@franhaddock_: What slow and small improvements in my severe ME and long covid have looked like since the covid infection that sent me from mild to severe in November 2022 NB my Funcap was likely quite a bit lower than 1.4 at my worst. 1.4 is just what it was the first time I did it in September 2024. I suspect it was below 1 in 2023. I have a post on meds I’ve tried and what I think has helped that I’ll share again in my stories today. But to summarise, the meds I THINK have helped the most are (NOT MEDICAL ADVICE): POTS treatment- Ivabradine, mestinon and fludrocortisone, Ajovy for vestibular migraine, LDN and LDA, aciclovir and then valacyclovir for viral reactivation, progesterone only pill to stop periods. Recently I’ve also been treating my insulin resistance with berberine and myo-inositol which may or may not be helping?! And also trialing Cinnarizine for vertigo, which again may be helping, not sure until I try and come off it. Privilege that is likely linked to improvements includes the privilege of good care meaning I’m not forced to over-exert, class privilege including having a scientific background, white privilege meaning I don’t suffer medical racism, financial privilege meaning my family can afford private care, straight(ish) bodied privilege meaning I’m no subject to medical fatphobia. Not a conclusive list. Everyone with ME deserves access to adequate care, to be believed, to trial treatments, and to be kept safe from harmful infections. [Video description: various clips showing the health improvements and then ongoing health limitations of Fran, a white woman with wavy brown and sometimes other colours hair. Clips include her sitting up in bed, walking, in a wheelchair, waving from a chair in the kitchen, laying in bed and more. There is changing text on the screen with pink writing and a black background. Possibility by lykke li plays] #MECFS #SevereME #myalgicencephalomyelitis #LongCovid #ChronicIllness

franhaddock_

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Monday 14 September 2026 13:12:04 GMT