@secrethaventash: I’m slowly losing my ability to walk. My brother has already lost his. Please give us 5 minutes of your time. 💔 We need 100,000 signatures by 24th September to help get access to the first treatment for Friedreich’s ataxia debated in Parliament. Signing costs nothing, but it could mean everything to families like mine. 🧡 Please like, share, repost, tag people in comments. We need the support 🙏 Petition link here: https://petition.parliament.uk/petitions/760461 #friedreichsataxia #ataxia #fyp #viral #petition
I have signed and truly sorry that your being denied treatment and intervention for this disease. would it be ok if I just share your post? I am saddened that you and many other FA sufferers are being treated unfairly. this needs to change! thank you for sharing your journey. my goes out to you and Anthony. x
2026-09-11 00:22:18
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Jemma🌷G🌟 :
signed and ready and waiting for email! x
2026-09-11 05:06:51
2
Mumma_Haven_Julie :
my beautiful and inspirational daughter tasha and son anthony ❤️❤️❤️
2026-09-10 19:11:25
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Secret_Haven :
https://petition.parliament.uk/petitions/760461
2026-09-10 19:06:42
16
shellbell :
signed hun 🥰🥰🥰
2026-09-11 08:07:54
1
Georgie Rose 💕✨ :
what's everyone favourite colour? mine is cherry blossom pink 🌸
2026-09-10 18:39:35
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Lorna 🐝 :
Gone to bio to find petition and sign, EVERYONE REMEMBER TO CHECK EMAILS AFTER N CONFIRM IR SIGNATURE GUYS, what a wonderful inspiring young woman
2026-09-10 18:00:19
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Mo Taylor-Shone :
Signed.
2026-09-11 08:07:31
1
cappo :
https://petition.parliament.uk/petitions/760461 copy and paste if you cant copy from above
2026-09-10 18:19:33
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kazzmac66 :
Signed & shared 💖
2026-09-11 05:36:00
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Mumofboys! :
Signed … disgusting that nhs withhold medication knowing how much it would change peoples lives, shouldn’t even be up for discussion
2026-09-10 18:36:21
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❣️❣️𝓜𝓾𝓶𝔃❣️❣️ :
Well done Tasha❣️Signed
2026-09-10 17:29:47
10
Dark_angel :
life can be so cruel
2026-09-10 17:29:24
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🦦Otterly🏴🏳️🌈⚢ :
Your soul is so beautiful Tasha 💙
2026-09-10 17:29:09
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Mummy2two29 :
Please everyone sign. Chronic illness doesn’t discriminate and something that doesn’t affect you now, may affect your children or your grandchildren. Do it for the people who need the help now and also the people who are going to need the help in the future! You never know when it might be your family that FA is affecting! Lots of love Tasha ❤️
2026-09-10 19:42:59
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Annie :
Signed . I wish you all the best Tasha x
2026-09-10 21:13:32
6
stormy waters :
i have signed. it shocks me they won't give you treatment
2026-09-10 20:59:15
5
Suzie :
signed
2026-09-11 05:50:34
2
Karen Jackson :
Done . You are an amazing person with an incredible family ❤️🥰
2026-09-10 21:12:47
5
Rebecca | ASD Mum & Life🩷 :
Signed already 🩷
2026-09-10 20:53:14
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555🖤 :
I ve signed your petition. Good luck. But having to do this to get medication is ridiculous xx
2026-09-10 18:11:41
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BehindTheEyes :
Done xxx
2026-09-10 18:15:49
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Bernie Ohare :
signed tash we are fighting for funding here too 🙏❤️
2026-09-10 17:42:33
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meadowhousestudiouk :
I will be signing immediately. When I was a little girl we went to Southern Ireland & we met a family, who’s son & daughter both had FA. I don’t know why but I still think about them to this day. In fact my mum & brother were talking about them this week, bizarrely. We met them over 45 years ago so what a coincidence that you turned up on my fyp today (or does that just prove that they are listening to our every word?). I really hope that you get the number of signatures you need to get it to parliament. You spoke very well & should be very proud of the awareness that you are bringing about FA. I really hope that you get approval for the medication you need. It’s disgusting to think that it’s there but you can’t access it 😡xx
2026-09-10 20:23:43
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Sarah Nicholls :
Done. Good luck Tasha
2026-09-10 18:35:56
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