I was diagnosed with fnd a few years ago now and I've always wanted to connect with others
2026-10-13 07:21:19
1
🇩🇪⚕️Naomi⚕️🇩🇪 :
I was diagnosed last July but it has heavily impacted my life
2026-10-12 22:00:16
1
Nov💗⭐️💐 :
Hi I have this too and it just feels like it’s getting worse and worse I want this to go away😣😣😣😣
2026-10-12 04:36:10
1
🇵🇷Tu Luna🌙🇨🇺 :
im 37 and they haven't tell me exactly what kind of seizure are thst ones im getting all I can say anxiety and stress are thst biggest triggered and I been going tru this for thst past almost 2 years
2026-10-12 02:38:22
2
amberrose2822 :
They tell you it’s all in your head but it put me in a coma for 3 weeks…
2026-10-03 05:26:40
11
Amelia📚 :
I have Dysautonomia and PNES.. got out of the hospital last week after having 8-10 passing out and seizures episodes under 2hrs. Still can’t leave my apartment six days later
2026-10-05 22:34:47
9
rissa :
just got diagnosed this week with FND def need some people!!
2026-10-06 17:00:35
9
Ky :
I'm 19 and have the whole Fnd pie and more conditions that coexist with Fnd reach out anytime
2026-10-05 22:17:40
1
jaslynn_smith :
I’ve been diagnosed with FND since September 2022 and PNES since December 2023. They thought I was faking.
2026-10-05 18:33:01
4
SlimShady_FND💙🌻🧡 :
I also have this
2026-09-24 17:51:04
1
Layne :
Hiiii! I got diagnosed in March after being paralyzed from the waist down, I had a lot happen to my body from December to March and a lot of childhood trauma that I never talked about, so that brought on FND, I was in a wheelchair for 2 months, in July I started using walking sticks and now in October I’m semi independent with tiny flares here and there! Keep having hope friend❤️don’t give up
2026-10-06 02:13:25
1
Still breathing :
I’m 19 and have had symptoms since start of this year and have been diagnosed with fnd since a few months. The worst part isn’t even the symptoms but nobody believing you that it’s real even if scans are normal
2026-10-05 18:17:38
2
Salinda :
Had it since I was 11, diagnosed at 16, and I’m now 19 and thriving working towards my dream job🫶🏻
2026-09-24 23:32:31
8
ummseys :
I have FND alongside functional gait and PNES, its truly and awful unpredictable condition! you got this!
2026-10-04 21:27:22
1
Rhynn🖤🍉🦇 :
Took over 2 years to get diagnosed, symptoms showed up overnight. Wishing u the best 🖤
2026-10-01 02:04:47
1
Mia🐅🖤🃏 :
Hi I have PNES, mine aren’t as frequent but god they are painful and hard
2026-10-02 03:59:09
0
Lexiii 🩵 :
Ive gotchu I’m autistic and have done so much research on it because my symptoms got really bad over the summer I’ll be your friend. Just dm me oki? My insta is its_lexi9ooo my old acc has 000 at the end of it and I don’t use it
2026-10-05 23:11:01
1
kier ☽◯☾ :
hi :)
2026-10-09 08:54:40
0
Feral Miss Information❌ :
Diagnosed in January of this year. Mine started a year ago with multiple issues & now I seize 5+ times a day, tremors, vocal & physical tics. Still looking for help. I had to leave my state for help.
2026-10-06 07:27:28
0
alice 🍃 :
same <3
2026-09-26 02:19:43
1
Tai Johnson_3🐼🐘 :
Hey girl, imma dm you if that’s okay.
2026-10-13 14:42:37
1
Squidmore :
I don’t know if I have PNES or not, but I have severe heart palpitations, dizziness, and seizure like symptoms at least once a week once every two weeks and no doctor will even take me seriously I’ve been to dozens. “They just tell me go home. It’s anxiety.”
2026-09-30 23:46:02
3
ToriSuee 🩷 :
My 11 year old son was diagnosed today, an I wish he had someone his age to talk too or someone to explain an talk to him
2026-09-24 02:38:26
2
Poppop2011f :
I have fnd and I have things that look like pnes but I’m told there fnd episodes looking for friends that understand what they are called
2026-10-06 14:59:04
1
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