24/7 that never ends. my mind wants to do everything but my body won't play the game . remembering the old me the fun me . on a good day going to the shops , then paying the price for days after 🥺
2026-09-06 11:58:43
5
a 🦋💗 :
Its so debilitating and exhausting the cognitive effects for me i feel like am losing my mind and the exhaustion and never ending pain
2026-09-06 10:59:03
4
Fibrowarrior.H.... :
I think for me it's how people perceive me because ' I look ok' yet they don't see the pain. the headaches the fatigue and also that the singles of tasks are so hard to do now.
I'm newly diagnosed to it but I'm struggling with how my old life was and how it's changed so much now
2026-09-06 11:25:44
2
helenburns998 :
For me it’s the extreme fatigue that hits me like a brick & going from 0 to -1000 in a v short space of time & the total lack of understanding which really really gets me, despite explaining it over & over & over again it’s relentless but trying to get others to understand isn’t possible! So many people say ‘you look so well’ but yes Karen, I’m dying inside!
2026-09-06 22:03:41
2
Claire Amy :
The guilt!!! I wish everyone had the understanding that I may keep having to let people down by cancelling plans. I already feel guilty, I don’t need them making me feeling worse ❤️
2026-09-06 17:45:35
3
🪬Suzanne Mc ♑️ :
Constant fatigue. No matter how much sleep you have you are still running on empty. And the smallest thing cost you so much Engery.
2026-09-06 16:10:58
2
mrs-spigs :
The empty tank & making people realise im not lazy!
2026-09-07 09:26:30
4
user3093024940422 :
The jittery feeling inside. It’s horrible, just can’t shake it off.
2026-09-07 19:01:25
0
Trish :
Fellow fibro warrior here, today is that day where my tank is empty.. it’s exhausting 🥰
2026-09-06 10:27:30
2
Veronica Smith Ronnie :
It's the lack of understanding that gets me a lot,I might look well but I don't feel it,and when you can't see where the pain is people to me think I'm making it up.Fibromyalgia is a horrible thing.
2026-09-06 15:56:59
1
Andrea Mckechnie :
I don't think anyone understands it unless u have it x
2026-09-07 06:16:07
1
joy2b :
looking normal...for people..but feeling so bad..you fight to stop the pain showing..then trying to excuse yourself if you break and cannot suffer no more...and hope they understand you need to rest..without making excuses..😳
2026-09-06 15:32:13
1
Kayleigh ✨ :
It’s hell!! You have to plan for rest days after the most simple tasks. The grief gets me to. X
2026-09-06 10:59:00
1
heatherrose.offical :
Totally relate to this
2026-09-13 20:02:16
1
kur 💜🦋🛡️ :
the tiredness and fatigue also the mental health side of it. its draining
2026-09-06 13:51:13
1
Shauneen 📚🧶💄🖍️ :
Lack of understanding and PIP support. The fatigue the tiredness. Effort takes just to shower, load washing machine simple jobs on really flare days. Just getting up and going to work spending days off recovering 😳
2026-09-06 17:28:40
1
Jj1262851962 :
Lack sleep too🥲 brain fog xx
2026-09-07 05:43:36
1
Lydia 🥰 :
Yes im the exact same thats the hardest part for me too x
2026-09-06 10:21:04
1
Phillippa :
that tiredness doesn't even come close! memory issues and the complete lack of energy for anything..and the small amount you have is trying to ignore the pain in order just to get through the day
2026-09-07 06:23:14
1
Louise Flynn :
exactly 💯....
2026-09-30 14:21:22
0
Mark Yhdruho Haselhu :
i just wish they didn't judge you can see it in there eyes
i look ok 👍
2026-09-09 08:55:16
0
Lynn.🌻 :
Personally, I find the fatigue the most difficult part of fibromyalgia. 😒
2026-09-09 08:19:57
0
josie mac :
I can't remember when I didn't have pain even on agood day I have pain ive had to go part time at work im physically unable to work full time and thats been a big struggle for me mentally and financially
2026-09-27 19:57:30
0
Mum to 2 Sen Boys :
sleeping but feeling like i havent slept
2026-09-08 20:28:56
0
Ruthie :
Exactly I can relate mental health and headaches
2026-09-06 13:16:25
0
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