Adytum
Region: US
Sunday 13 September 2026 22:25:59 GMT
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floatawhile :
Jeez what isn’t wrong with us?!
2026-09-14 00:19:41
88
Red :
Huh, maybe this is why I feel like I have a bruise before it shows up on my skin. And probably why mine seem to hurt more than an average person’s.
2026-09-18 20:37:17
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user31942530845102 :
I wonder if this affects menstruation at all 💀
2026-09-14 02:34:14
27
Kelly Lafon Day 🍉 :
Welp let this be my apology to anyone who received my platelet blood donations 🫣
2026-09-14 01:32:17
88
Ms Ma Mo :
My whole life. I have Eds. I had to have my nose cauterized often for a year as a child bc the nose bleeds wouldn’t stop at school
2026-09-13 23:38:06
18
Acadianne :
Hmmm….yet another way my body said oh you think you’ve got hEDS figured out? I’ll just throw the opposite symptom at you! I clot unnaturally fast normally(there have been rare occasions when I don’t) but I still bruise easily and randomly though. I also build scar tissue at an exceedingly fast pace and the fast clotting may be related to the fast scarring and not to my hEDS because the scarring thing is yet another super, duper rare hereditary disorder, I’ve only ever heard of one person outside my immediate family and only ever encountered two doctors who had heard of it, the one who diagnosed me at 2 and an ER doctor when I split my head open when I was 6.
2026-09-14 15:43:35
2
Harper :
So...my blood grippers has innattentive ADHD too?😂
2026-09-14 08:54:14
11
KLC :
Yeah I have chronic vasculitis and survived a PE. I’m not shocked at all.
2026-09-17 02:43:50
0
Andrew 𓅞𓀃 :
Aw I thought it was just the jiujitsu I was doing that gave me all these random bruises
2026-09-14 11:36:30
3
Nathalie van Dijk :
got a bruise from a mosquito bite
2026-09-15 15:11:16
1
The Life of a Cat Girl :
Hmmmm I have chronic leukemia and while that’s doing well, my platelets are always giving me troubles.
2026-09-13 23:11:27
1
Sarah :
I wonder if, ITP, while probably rare is in that circle with HEDS POTS MCAS. My mom had ITP she had ever spleen removed because it was consuming all the platelets in her blood. I will randomly bump my foot or my knuckles and pop blood vessels with ease, leaving bruising for days. And I’ve been diagnosed with all of the four letter syndrome listed above.
2026-09-14 02:46:13
4
heathergirl36 :
Thank you for putting the resources
2026-09-14 04:30:26
2
Adytum :
Trying out a new style of editing, let me know what you think!
2026-09-13 22:40:25
1
Michelle Giguere 🇨🇦🏔️🎨 :
So how do I fix it?
2026-09-14 23:44:51
1
brithegoose :
My bruising gets very very severe with normal everything. I was recently diagnosed with autoerythrocyte sensitization syndrome. I wonder if they’re related lol
2026-09-14 03:31:27
2
𝔅𝔲𝔯𝔫𝔢𝔯𝔟𝔯𝔦𝔱𝔱 🕷️ :
Hmmm I have hEDS and I randomly get super low platelets all the time, it’s weird one blood test their low the next they’re back to normal
2026-09-14 08:13:08
1
bavisti :
Check 35 altered proteins in EDS. Coagulation factor X is affected. Not as bad as in Hereditary Factor X deficiency, but bad enough to bleed profoundly.
2026-09-14 01:02:21
4
howdoesmygardengrow1984 :
I tend to bruise, days after expected. So if i i fk foot up BAD today, i might swell but no funky colours till i feel much improvement so day 6-11 is when wild colours develop.
2026-09-14 19:00:30
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Alex witchy beyond the scream :
that explains my daughter's frequent nose bleeds firm absolutely no where
2026-09-16 08:31:28
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Anna chap :
This why we bruise like peaches?
2026-09-15 16:30:08
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Madison7 :
My MPV are always low I have never had a normal MPV and my platelets are often high. I bruise so easily and my blood looks thin and I often blood for hours
2026-09-14 03:01:52
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bombchellecosplay🍁🇨🇦 :
I used to have one or two major nosebleeds a month. I'm talking "passing out on the bathroom floor in a puddle of my own blood" major. or a two hour one at work that resulted in my supervisor calling the ER to get advise. very interesting information
2026-09-15 10:14:10
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hbomberGuyLombardo :
Deeper than that, actually. They’re called mirror neurons.
2026-09-13 23:25:02
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lalalalalalacey🇨🇦 :
I have had low platelets for 15 years. Always just under the cutoff of normal. The only exceptions have been when I've been pregnant. Iron, ferritin, B12 fine, so I wonder if it truly is just and hEDS thing for me.
2026-09-13 22:55:11
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