corallshortridge_
Region: GB
Tuesday 08 September 2026 18:40:18 GMT
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Sleeptokengirly🎃🎃 :
I get to see a speclist in fnsd on Tuesday i hope his treatment plan helps 🥳(and yes I somehow find somebody who specializes in fnsd kinda crazy lol)
2026-10-08 03:48:45
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joserod5241332452 :
Do you get muscle stiffness?
2026-10-09 14:54:15
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🪫 :
Thx girly I’m gonna use these❤️😊
2026-10-13 02:13:10
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Sare :
sorry im being dum, but what gummies are they
2026-09-09 20:18:35
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aura_empath_dragonfly :
Glad you found stuff that helps. Also for me during the non epileptic seizure events, using an ice pack can help me. For sour candy that helps me sometimes I like these except my local Walmart isn’t having them anymore. I don’t have an official diagnosis of FND but I have the experiences to match. Here’s my experience: So, I have a bunch of other chronic illnesses: Ehlers Danlos Syndrome, chronic pain, fibromyalgia, spondylosis all through neck, thoracic, lumbar, some mild scoliosis in my thoracic, axial spondyloarthritis, scleroderma & more. I originally got referred to the neurologist for episodes of being unable to move forward at all when I stand up. Once every couple of months or so for a couple of years I would just get stuck. Starting around maybe the beginning of the year things exponentially changed. My legs shake and jerk when I try to walk. I now need my wheelchair inside my apartment whereas before I only needed it for distances because of the increase in pain it would give me. I developed non epileptic seizures (what neurologist called pseudo seizures).. I keep seeing peoples experiences of FND and how they move and walk looks like me. I really think I have it. My EEGs came back normal as did my DAT scan. My episodes started as shutdowns where I couldn’t move or speak. I would just get locked up and then as time went on I got more involuntary movements with it too. Using an ice pack can kind of help snap me back even though I still won’t be able to move as well or speak for a while afterwards.
2026-10-18 20:51:40
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Bear :
But the FND and POTS combined is a whole other story 😭
2026-09-16 06:40:30
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I'mYourDad :
Thank you so much your a godsend with these tips
2026-09-30 11:29:25
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Ebs🤍 :
Hey, it will be 5 years in October since I got diagnosed with FND. And I’m sat here thinking why I never tried this!! Energy drinks are good also to regulate your sugars (depending if anyone likes them), or just eating something that does have sugars like a pack of Haribos! Can’t have the gummies unfortunately due to the medication I’m on 😅😭
2026-09-13 09:39:22
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Courtney :
Omg I thought I was the only one craving sugar!.. do you know why?!
2026-09-10 14:46:16
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Gemma Don :
I had awful tremmors tonight 😫 I will remember this tip thank you xxx
2026-09-27 23:13:05
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Mars :3 :
this is more help than the Drs and hospital have given me thank you
2026-09-16 10:20:51
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✨lyssa faith✨💕 :
Would packets of pure sugar help? like you find in restaurants and cafes and stuff?
2026-09-09 04:00:37
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Meagannn :
I just discovered caffeine sets me off too 😂😭
2026-09-10 12:53:54
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prioritiesrnow :
Love one of them gummies, esp at night... really helps to calm... or sticking my feet in cold water when the legs get bad at night... helps regulate
2026-09-08 19:05:12
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FN🧡DIVA :
I cant have the gummies because of medication interfering 🥺
2026-09-09 22:15:18
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DuctTapeandaPrayer :
hey are you on ADHD meds too? and is it a particular brand of gummies? thank you💜
2026-09-10 07:25:47
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JA Mo :
Hi, what gummies do you use?
2026-09-10 09:32:52
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Angel Harrison :
What did you eat that was pure sugar hun ? Xxxx
2026-10-06 16:43:32
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l3g3nd41ry :
So, I was taught the breathing techniques to help with my symptoms. The irony of ironies? Being diagnosed with asthma a few months later, at 38.
2026-10-23 16:14:03
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nathalypena650 :
That’s what has helped me too sugar. I drink coke and sour candy. Sour helps with anxiety. I carry candies in my purse if going out.
2026-09-23 04:31:51
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Mark penfold :
🥰
2026-10-29 00:56:49
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Ce :
😳😳😳
2026-10-22 10:29:01
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Jesus :
i wish you Happy and precious day for you since Oviedo Asturias spain
2026-09-13 09:52:10
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