Have you ever seen Lukas Caldwell’s page on TT? He also has this condition. Anyways, I’m sorry you’ve had so many bad experiences. People are assholes, especially on the internet
2026-09-19 05:47:57
2201
JennkL :
Thank you for sharing your story! I’ve never heard Perry Romberg Syndrome, I appreciate you educating us🩵
2026-09-19 03:27:03
3129
www.namekmil.com :
Also, you’re not disgusting looking. You’re absolutely beautiful. People are awful. I see your beauty. I’m sure others see it too.
2026-09-19 03:19:47
1369
Elle🦋Hope in Christ :
I’ve never heard of this disease. Thank you for spreading awareness!! 💞 You’re beautiful!
2026-09-19 02:28:48
7354
AliBaba :
i had no idea this condition existed thank you for spreading awareness. i commend you for being strong and perceiving
2026-09-19 01:33:30
1227
Sophie Hill :
As someone who has a chronic illness that came on suddenly at 30 and caused significant facial damage, I feel for you so much xx please know you are not alone
2026-10-20 06:27:20
68
cappuccino :
My thinking is “she’s lovely, she’s been through something, and she must be pretty strong”
2026-10-21 03:39:29
52
Vatomic :
You really have a way with words
2026-10-28 05:02:44
5
Jan mom :
I was today years old when I heard about this disease. Wishing you strength and comfort 🥰🙏
2026-10-19 00:24:27
41
alyssa :
I’ve been a burn survivor for almost 6 years now, i heavily relate to the grief that comes with your body drastically changing. I volunteer now for multiple camps for burn survivors, and just recently found thru a friend that there’s camps and orgs for people with facial differences. It’s helped me tremendously to be around people similar to me. 🤍
2026-09-20 03:17:29
5
karinapenunuri4 :
I'm so sorry ur going through that, people can be so evil sometimes
2026-10-13 04:50:33
5
ShellB🇨🇦 :
😪❤️🇨🇦 Thank you for your courage to spread awareness.
2026-10-20 04:04:31
12
LynnePaugh :
You are still beautiful!!!
2026-09-20 23:02:37
24
annettedefreitas :
I just want to hug you and let you know that you are amazing and loved .💙🙏
2026-09-27 23:23:34
5
Day☀️ :
Never heard of it because of your video I searched and read about it, you are beautiful and I hope you see that ❤️
2026-11-02 16:55:17
0
Sunshyn Gen ❌ :
This is a disease I have never heard of either. My heart hurts for you. Your story truly hit hard. Thank you for sharing. I would like to follow your story. Much love from wyoming. If we are neighbors….i’d love to be a friend!
2026-09-21 03:14:05
5
ed :
Sweetheart, you're not the ugly one. The people who look at you and say those things, they're the ugly ones you're beautiful.\n I'm truly sorry for what your children go through. I send you all my love and prayers. God bless you. I'm here. I'm your friend.🥰🥰🥰
2026-11-02 14:36:06
0
Lorraine :
God bless you.
2026-09-23 20:40:22
25
www.namekmil.com :
It amazes me how many syndromes are out there that know one even knows about. Thank you for sharing your story and spreading awareness. I truly hope a cure is found some day. Stay blessed love 💞
2026-09-19 03:17:16
4038
julieruszkowski27 :
Praying for you
2026-09-20 18:04:03
14
Krys :
Thank you for sharing and educating us 💜
2026-09-21 00:25:29
5
janebrunsmanJbrunsman :
You are beautiful and brave and courageous! I’ll never understand why people can be so judgmental and mean!
2026-09-21 00:55:05
17
alleanclay :
God heal her
2026-09-20 19:22:39
5
Angel :
God bless you beautiful ❤️
2026-09-20 22:24:37
7
Dara Bonds :
Thank you for sharing your story.
2026-09-21 00:46:51
13
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