@kenzeeclucas: Stage IV breast cancer doesn’t always look the way people expect it to. 🎀 I was diagnosed de novo Stage IV metastatic breast cancer at age 31. (Hormone positive) ER+/PR+, HER2-, with limited metastatic disease. Despite being Stage IV, my oncology team is treating me aggressively with curative intent and the goal of reaching NED (no evidence of disease). I am so lucky. This post explains why my situation is a little different, and why it is not a one-size-fits-all diagnosis every time. I know how fortunate I am to have these treatment options. 🤍 When I tell people I have stage IV cancer AND that my doctors are treating me aggressively with curative intent, I’m usually met with some confusion. And honestly it makes total sense. Those are two things we don’t usually hear in the same sentence. According to National Cancer Institute (NCI) and its SEER database and statistics from 2024, the chances of being diagnosed with my exact breast cancer are extremely rare. The way my doctor explained it to me: if you put 2,000 women with a breast cancer diagnosis, ages 30-35 in one giant room… statistically ONLY 1 of us would have a Stage IV De Novo Olgiometastatic, Hormone Positive (ER+/PR+, HER2-) diagnosis.😳 NOBODY can promise me anything. This could possibly come back, not respond to treatment as planned, and many other scary things. But I hold on tight to every piece of hope and positivity through this. 💕 No matter what, I know this life is precious, short, and fragile. It is well worth fighting for. Every single second on this earth with my son, husband, and family is a gift. I never will take mine or my loved ones’ health for granted again. #BreastCancer #MetastaticBreastCancer #CancerTok #CancerSurvivor #ChemoJourney
kenzeeclucas
Region: US
Tuesday 08 September 2026 02:48:49 GMT
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fer72 :
If you feel compfortable to share more details about your cancer (grade, size, IDC or ILC), would be interesting to get something like an explanation why it could spread with such a low ki67. But of course they should treat you as curable ! It's still quite local. In fact I hope I will still see a time, when they can treat all women as curable.
2026-09-09 16:49:36
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user4157852768999 :
You got this
2026-09-09 18:54:10
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S I E R R A 🪩🎗️ :
I have the same stage 4 lesions as you! But I am triple negative! What treatment plan are you on and will you be doing chemo forever? Wishing you the best!
2026-09-09 00:56:30
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Sam Garfie1975 :
I was diagnosed basically de novo with tiny nodule 4mm to lung and 1 rib met ( now NEAD ) but no one has ever mentioned oligometastatic to me. I do wonder if it might be but I darent ask incase Oncologist tells me why it’s not. I know that sounds ridiculous. Wishing you all the very best xx
2026-09-08 21:38:56
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Nisa nisa :
"I have the exact same condition as you. However, I was told my cancer can only be controlled, not cured. What treatment did you start that gave you hope for a cure?"
2026-09-09 15:47:24
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kaela :
i could have written this myself! de novo stage 4, 38, mom to 3 girls, hr+/her2-, mets to sternum,t4 & humerus but small, started chemo 8/13! following you bc i dont meet a lot of stage 4s that get as lucky as we are! [Starry hearts]
2026-09-09 10:46:50
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katekruep618 :
Could you tell me where you receive treatment? Your story has similarities to mine!
2026-09-08 18:57:07
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❤️ :
Girl your such a bad ass ❤️
2026-09-08 03:40:55
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Nick :
We r twins!
2026-09-08 20:59:27
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EmmiTheSweetCat :
I’m glad to have found someone else with the same diagnosis.
I also have a doctor who knows about oligometastatic cancer and who has also suggested a curative approach to me.
As a result, I am also fortunate enough to be receiving the standard treatment with chemotherapy, contrary to the guidelines.
I have breast cancer with two affected lymph nodes. I also have a metastasis in a thoracic vertebra.
The vertebral body was first treated with radiotherapy. On the last day of the radiotherapy session, I started chemotherapy. First 12 cycles of Pacli, followed by 4 cycles of EC. I’m currently on cycle 14 out of 16. This will be followed by breast-conserving surgery and then radiotherapy to the breast.
And then… hopefully no detectable active cells.
I have ER/PR-positive, HER2-negative breast cancer.
I was told that normally, as soon as metastases exists, curative treatment is not pursued, because the cancer has already spread.
However, if there is exactly one single metastasis, it is possible to attempt curative treatment, as if there were no metastasis at all.
2026-09-09 18:54:30
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