@roxannakemppainen: Pat was super sweet today, very loving and chill. I didn't sense any agitation or anxiety, but I had to stay away from the main common area. one of the residents was very upset as she often is, pacing and flipping furniture and yelling out and swearing, crying etc...it's definitely triggering and stirs up so many awful memories of similar events with Pat and how helpless we can feel as caregivers. Meds can help but not every family is on board with giving meds, which is just a lack of understanding how they can help. The stage that comes with those behaviors was a long and trying one...its very heartbreaking especially for an empathetic person who has also gone through it. We took our visit to the piano room and sat by the sun! The things I've seen and have gone through with this disease will never leave me. They have changed me...in ways too many to count...my DNA is different...surviving this journey as a caregiver is a bittersweet triumph that I will use for good. If I can't make something good come from this Pat suffered in waste and shame on me then. I am his voice and I will share our journey till my last breath. Much love all! #loveismysuperpower #awareness #dementia #EarlyOnsetAlzheimers #EndAlzheimersDisease
I took my mom's clothes home every week because people were stealing her stuff, don't bring anything valuable cuz staff also steals
2026-09-15 21:12:58
1
user1796120335752 :
Thanks not true
2026-09-14 14:16:51
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kimbrodskymaguire :
Aren’t you afraid he will fall from the chair as he tries to get up
2026-09-14 02:35:16
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Dawn louise :
looking so lovely 😍
2026-09-14 11:10:48
1
GIO🌹 :
Patrick I'm Puerto Rico hearing, the Packers and Vikings playing, Sunday at 6:17 pm Packers 19 Vikings 10 third quarter😁👍 love is on fire 🏈
2026-09-13 22:19:44
1
paulabarbeau907 :
you are such a wonderful wife
2026-09-15 13:09:40
1
It'sthemominme aka *Shine* :
Can Pats shirts be marked with his name?
2026-09-15 01:41:10
1
livelovelaugh :
Roxy you need to have some Malbec
2026-09-14 04:48:34
1
Pat Barone Oleksy :
I do my husbands laundry. It’s easy for you being you live so close
2026-09-14 00:41:51
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Kimmie :
Awww you’re love you have for Pat is so beautiful ♥️and Pat seems so aware and alert today, and I never heard him speak so much ♥️God Bless you both ♥️🙏
2026-09-14 22:59:04
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❤️ ✨ Im1ofakind Kathi ✨❤️ :
green bay
2026-09-13 20:53:44
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Shirley :
He keeps leaning forward and he really wants to walk. Could he walk with a walker if you were with him?
2026-09-13 23:51:03
1
Colene :
Hi, Patrick! Go, Packers! I love how he gently touches you! Such love between you! ❤️❤️
2026-09-13 21:08:46
2
kris :
what a bad Packer game hu??
2026-09-14 00:50:05
1
Robert Williams93049 🇨🇦 🍁 :
its a tough journey Roxanne 🥰🥰🥰
2026-09-14 00:26:34
3
Lisa Arndt :
Awwww. He’s wearing his packers shirt
2026-09-14 19:44:01
1
Ann :
I walked my mom everyday in a facility like that with her walker, I was there 7 days a week because the care was so poor
2026-09-15 21:14:21
1
ma_ma7788 :
2026-09-14 03:42:27
1
livelovelaugh :
I love your post, I have been silently dealing with my dad who is a golf war veteran. he is 69yr old and in a facility for therapy. it's been 3 weeks and he want to come back to my home, he talks about getting into the pool ... how can I get him to understand that he is no longer in my home and no access to s pool. pl,
2026-09-14 04:35:59
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deborahwilliams183 :
Pat looks good today. He is more alert. You are a wonderful, caring wife. ♥️♥️
2026-09-13 22:04:39
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Michele Katz :
It’s wonderful when you are able to have a nice visit. Pat looked good today
2026-09-14 05:23:39
1
Gagacw :
Aww you are so good to him
2026-09-14 01:55:34
1
user7063540272412 :
Do you worry about him falling out of the chair?
2026-09-13 22:35:27
1
livelovelaugh :
he still think he is in my home , he goes out but is not aware of his situation, thank God for for his helpers. ... war veteran I'm ok I have him home with me and kids, Roxy. you are and amazing woman. 6 yrs dealing with him home in our home,
2026-09-14 04:47:16
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