Caroline Cray
Region: US
Saturday 19 September 2026 00:11:42 GMT
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bailey bailey :
when i found out that most people experience 0 pain in their everyday lives…. i was so flabbergasted
2026-09-19 04:42:42
17
Anna :
I HIGHLY recommend reading Disjointed: Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. It changed my life after my hEDS diagnosis
2026-09-19 00:48:49
13
ᛑᛗᛛ doe_eyes ᛑᛗᛛ :
Have these and more. I don’t need another diagnosis right now 😂😭
2026-09-19 00:27:24
284
fizzingwhizbee6 :
so I am 99% positive I have this... but im questioning if I even bother getting tested. is there something that helps this or is it just the knowledge of having it?
2026-09-19 01:55:18
34
Liz Rush :
Constant rolled ankles
2026-09-19 01:21:25
25
Ale :
I have all these things and more but the rheumatologist refused to test me for HEDS because “sometimes people are just a little extra flexible”. I’m in pain
2026-09-19 06:53:22
3
Taylor Davis :
Wait…Everyone cant grab there hands behind there back, do praying hands and push their thumbs down?!? Because this is a very normal thing haha
2026-09-19 00:44:03
66
chels🌞 :
me and my pregnancy pillow at 20 😭😭
2026-09-19 00:22:15
44
Anna Ramirez :
The difference in pain perception is so real though! I wouldn’t say I’m constantly in “pain” but I always have some sort of “discomfort” when it’s actually “pain”. It changes that baseline and threshold which makes it hard to determine what “normal” should be.
2026-09-19 06:41:23
0
Ro🌼 :
One thing that my hyper mobility does to me that’s crazy is how many pinched nerves I get and back injuries that are triggered by pinched nerves. Nerve pain is no joke. I’m pretty sure it’s called sciatica? But I’m not rlly sure but it’s wild to me that people aren’t in constant pain.
2026-09-19 07:24:48
1
juksu :
Thank you for mentioning the low humming pain. I think I've gaslighted myself so much because doctors refuse listen/help me so I don't have any diagnosis yet and my goodness does my brain like to try to convince me that I'm actually not in pain. But it's just that, it's low humming kinda pain, slowly gnawing at me from the inside 🥲
2026-09-19 07:40:38
0
Roey :
i have difficulty swallowing now like i used to not be able to swallow pills and now i can but every single time i swallow my throat closes and it hurts then it just comes back up it’s horrible so on Tuesday I will find out more information i hope and go for more testing 😊
2026-09-19 07:45:29
0
Stephanie King :
Yea so I can do all this 🤦♀️
2026-09-19 05:54:46
0
cmdesfxki24 :
From one zebra to another…that outfit is cute where is it from? 👀
2026-09-19 00:47:40
7
kt :
i rebuke this bc it described me and I don’t want to know about it 🙂↔️
2026-09-19 02:08:46
5
johnstamosjunior :
feel soooo seen by this
2026-09-19 05:48:36
0
Arthur :
Gut issues too!! I was told that by my podiatrist strangely but he did a whole paper on hyper mobility it was great to have him
2026-09-19 00:24:58
7
Kaylee :
I always thought I was such a natural at yoga, everyone else had to work on all these binding poses, but not me! Turns out I’m not gifted, just hypermobile😂
2026-09-19 01:47:19
6
matisselympia :
Oh. I thought everyone could do the prayer hands and the grabbing your hands (i am diagnosed with eds lol)
2026-09-19 05:42:14
2
Brandilyn🦝 :
I am not taking new diagnosis right now 🤣 i did not need to check off each one of these
2026-09-19 02:31:07
2
joy.dwts :
So what you’re saying is…me being able to fully hold my own hand across my back the way you did is not normal? 👀
2026-09-19 05:15:46
1
Benadryl Cucumberpatch :
I have every single thing. And now I am worried
2026-09-19 02:57:31
1
yuli :
These are also Symptoms of CCI
2026-09-19 03:45:42
1
Olga 🇨🇦 :
I had a labral tear in my hip, the doctor examining me mentioned hyper mobility. Had 0 explanation as to how it happened... recently I found out I have rolling hiatal hernia, also unexplainable. Both of those can be caused from hyper mobile EDS, I asked my doctor about it and he did the physical tests and yup. I bruise extremely easy and small wounds don't heal very fast - my dr did every blood test he could think of and they all came back normal... that can be another sign of hyper mobile EDS
2026-09-19 03:24:53
0
Ashley Neptune :
Could this be also why you were a successful athlete?!
2026-09-19 01:09:01
1
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