@momma.yayaa: Putting this all together, your daughter is a statistical miracle. What she has survived and navigated in just 14 months makes her situation so profoundly rare that it is almost impossible to quantify in standard medical numbers. To look at her rarity with all of these layers combined, we have to understand just how exceptional her medical path is: • Down Syndrome and Single Ventricle Anatomy: While about half of babies with Down syndrome have heart defects, they are almost always structural defects like AVSDs that can be fully repaired into a normal four-chambered heart. Single-ventricle conditions requiring the Norwood and Glenn procedures (like Hypoplastic Left Heart Syndrome) are incredibly rare in children with Down syndrome. Statistically, only a tiny fraction of single-ventricle surgeries worldwide are performed on children with Trisomy 21. • Surviving Single-Ventricle Palliation: The Norwood procedure is widely considered one of the highest-risk, most complex open-heart surgeries in all of medicine. Having both a Norwood and a Glenn procedure is an intense surgical hurdle for any infant. For your daughter to have fought through both of these major surgeries with single-ventricle physiology is an immense victory. • Survival After a 30-Minute Cardiac Arrest: Single-ventricle hearts have a very delicate balance of blood flow to the lungs and the body. If a cardiac arrest occurs, resuscitating a child with this complex anatomy is uniquely difficult. Surviving a 30-minute arrest—where the heart and brain are completely deprived of normal circulation for half an hour—and being here at 14 months old defies almost all standard medical odds She is truly one of a kind. You are looking at a combination of factors so rare that most pediatric cardiologists and neurologists will never see a patient like her in their entire careers. Her survival tells us that she is an extraordinarily resilient, tough little girl, and she is beating odds that text books say are nearly impossible. #foryoupage #cvicu #miraclebaby #cardiacarrest #trending

Natassia Gress :

Update us sweet girl

🐜 🎱🍀Heather 🍀🎱 🐜 :

Please fill this jar with love for Scarlett and her family

bre🍓 :

Been checking your profile for updates 🥹🥹 she truly is a miracle. Sending you and yours all the love and prayers. She’s got this 💪🏽💪🏽

Averygs :

Just incase… your numbers are on the signs I don’t know if you want ppl to see those. Prayers for you guys ❤️❤️

hanna flanery :

be careful girl you just posted both of your phone numbers

Jessica| T21 momma 💙💛 :

u are the best mommy to scartlett ! resilient because she has the best parents supporting her !! you guys will get through this in JESUS NAME.!!

𝓇 . :

My heart is hurting for you mama , but just know one mama cries we all cry ! I’m here for you beautiful ! Stay strong , your baby girl is so strong ! Praying for your family ❤️‍🩹

S :

Praying for sweet Scarlett and mom and dad! Keep fighting beautiful baby girl! ❤️

alllabouttjass :

omgosh she is such a fighter that little girl has been through so much! Praying she keeps fighting and pushes through this!🤍

Samantha Hunn :

Sending prayers for Scarlett

taryn.567 :

Hey I dm you on here🩷

Crystal Renee :

So many prayers and so much love. A fellow HLHS mama ❤️‍🩹

peace_nature2018 :

Door decorating was the one thing that got me through the long stays. I also created an all about me sign that was posted everywhere including the expectation I had for communication with doctors and nurses. Sending good thoughts your way!

Sandy :

Strong babies come from strong parents 🥰

Kalyssa💘 :

I love her so much!!! Such a beautiful door for baby Scarlett ❤️

Jadabug🐞 :

Dear Heavenly Father I ask you that we all pray for this beautiful babygirl. I ask that you heal all opened wounds, heal her families worries. Father God I ask you to wake this baby up and allow her to smile at her parents and family, father I ask you to give these wonderful parents a reason to keep going and to keep fighting! Father God I ask you to keep this family smiling and happy. In Jesus name we pray Amen 🙏🏽 ❤️

Maddicyn :

Thinking of you guys

taylor :

Praying for this sweet girl🩵🩷

Marie and Jodi :

Continuing to send prayers and positive vibes your way

saltypicklemonster2807 :

Sending positive vibes. Also just wanted to let you know your phone number is on the signs. If you’re not already aware,

Brittanie Rachelle :

15274 :

Omg Stanford ? I recognize the hospital. Baby was also there god bless u

Abbs :

God has big plans for her love! ❤️

Magpie_sti :

been praying for your family. thinking of you, and your precious baby girl. she sure is a strong little girl and must take after her momma

Julie Day :

Sweet baby girl we need you to heal up and open those eyes for your mama ❤️we all miss that sweet smile!