Jules | Boston + Beyond 🎀
Region: US
Tuesday 22 September 2026 19:06:00 GMT
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Mars Xena :
my mom passed away from primary progressive ms in 2013. her first symptoms were developing a spot in her vision in one eye, foot drop, and major depression. thank you for sharing this.
2026-09-23 09:39:13
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Alivia :
my brother had mono in high school and was just finally diagnosed with MS in his late 20’s 😌
2026-09-23 20:11:44
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Paige Gregory :
I was just diagnosed Sunday. I am in the hospital til Friday for treatment. First nobody believed me until they finally did a MRI. I have spots on my brain/neck. I am 26. Neurologist told there is new medication, but it’s super expensive.
2026-09-23 09:48:07
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JenniferSlowpez :
Thank you for spreading awareness. I’m sorry for your loss 💔
2026-10-10 01:22:36
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Niki :
As someone with MS, I have always been told it’s not the reason you would pass away. When I see these people saying they’ve died from MS, I get so confused.
2026-09-22 22:54:40
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Nnaaa :
A friend of mine suspects she has MS but she is having trouble getting a diagnosis. I feel so bad when she talks about her arms or legs tingling and feeling numb.
2026-09-23 08:21:13
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Nope :
I have relapsing MS. It’s important to note too that people with relapsing MS can also progress into that progressive MS. It’s just so unpredictable
2026-09-23 16:05:16
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Mcshaylerson :
I was diagnosed at 17 ONLY because my amazing small town eye doctor believed me when I said something was wrong and my primary care kept brushing it off. Let’s not even get into the cost of treatment.
2026-09-23 22:29:37
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Tonya’s Ties :
I asked my PCP to get tested and they told me no. I have one aunt who has it and has had a hell of a life dealing with it. And about 3 1/2 years ago I started having symptoms one after another 😭
2026-09-23 00:02:38
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Robyn 🌻 :
your poor aunt suffered for so long 😩
2026-09-22 23:25:25
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sweetpotatofry :
I've gotten very bad numbness and tingling for years...but it got drastically better after I moved out of my apartment and I tested positive for gliotoxin. my doctors found nothing on my brain MRIs so they think it was mold toxicity
2026-09-23 14:49:42
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Strong Mama Melissa 😈 :
My uncle had MS he was in a wheelchair my whole childhood than got better and lived his life loving bowling he passed a few years ago and my grandma right after. I am having some foot drops now and have been falling larely
2026-09-23 01:05:34
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W. M. :
My Aunt passed away from MS when I was 11. I loved her so much. She described her legs tingling when she was a child.
2026-09-22 21:44:13
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Casey :
I will never stop telling women that they have to advocate for themselves. Drs always tell women it’s anxiety or brush is off
2026-09-24 18:07:47
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Katie MS + Fibro journey 💜🧡 :
You don’t die from MS you die from complications
2026-09-27 00:44:26
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cathylynnanderson :
I was was told that I had MS in my 30 years old and I am 69 now and I still walk around in I am so happy now
2026-09-25 22:02:20
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Tiny Savage4FT7☃️ :
We get medically gas lit!
2026-09-24 19:41:15
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📚🧿 :
I’m so sorry for your aunt and family’s experience. I have a lot of symptoms of it and have thought for years “this is either MS or lupus” but my ANA is negative and brain MRI is “normal” - fibromyalgia is the diagnosis now thrown at me, which I feel really conflicted about. I’m trying to keep pushing for more testing/answers, but it’s definitely hard not to feel defeated.
2026-09-23 19:20:17
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🇮🇹 🤌🏼 LaGringa 🇵🇷 🌴 🐾 :
Im sorry , I was diagnosed with MS 2005’ 21 years struggling with this disease.
2026-09-23 20:14:55
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Candy :
I was only diagnosed because my ENT thought maybe my hearing loss came from a tumor and ordered an MRI. I had to ask for a referral to a neurologist to ask about the lesions.
2026-09-23 10:45:07
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user28379398 :
I have every symptom and they literally cannot find it. I’ve been since since January 2022 and I’m now 29. So it’s been years. None of my MRI’s show it though.
2026-09-23 00:32:57
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Linz :
Thank you for sharing her story 🙏
2026-09-24 04:46:18
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Angie :
I spent 10 years being told I just had vertigo and depression. I was dx almost 3 years ago with rrms and now I have spms
2026-09-23 01:37:05
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Abbie Vivienne :
18 years until i was diagnosed. I was showing signs as a teen but was dismissed. Had complete loss of left side of body in my early 20s and was told it was time of the month migraine or RSI. Your Aunt's story isn't an isolated incident, I am based in UK. I lost my livlihood in my 20s but just got ignored and told I was just lazy. I was diagnosed at 33.
2026-09-25 21:53:14
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michelejonesvangl :
I’m 47 and was diagnosed a week ago. I had loss of temperature on my left side, and the MRI found a lesion on my right cervical spine. Brown-Sequard presentation. They found 3 older, inactive lesions. Overall, it was caught pretty early. They took my symptoms very seriously.
2026-09-23 20:07:13
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