JourneyWithJohnsonns
Region: US
Tuesday 15 September 2026 13:23:21 GMT
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Retired Music Lady :
I’m exhausted no matter if I sleep well or not. I worry every day. I cry a lot. I’m scared lot. The lack of family support drains me. 😓
2026-09-15 23:04:55
2
Maurice :
Me! (even though my child is in a home now). I don't have the day to day hands on responsibilities but my brain never shuts down.
2026-09-15 15:44:14
1
Flossing with Faith :
Did you AI yourself?🤣
2026-09-21 14:42:13
1
English with Sheressa | ESL :
Thank you for this encouraging reminder. We must give ourselves grace. My dude is five years old now. Everything leading up to this point built a nervous system that I’m still learning to manage. My boy was sick and hospitalized multiple times after birth and then hit no developmental milestones. Trying to keep the Tamagotchi alive is a big thing at first and then you get the diagnosis. But it’s a spectrum and there are so many answers and no answers at all. Will we choose early intervention? Private therapies? ABA? (All of the above in our case). Then genetic testing. Are we gonna have more kids? Why are we thinking about this while we’re trying to fight for the life of the one that we have? We did the genetic testing because we wanted to contribute to the science, but we also learned that our kid has a predisposition to a certain cancer so now he’s having kidney scans every three months from age 3 to 7. On the + side… He’s speaking more now. He’s been in public school for over a month and a half and still doesn’t have an IEP. He has an appointment Wednesday to have an evaluation with the school psychologist. It amazes me that everything we do in this community takes forever. But at the rate with which the diagnoses are climbing, it is par for the course. And I certainly tried to quit explaining anything about my life with him to just any ol body because they look at me like they get it and then they say or do something that proves to me they do not get it at all. I did so many evaluations for him over the summer and he’s been in school for a month and a half and we still don’t have an IEP. The professionals don’t even understand him. Much less some stranger at the park or a family member we see twice a year. And when he’s not with me. I lay here and stare at the ceiling and I think about all the wonderful things he is doing and all the wonderful things he is going to do. The kid is a fighter. If I need to learn anything from this life with him, it’s that I can do hard things too. He does hard things every day. And then I get up and do some laundry. Lol thank you for coming to my TED talk and giving this opportunity to speak.
2026-09-15 13:48:39
1
Katrina Hart :
me and dad💙💪🏻
2026-09-16 01:43:51
1
Gen X_72 :
I am way past exhausted! my son this weekend had a bad meltdown and put his hand through his bedroom window and cut his self so bad he almost bled out. now we have multiple doctor appointments to orthopedic to possibly have surgery to be able to use his arm again 😭😭😭
2026-09-15 14:13:15
1
Pivotal Defense :
me
2026-09-17 13:49:46
1
Wanda :
Me! Grandparent and caregiver.
2026-09-18 18:38:15
1
bipolarbaby :
This is so true .. it is so hard to
2026-09-15 22:08:45
1
Voiceinthevoid :
Me - I have two
2026-09-15 21:10:37
1
Meeshee :
thank you
2026-09-15 13:41:06
1
djordandvm :
me
2026-09-19 04:20:47
1
Angie ❌aimhigh356❌GQ Live Host :
Me me
2026-09-19 14:24:24
1
Jenifer wagner :
This doesn’t sound or look like you. Or am I just too tired? Lol.
2026-09-15 17:47:23
1
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