@embracingecho: When I look back at seizure footage, I feel so much embarrassment imagining all of the people that walked past and thought “what’s wrong with that girl?” I started posting my seizures to bring awareness to Epilepsy and to take back some of the embarrassment I felt from seizures. I don’t want anyone to feel embarrassed of Epilepsy. It’s not your fault. You rarely can make it go away by “doing all the right things.” You’re not possessed and I’m so sorry that so many scary movies have connected convulsions with something evil in you. If you have Epilepsy, no one should bridge that with “not praying enough.” It’s a real neurological disease that causes electrical misfires in the brain. Epilepsy isn’t always convulsive. The majority of people that automatically think all seizures are grand mal when I explain that I have Epilepsy is a big part of why I advocate for this neurological disease. * This video is from a while ago but I think the educational aspect of it is still important. Epilepsy is dangerous. It makes you dependent upon people in your surroundings to make sure you’re okay, don’t get injured, and don’t go into status epilepticus. That’s why I talk about it so much. #EpilepsyAwareness #SeizureAwareness #EpilepsyAdvocate #SeizureEducation #ThisIsEpilepsy DisabilityAwareness InvisibleDisability NeurologicalDisorder FocalSeizures AbsenceSeizures EpilepsyWarrior DisabilityAdvocate SeizureSafety TravelWithDisability AirportAccessibility EndTheStigma
Wishing you well, I’m really sorry you have to live with this .
2026-09-11 06:32:57
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Rubents :
Absence seizures are so scary 🙁
2026-09-07 22:35:16
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hardbody_princess :
Thank you for sharing OUR journey😔I don’t even go anywhere anymore because people have made me feel like I’m such a burden. May we continue to fight for our health and peace💐☮️
2026-09-08 00:15:21
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Wonder Woman :
I wish I had the words to fully express what your advocacy means to me. Your vulnerability is help more than you’ll ever know. I feel so always feel so alone, your videos help. Thank you
2026-09-08 04:09:47
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Xotati :
My daughter has epilepsy, thank you for sharing your story 🙏🏽
2026-09-08 02:11:02
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🇨🇦DeeDeeMarie2 🧦⚓️ :
Never feel embarrassed girl!! This is not in your control!! You inspire me !
2026-09-07 23:59:33
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Kandis :
oh my heart goes out to you 💜 my teenager was diagnosed with juvenile myoclonic epilepsy with catamenial seizures a couple years ago…praying for you!! 🙏🏻🙏🏻🙏🏻
2026-09-07 22:08:16
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Sandra Fritzsche :
es ist das schlimmste gefühl ich habe seit 2 jahren jetzt fast epielepsie und weiß nicht nach denn anfällen da ich meistens auch alleine wahr der häftigste war letztes ja wo ich mir fast alles auf geschlagen habe und mir passanten geholfen haben aber ich mich von aussagen anderen bei der hilfe von denn immer wieder erschreckt habe und los laufen wollte und wieder zusammen gebrochen bin die in der not auf nahme haben fotos gemacht weil ich angeblich ja gesagt hätte weiß ich aber nicht mehr aber ich bin froh es gesehen zu haben denn so habe ich begriefen was ich nicht war haben wollte es ist schlimmer als man es sich vorstellt besonders wenn man nicht auf passt es war ein paar stunden nachdem ich wieder klar war ich war so erschrocken und wusste garnix und habe mich gefragt wieso und wie es anfing und was der auslöser war ich konnte mich wochen nicht ansehen weil ich dachte ich hätte besser auf passen müssen aber ich wusste nie wie jetzt ist es etwas besser aber anfälle kommen und gehen aber ich habe es etwas besser im grief da ich es nie mehr so weit kommen lassen möchte denn ich möchte leben egal wie schwer es ist 😢❤️🩹
2026-09-08 11:52:18
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Nabilael1986 :
Never be ashamed of what you have. And if people look at you strangely, let them look!!
2026-09-09 17:04:09
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kellyoberg857 :
Thank you for sharing your story with the world. My teen son suffers from absence seizures and it’s so hard for people to understand he’s not daydreaming that it’s not on purpose.
2026-09-08 02:31:38
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MomOfTwoMiracles :
Thank you for showing what we go through , I’m so sorry but please know you’re helping me . Blessings sent your way warrior !
2026-09-09 20:09:41
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PTLSANTE :
🙏🙏🙏God Bless you honey & I am proud of you. I was in the military & I used to suck everything up now I literally tell people everything when they question my disabilitie(s)🙏🙏🙏
2026-09-07 22:24:37
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Girl user :
I have FND and my seizures everyday and is making me as a girl to isolate myself. Hope you are doing well 🤩🥰🥰
2026-09-08 17:29:52
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KENTRELL DE SEAN GAULDEN💚🐍 :
We’ll always look out for you and pray for you
2026-09-08 23:53:05
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Lex :
Thank you for sharing 💜 I had to fly solo from NY to TX because my Mom is really sick and I was SO scared because I also have seizures. I fly back up to NY on Thursday solo again and am again terrified 😭 I was in such a rush packing that I forgot my life alert button
2026-09-08 02:22:29
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Amber :
Prayers to you hon❤️
2026-09-08 03:36:17
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Irina ❣️ :
I was just in the neuro unit at a hospital had a seizure and woke up to everyone yelling at me
2026-09-08 00:33:03
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Cschoeppey :
Sending you love. Thank you for sharing your experience, some people would never know or understand without you.
2026-09-08 00:40:09
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AMartha :
I’m so sorry
2026-09-08 00:37:39
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Sandra Fritzsche :
ich wunsche euch ganz viel kraft ❤️
2026-09-08 11:52:50
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uberskank :
what happened with the tortoise???
2026-09-08 09:13:38
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cassiewilsontx_ :
💜💜💜
2026-09-08 00:51:26
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Elvis tek :
❤️❤️❤️
2026-09-07 22:06:39
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Edie Kuik :
💗
2026-09-08 01:57:21
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