Erin Rackham, PhD
Region: US
Tuesday 22 September 2026 22:18:18 GMT
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TurnANewLeaf :
If it helps, I have ME and regularly get my covid vaccine and I always feel like shit for a day or two. But always get back to baseline. 👍🏼
2026-09-30 15:10:25
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Ninja health :
Can you tell me about the vaccine challenge please ? I’m in Europe so don’t know what it is. But experience with IVIG and hizentra.
2026-09-29 10:55:10
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zaatardiva :
I did it for the Long COVID Clinical trial for nine months and I didn’t notice a major difference
2026-09-29 17:02:21
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Sammi☀️ :
Ivig has saved me and changed my quality of life. I am wishing you all the best.
2026-09-23 06:53:20
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marierie451 :
I’m sorry! I refused the vaccine challenge there is no way
2026-09-23 01:42:49
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Minnie :
I also got my booster recently (ME/CFS and MCAS). I was back at my baseline after about a week (6 days to be exact) if that helps ❤️I kept reminding myself throughout that period that catching the real thing would be much worse
2026-09-23 01:39:33
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BravaisFineJewelry :
Ivig to scig for over 3 years took me from severe to mild
2026-09-23 12:27:40
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Dr. Spoons :
I only had to do the pneumonia vaccine, but it made me feel worse for about 3 weeks
2026-09-23 01:00:34
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The Chronic Creative :
I am the same way with mono. Epstein-Barr and Covid stay in your body and get reactivated so everytime my immune system reacts to something I feel like I have mono all over again. I have had active mono like 5 times
2026-09-23 01:47:14
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🌊 :
so mad i can’t get ivig for long covid bc i also have an autoimmune disease
2026-09-24 11:13:28
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m_larsonator :
Do you mind if I ask if you were able to get insurance pre-authorization for IVIG?
2026-09-28 00:54:32
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Leah :
Pneumovax kicked my butt
2026-09-24 18:20:11
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Sydney :
I can feel my body gearing up for the October slide.
2026-09-24 01:58:33
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riotgirlonfire :
Hope you feel better! And I hope you get the titers you want!
2026-09-23 02:23:02
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Krys10💙💙 :
Sometimes I feel better when I’m sick too! It’s so hard to explain that lol
2026-09-24 23:06:16
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M_vo :
When you have mecfs you are way more sensitive to medications/toxins/chemicals. Doing two at once is a lot. Being aware of the sensitivity can help!
2026-09-23 00:40:19
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tiktokpaddywackgiveaoga8 :
In my experience, SCIG is not hard. However, my understanding is that the dose that treats long Covid not the dose insurance will approve based on a vaccine challenge.
2026-09-22 22:27:53
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Hannah Chapman :
Have you tried SAAT yet?
2026-09-25 13:21:39
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mmcbridemd :
Oh dear
2026-09-23 03:41:42
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🐝🐝🐝🐝🐝🐝 :
A doctor wanted you to do that???
2026-09-23 04:42:59
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Caroline :
I assume you have tested for immunodeficiency and don’t qualify that way?
2026-09-23 00:38:07
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bambino123yyy :
I want it too
2026-09-22 22:42:08
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Katrina Strange :
Ivig has made me worse. Message me with questions
2026-09-22 23:45:13
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LRM :
I’ve been seeing info on low dose rapamycin as a more targeted approach for long covid than ivig
2026-09-23 17:36:34
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Ninja health :
Just remember to take cortisone iv with the IVIG - otherwise side effects can be terrible
2026-09-29 10:53:53
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