Starry 🌟
Region: GB
Monday 14 September 2026 23:59:18 GMT
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a0if3 :
Have a look into ankylosing spondylitis, I have this and those symptoms are how it all began.. took 13 years and an emergency spinal surgery to be listen to :( sending you power
2026-09-15 21:22:18
104
ForTheLoveOfDoodles :
So it sounds like fibromyalgia but could also be eds, mcas, chronic fatigue syndrome or any combination of. You need genetic tests for eds not sure about diagnostic for mcas x
2026-09-15 06:55:54
304
Yiikes :
Axial spondyloarthiritis is the clinical step before ankylosing spondylitis! If you don’t meet AS criteria (no spinal fusion) you can still have all of these symptoms! I would see a rheumatologist ❤️it took me over 10 years to get treatment!
2026-11-07 22:46:51
0
pipsabelter :
you have what I have, but I dont know what I have!
2026-09-15 09:20:58
190
Cheri<3 :
For me it was POTS, MCAS and hEDS. that’s the most common triad
2026-09-15 09:49:54
31
kiara :
never seen someone who also gets painful feet from standing. lmk when you find out what it is!!
2026-09-15 06:38:39
3
AJ ⊹₊ ☭ :
when you find out lmk because we have a lot of overlapping symptoms the working theory for me rn is ME/CFS but everything else needs to be ruled out first
2026-09-15 00:46:16
17
Lin :
as someone with hEDS...that really really sounds like hEDS
2026-09-15 07:12:28
46
Eggie :
Look into heds and mcas
2026-09-15 00:25:03
30
F1inch :
Hypermobile Ehlers Danlos Syndrome. ‘When you can’t connect the issues, think connective tissues’
2026-09-27 17:10:02
8
funki :
It could be a hodge podge of things playing off eachother sending you into flares! PCOS, HSD, EDS, MCAS, etc. especially if you are neurodivergent start looking into some of those!
2026-09-16 03:15:22
5
Peewee the Pigeon :
I was given a strangely easy diagnosis of Fibro (literally one blood test and one appointment, very bizarre) and I have all of these symptoms. But now I’m wondering if I maybe have something else, possibly hEDS because I meet most if not all of the hypermobile markers.
2026-09-15 02:39:04
16
funkyfresh1325 :
Sounds like me, they also don’t know what I have
2026-09-18 22:37:52
2
︎Alf ⁷⁷ ⁶⁶ 🏎️ :
You have what I have symptom wise. Have you looked into MCAS? I’m being investigated both for MCAS and hEDS
2026-09-15 13:31:59
13
Cheyenne <3 :
I have the same but also don’t know what caused it
2026-09-15 16:07:48
1
Bek (glee cast version) :
Ehlers Danlos Syndrome, same symptoms here and that’s what was what was diagnosed
2026-09-15 15:17:46
6
fickledreamz2229 :
do you have ankylosing spondylitis? I do and I deal with those symptoms. especially the feet
2026-09-17 22:49:29
9
Bex Pink Lady :
look in mcas
2026-09-15 04:25:43
9
jules :
dont forget it could be a combo of things with some overlapping and some individual symptoms
2026-09-15 19:32:14
5
Penny :
Im diagnosed with hEDS and it sounds very familiar.
2026-09-15 07:47:34
6
YourFavChronicillnessDude :
Look into hEDS and other hypermobility disorders there's 13 types of hEDS alone :)
2026-09-15 18:42:52
4
Luce • disability&EDS advocate :
this sounds like it may be seronegative auto immune disease. have you been tested for inflammatory bowel disease, lovely? (you can have neg colonoscopy and biopsies and still have it and no high CRP or ANA or ESR.) It can cause arthritis in the back and joints. it also sounds like it could be mast cell activation syndrome. did your symptoms start after a viral or infectious trigger or stress? auto immune disease usually has a trigger (but you can also get an auto immune disease from a virus you don't have symptoms for, usually COVID or EBV.) feel free to message me if you have any questions
2026-10-15 08:33:03
0
Emma-Lee 🇨🇴 🌴 :
It’s just life
2026-10-09 03:11:26
0
T :
Go to a rheumatologist
2026-09-18 15:19:10
4
RetroTam :
I'm getting the same symptoms for 5 years now and GP told me it won't be fibromyalgia because I'm not a woman 🤦🏻♂️
2026-09-16 07:00:13
1
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