Saving Liv
Region: US
Thursday 17 September 2026 17:01:01 GMT
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KimBissing :
You are inspiring. Everything you do for raising awareness of this horrible disease and knowing this probably will not help Liv but will most definitely help others. You are amaze. Truly. We need more people like you in this world
2026-10-05 02:04:31
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dianalaroccameyer :
She is precious and you are the best mom ever.
2026-09-17 18:09:24
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12katespring34 :
Your doing amazing work on your page 🥰
2026-09-17 17:06:28
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Shelly1966🇨🇦 :
Crying is cathartic and you need never apologize for being human. You are fighting for Liv and for all the babes born with this terrible disease. Those who comment need to find their heart or move on. 💕
2026-09-17 17:22:25
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Saving Veda :
I was just talking with Carrie about this same thing yesterday 💜 We love you and appreciate you always bringing awareness to our babies.
2026-09-17 18:02:50
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theteresateresa :
You are amazing in how you convey your message. Keep going.
2026-09-17 17:15:45
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Julia :
Your content matters ! ❤️I’ve watched you before my sons diagnosis and now I feel very connected to you and other moms on here. It can be very isolating as a rare disease mom.
2026-09-17 17:11:12
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labgirl16 :
i just saw the FDA approved the drug for san filippo A 👏👏👏👏👏👏
2026-09-17 20:05:28
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Coconut13 :
Just know there’s so many of us that totally disagree with any negativity around anything you post I think you’re very honest and I appreciate even when it’s good or bad. I wish there was a go away button you could just push and forget about them altogether. That’s how much their words are worth.
2026-09-17 18:16:50
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Hope for Lydia | Mama💜 :
I feel that I am in the stage of where you took time off of TikTok after diagnosis & advocating. Now, look at you back within the last year & you are killingggggggg it! This was truly meant for you💜 you have diagnosed so many children because of your voice!
2026-09-17 17:33:22
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yo gigi :
anyone who puts their lives online is so brave. send you love ❤️
2026-09-17 18:43:10
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BarbG1202 :
Don’t pay attention to the trolls. They have nothing better to do. Let them walk a mile in your shoes. You’re amazing and the awareness you’re bringing out is going to help so many. You have people out here who listen and care.
2026-09-18 16:55:07
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BRUK | Humblyhooked Reveal Co✨ :
I’ve been silently watching you (and Liv) for one year now! I am a fellow Wisconsinite ♥️. Thanks for sharing yourself and her story! ♥️
2026-09-18 21:35:50
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Alicexanthi :
Don't apologize for your emotions and bringing awareness to us about your story. Maybe you will save other children being diagnosed early because their parents have seen Liv's story. If people do not what to watch they just have to scroll!!!!
2026-09-19 09:21:16
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user5861119808349 :
No no!! Do not change a thing that you are doing! 💞 Those people that are judging you better be careful because judgement can easily backfire on to them!! Throw a stone … you better be damn perfect! Shame on them! 😡😡
2026-09-19 02:49:05
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Mamasita88 :
I cant believe you even need to make this video.. apologizing for your feelings as a mother wow
2026-09-19 01:48:56
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Valpal :
I love your page!
2026-09-18 14:36:07
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lilygray09 :
never apologise ever your real your story is real sad as that is your emotional clips yes I've shed a tear 😢 to see you this way .you've educated me a lot .your a good whole brave mom and I admire you ❤️
2026-09-17 17:23:04
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StephanieJR :
Good for you
2026-09-18 17:55:03
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teamsheppy :
You do the most amazing job! You teach me things allllll the time, even as a sanflippo mom myself! Forever grateful for your consistency and vulnerability!💜💜💜
2026-09-18 16:31:23
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KH011310 :
We want you to laugh, cry, scream and just be mad. We are here to support and lift up not judge. Feel your feelings and let us help carry the burden. You and your family are not alone. We love you and Liv and we're here for the long haul.
2026-09-18 09:54:55
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bonzaitzu :
Hero mum 🙏🏻✨ God bless you 🙏🏻
2026-09-17 18:48:53
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White.MirandaMae :
Never apologize for all the amazing things you do! You are amazing! 💜
2026-09-18 17:53:24
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Tammy Triv 🩷 :
I have learned so much about this terrible disease however, I have also learned to appreciate things more! 💜
2026-09-18 21:11:14
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Dafne Jose Echevarria :
I will always cry with you. Blessings
2026-09-17 18:43:21
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