Mackenzie’s EB Journey 🦋
Region: US
Sunday 20 September 2026 15:47:51 GMT
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mamagoose2526 :
I wish someone could find the cure or gene therapy needed for this … it tears my heart up . You are so strong.
2026-09-20 16:03:44
606
angryberd :
I am so sorry, you are incredibly strong, all of you are. I pray for all of you. Godspeed in your healing journey ❤️🤲🏼
2026-10-11 08:13:46
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Chloe Andrew :
So much love and blessings to you and your family 💗💗
2026-10-10 09:28:11
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liloyable :
may God bless you always❤️
2026-10-11 08:05:34
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Kierra Jenkin :
Genuinely I feel like eb parents carry the heaviest weight imaginable on there shoulders it’s so cruel and unfair , from the bottom of my heart I pray for a happy healthy life for your daughter.💜
2026-09-21 05:06:55
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theWorkWeek :
Gurl… you clearly need to hear this .. you are doing amazing ! Don’t feel guilty about letting her have fun food - she deserves it.
2026-09-20 19:14:54
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A :
“Is she going to die soon?” Oh a sentence a mother should never have to worry about. This is so unfair to Mackenzie and your entire family. The one thing I, a stranger can see, is how loved Mackenzie is❤️
2026-09-22 03:42:39
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¶^{Flowers}°¶ :
this makes me sad that i crying i really hope she will get stronger and will be has an normal life child i also hope one day she can eat flavors she wish ❤️🩹❤️🩹🌺🌺
2026-09-20 15:56:08
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Knitta :
She is a warrior 💕. Beautiful
2026-09-20 17:56:41
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Kelseyy Moore •SAHM of 5• :
She was clearly placed with the right mama, the rest is so unknown, but this? We know💗
2026-09-21 01:41:45
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meleats5 :
I have two aunts with EB. We are from a third world country with little access to medical care, but they are now 60+ both had healthy kids and live life to their fullest. Your daughter will also be able to do so, keep trusting and loving her 💕
2026-09-21 19:18:55
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Buttcheek on a stick :
What a strong girl and a strong mama 💛 sending you love, you’re both doing amazing and your little one seems like a such a beautiful soul with a beautiful face to match. You’re giving her the best childhood she can have my friend and that is amazing
2026-09-20 18:30:35
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Adry.D.M. :
Im praying for you all! That you all have the strength to fight everyday for her! You are a warrior Mama, showing up for her when the days feel heavy, giving her the BEST care possible and showing others what life with EB is like. You are doing great! You are a blessing from God beautiful girl!! 🙏🙏💕💕
2026-09-20 17:31:09
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Family639 :
Poor lil one couldn’t imagine how much pain 🥺🥺🥺what a lil fighter ❤️❤️❤️
2026-09-20 17:10:35
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Cool Gammy :
My heart breaks for you.
2026-09-21 02:08:35
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GEE | Medical Mom :
death is something many don't talk about but the truth is, it's something we think of often. especially envisioning life without them.. it's a constant battle. thank you fot sharing this.
2026-09-20 21:14:10
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sunshinelady1965 :
Prayers
2026-09-20 18:59:02
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Max :
Your strength is evident in your sweet girl. I can’t imagine the daily struggle and borage of questions you ask yourself daily - this is likely only a fraction of what you experience. Know your girl is loved, and that’s all she’ll
2026-09-21 04:44:38
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Jonttu Beachbum :
God bless
2026-09-21 06:47:24
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Victorious Khan Dulo :
God bless you and your family .God bless your child.
2026-09-21 16:49:50
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Maria Carvajal :
yo kisiera saver como esta ,pero no entiendo el ingles😔 te quiero mucho bebe desde q te coonoci eres un angel bello
2026-09-20 17:45:10
2
user6297859444143 :
I wish I could take all of your pain away sweet girl ❤️praying big prayers for you 🙏🏻
2026-10-02 13:46:23
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Evelin :
God bless this beautiful girl ❤️❤️❤️
2026-09-21 22:12:09
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Queen of winter :
Please god heal this little angel
2026-09-22 09:18:34
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christinaorr133 :
Your doing amazing mama 🥰 you’re an incredible advocate and we can see how loved she is, i know the questions can be haunting but you’re not alone, we’re all praying for a cure. All these babies deserve to live a pain free life.
2026-09-22 16:10:37
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