@thepainnpchenlow: Read Your Medical Notes #ChronicPain #PatientAdvocacy #MedicalGaslighting #ChronicIllness #ThePainNP

The Pain NP
The Pain NP
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Region: US
Saturday 12 September 2026 16:46:04 GMT
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just1morechptr
🐦‍⬛♟️💕Dawn💕⛈️☀️🪖 :
I ALWAYS read mine and it’s often incorrect. I’m a CMA so I know you can do this and how to correct it, but most people don’t know this and it’s so sad!! So thank you!!
2026-09-16 01:40:54
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nixonspeechandlanguage
Stephanie M. Nixon PhD CCC-SLP :
I was inpatient post- L4-5 fusion and reading the chart notes via MyChart. One day my nurse said, "Wait, you're really reading those notes!?". I said, "Definitely. I skimmed them and that's how I knew to suggest providers discuss with their colleague who stated I experienced an isolated fever (102.4) that she needed to correct it w/o a HIPAA amendment because the factual data in the record (I.e., multiple 100.4+ temps after the 102.4) didn't agree with her visit note.
2026-09-14 22:15:38
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hollyolivia51
HollyOlivia :
It should be actionable to lie into a patient’s chart that affects their care.
2026-09-15 09:23:41
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natalie6970_
natalie6970_ :
How do you get your notes
2026-09-12 21:32:12
1
805terri
805Terri :
Why would a health care provider inaccurately document a patient’s chart? I know it happens; I’ve experienced it myself.
2026-09-13 03:46:06
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turnerjade6
Foreverunicornsx3 :
I had a rheumatologist deny seeing me from reading my notes.
2026-09-12 19:46:42
2
ladydiane1028
Diane D :
Yes! My MD charted that I was asking for daily opioid management for pain and pain clinic refused. The truth was the pain clinic wanted to put me on daily pain meds and I refused the contract because I didn't want that. The thing that made this especially bad was we never had a conversation about this during the appointment and this was her whole progress note. I told her I saw her charting make derogatory statements about pain medication and we never had this discussion during the appointment. And asked her why would she chart something that wasn't true and can give others the wrong opinion. When is comes to chronic pain management this happens so much.
2026-09-12 19:46:33
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awkwardlish
TaurusLeoCapricorn :
12 years of being labeled anxiety and then panic disorder. I have cervical myelopathy, cervical and formainal stenosis, hEDS, MCAS and audhd and that's just what I know recently. It's the constant erasure that's caused so much trauma. It's like moving through the world and always feeling like an alien and being blamed for it.
2026-09-13 10:23:57
1
the.meme.one
.the meme one. :
when they find out you read the summary notes it changes the game. im finally being heard ( that reduces patient stress)..and everyone can hear me now. you are 100% correct. Also quotations work great in documents and should be used more. it doesn't have to make sense what you say to the dr but it might to another Dr that reads that and can help with continuity of care.
2026-09-12 17:08:27
6
tjmeldo
Tj :
Ty
2026-09-12 21:17:28
1
msnanjo
Jolene OHalloran :
How do you request that I’m in Australia?
2026-09-12 18:00:20
1
deboralong015
Debora Long :
I will inform them of changes and it never changes
2026-09-12 22:57:24
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julie.gamage7
Julie Gamage💙 :
Just one of countless reasons why I don't participate in the Healthcare system anymore. Short of a video appointment once a year so my doctor will keep prescribing my high blood pressure meds and acid reflux meds.
2026-09-13 01:33:46
0
cajungirl0345
cajungirl0345 :
Oh yes they put there own words that i didn't even say. But if we say anything they get mad or don't answer. so frustrating
2026-09-13 15:25:08
0
amon_right
Amon_Right :
Superficial script that's the new format. When you stop caring ahhaa. They won't even allow you to have all of it its missing.
2026-09-13 06:55:13
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mom31092
Kristi :
Drs are also using AI for visit summaries & it’s soooo inaccurate.
2026-09-12 21:53:49
1
ptcglass
Kendra | @ptcglass :
This!!!! I found the neurologist I was seeing and expressing my problems to was reporting that I was fine and the meds were working. They were not working and I was not ok. Fired her once I read her notes
2026-09-12 20:01:27
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creekgreaser9000
creekgreaser :
I asked for my file and was refused. When I pushed they made it impossible with a bunch of hoops to get through to get my papers. Like what are we hiding? why are they so upset. I believe my care is effected by notes. I'll have to keep trying now that I have a new doctor, but I found it out its so secretive when its my right.
2026-09-12 17:22:47
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beyond_the_record
BeyondTheChart :
I had an amendment added to my record, but was told Care Everywhere doesn’t transmit the amendment or Statement of Disagreement and the next provider may never see your correction.
2026-09-12 19:13:25
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lizserrano630
lizserrano630 :
Yes this is why I read all notes on my chart but no one ever fixes for me so yes I have learned to speak up
2026-09-12 18:52:13
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nmjoyce82
Princessnikki82 :
@The Pain NP Can you please do a video about how to ask for an amendment to your record?
2026-09-12 20:06:08
0
masajoid04t
Misti :
❤️
2026-09-12 18:42:42
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chronicly.illest
🪾Sadie Aydee HD🧭 :
mind blatantly lie. they make things up they add their own interpretations of things that I have expressly defined and they dismiss and downplay all of my symptoms as drug seeking. as I lose a half inch of height from spinal collapse and as I am down 11% of my body weight in a year. they're all so ignoring that both my kids have the same disease and symptoms but they keep taking our diagnosis and trying to make it child abuse and psychiatric
2026-09-12 19:10:08
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