@rhymeswithdiva: Replying to @breezymom yap about the concept of “recovery” #myalgicencephalomyelitis #mecfs #chronicillness

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diva
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Region: US
Wednesday 09 September 2026 15:33:58 GMT
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obbysbobs
Bobs :
i'm crying the original comment is SO stupid in the first place like am i missing something 😭😭 "I’ve noticed the individuals who are recovering from this disease have a very different outlook. their language is far more positive" you mean people who are improving from debilitating illness act happier than those declining and suffering???? 😲 I WONDER WHY that's crazy
2026-09-09 16:25:11
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exposingillandindiana
Exposingillandin :
sometimes you cant fucking recover. i cant even leave my house anymore after cancer befauze of my immune system and being in a town where MEASLES is everywhere bc people dont believe in vaccines 😭
2026-09-09 15:42:52
160
flyawayrage
flyawayrage :
I find able bodied individuals really want to believe there’s always something else we can do to “save” ourselves (like adjusting our attitude, as if that will do it 😭). It’s wild. Sometimes the best we can do is survive, and that’s okay 🫂
2026-09-09 20:26:54
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jellydonut43
jelly-donut :
I very much have noticed the added light in the past months lol
2026-09-10 21:30:15
1
silver_star773
silver_star773 🏛️🚦♿️🇵🇸 :
it's so weird that they imply you aren't trying to recover. i have really noticed that you are in so much more light than usual, but then again people without me may not realise how big of a step that is
2026-09-10 12:26:47
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anna.bandiachridhe
Anna ⚢ :
they only accept us if we can be fixed/cured.
2026-09-09 15:44:45
47
tammielg
TammieG :
If a positive attitude could make MEcfs go away I would have been cured 10 years ago. Many people don't even know how sick I was. I was positve I would heal, but I didn't. No! actively trying every alternative treatment for each individual symptom is what helped. Resting and getting rid of stressful stuff. 😐 I truly believe if I had not exercised, told the truth of how I felt and worked on recovery and resting Its would not have taken 10 years to start recovering
2026-09-10 16:56:03
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lisschen_09
Lisa⸆⸉🏹🕰️🪩 :
I can’t quite remember when you first popped up of my fy but everyone who’s been here for a while including me can definitely see how much you’ve recovered! Thank you as well for your tts and the awareness you spread <3
2026-09-10 09:47:41
2
musingsonmadness
musingsonmadness :
It’s like coming to peace with our circumstances is seen as giving up 🤦🏻‍♀️
2026-09-09 16:57:51
10
beckisliving
beck :
i also made my own recovery plan because otherwise i would have died. ME recovery does not happen overnight, i had a breakdown because my nervous system could not handle how ‘suddenly’ i improved, and i STILL HAVE ME and i am still fighting every day to improve further
2026-09-09 16:08:25
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electricache
electricache :
people don't really understand what it looks like for us to recover. like people will tell me to go out and exercise more and i just have to ignore them and know that im doing what's right for me. but people look at me and think im giving in because im working with my body.
2026-09-09 15:38:37
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karolinstenc
Kar_linStc :
I also became more positive once I began to improve. Nowhere near functioning, but housebound. But the 2 years when I was bedbound and there was zero progress - it messes your positivity real good 🙃 people can’t comprehend it.
2026-09-10 09:43:48
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maflalu
Myendo :
the "anti-recovery" thing is literally so frustrating 😭 like people really think we just choose to feel like crap?? when my body decides to just crash for no reason, it’s not a choice. i started logging those unpredictable crashes in the Endora app, my little symptom journal, so i can actually show people how my body *really* works instead of just getting judged💝
2026-09-10 20:58:20
0
ricemilkeuxy
🌻Liv🐄 :
I can guarantee, 99% of the people with chronic illness who "have a positive outlook" DONT. I was one of those people who "did", and it is all performative, BECAUSE of people like that. we get raked over the coals if we're not their "perfect disabled person" , with includes being positive. many of us are positive upfront and outloud to people, but absolutely not internally. their argument is obviously void.
2026-09-09 23:21:01
8
justsillylilguys
🪫Low Battery🪫 | ♿🏳️‍⚧️🍉 :
I've been so positive about recovery, to the point I have been devastated every time it gets worse, because I really thought I'd get better. no amount of positive thinking pulls you out of this
2026-09-09 16:28:20
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tay_inthestars
тач ✩¹²⁷ :
its so demoralizing, like im chronically ILL. its called recovery for a reasoning, i am RECOVERING not CURED.
2026-09-09 16:00:09
8
emerald.cup
Maxx♿🏳️‍⚧️🐀 :
Remember recovery looks different for everyone! not all of us can just RETURN, to who we were before. trust we have GRIEVED over it! we are TRYING!
2026-09-10 00:45:25
5
xx__imogen_x
Imogen🌿 :
i genuinely would give anything in the world to get rid of this illness. i will take any of my other conditions over ME. it’s hell, even now my baseline is significantly better it’s still horrendous to live with
2026-09-09 17:08:33
6
iyamwhatiyam11
jst a grl in the world :
I've been following you for some time and you def are up and about more than you used to be! sitting a bit further up, using your power chair, etc
2026-09-09 15:41:18
12
lost_library_collective
⛧Alistair⛧ :
I followed you back them, and if anyone ever says anything about you being anti recovery again, tag me and I'll be a fukin witness. you are doing so much better, and im so proud of you, especially as someone who has had to figure out their own health plan (for chronic illnesses, which btw, I do agree with you, it is not the same. I am so thankful I have never been bed bound by my illnesses, and im aware that is because im chronically ill vs having something like ME)
2026-09-11 06:55:55
1
alexisburman
alexisburman :
Do you consider chronic illnesses and diseases to be mutually exclusive?
2026-09-09 17:50:54
0
meheenruby
meheen ruby 👩🏽‍🎨♿️ :
"anti recovery" is a dog whistle for the brain retraining grifters ime
2026-09-10 04:35:47
2
feral.and.chaotic
Feral and Chaotic✨ :
Honestly, the fact that you have recovered as much as you have, gives me hope that my mum who also has this stupid illness can improve from her current severe/very severe state. Also Ayyy Percy Jackson shirt!!
2026-09-09 21:50:35
3
souliewrld
r3dvelv3tcak3 :
we get shamed so much for not “wanting to recover” when doctors don’t let us recover 🫩 it shouldn’t take years to get on treatment
2026-09-09 23:11:41
2
naya.stbr
naya :
for me, at the moment "recovering" is: not getting worse (with "October/November slide" around the corner)
2026-09-09 17:11:53
3
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