@kelseyalfred: Replying to @Waffle_cone I’m gonna say this with my whole chest because I really want my page to be a SAFE space. 👀 There’s a difference between sharing your experience with a medication and filling someone’s head with horror stories that serve no purpose other than making them afraid to try a treatment that could potentially help them. Your experience is your experience. But if every conversation about RA treatment turns into a list of the worst things that happened to someone, what is that actually doing for the person who came here looking for hope, information, or reassurance? RA medications affect everyone differently. Something that was a horrible experience for one person could be completely different for someone else. So I’m going to keep my page a space where we can have REAL conversations about treatment — the good, the bad, the side effects, the questions, ALL of it — without intentionally creating fear around medications that someone else may benefit from. We can be honest without being discouraging. 🤍 #RheumatoidArthritis #SticklerSyndrome #RheumatoidArthritisTreatment #RAAwareness #ChronicIllness
Methotrexate has been life changing for me. No side effects with folic and leucovorin used to prevent side effects. I was able to get back to my normal life!
2026-09-24 03:32:42
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Lulu :
Right , I hate that nothing works for me. I’d take anything if it worked. lol.
2026-09-23 23:29:16
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L50 :
your 100% right! we should be helping each other not scaring each other! everyone is different
2026-09-23 23:19:10
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aliciapfob :
Agreed! When I broke my ankle I was terrified of so much once it started healing because of comments like this 😣
2026-09-23 23:40:55
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Heidi from the Swiss Hills :
Here's the deal
The disease can cause all of those side effects as well
Especially when left untreated
There's a horrible idealogy about medications in this country
My 1st rheumatologist explained it best--life is always about quality instead of quantity
2026-09-24 11:19:42
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