@flareups_and_floofs: BTS of chronic illness. #chronicillness #autoimmunedisease #multiplesclerosis #spoonie #chronicpain

flareups_and_floofs
flareups_and_floofs
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Region: US
Thursday 24 September 2026 10:38:57 GMT
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rosiecakes4u
Rose :
I have RRMS and I can only do 12hrs a week with 4hr shifts. and that's if I'm lucky. thankfully I've been with the company 10yrs and was diagnosed 6yrs ago. my job is a great part of my life
2026-09-28 18:45:28
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deathofanurse
TV :
I also work full time as a nurse. I prep with nothing, but share your prep. What’s your prep? You did no share how you do that. Again, what’s the prep, as a fellow MS patient. Share the prep.
2026-09-25 00:04:49
6
tadler_ugc
tadler_ugc :
Do you get to work from home? I am always in awe of people who are working full time when I feel so inconsistent day to day and am not working.
2026-09-29 01:02:08
1
lilskelliii
Scoots :
I have ppms I gotta take my modafinil and let it work or I'm probably gunna fall over 🤣
2026-09-24 13:11:11
5
hokiejenn
HokieJenn :
Fellow MS warrior. Sending you love 🧡
2026-09-25 16:31:24
3
kellybelly_jelly
Bananajamma :
What medication do you take? My doctor claims there’s nothing I can take except steroids during a flare and briumvi every 6 months. My life is hell on and off
2026-09-26 01:11:46
1
kyboymomof2
Sara Bee :
i work ft with spms as well. I'm exhausted.
2026-09-28 04:36:17
1
granny.oldschool
granny old-school :
how did you get diagnosed as secondary
2026-09-25 21:54:25
1
jeepgirl228
🐦‍⬛♡Melissa♡🐦‍⬛ :
I have to do this too due to Lupus and RA then I have to stretch and soak in Epson salt for an hour to be able to move
2026-09-24 11:24:33
1
keep_smyelin
Keep_Smyelin :
My vertigo alone would have me always needing to leave it’s awful
2026-09-28 22:00:11
1
.nikhe
Nikki :
I have ppms and I do the same. I have to be at work at 5 am and up at 3 am. I take my meds at 2 am.zi walked up and I can walk.
2026-09-25 20:32:58
1
uhhhremitheee
🧡Uhhhremitheee🧡 :
when/how did they decide you had secondary Ms instead of rrms? thank you for sharing tips I have trouble leaving my bedroom most days
2026-09-26 02:30:23
1
livi_11101
livi_11101 :
I feel ya! I have MS as well (RRMS) and was diagnosed two years ago at 18. It’s not easy!! I’m also being investigated for another illness as well. You’re doing great! ❤️
2026-09-24 14:44:23
4
_donnamichelle
Donna :
That’s such a good idea. I also work full time and never thought to take my meds early and give them time to kick in. I usually race to the office in a fog and take them in the car or when I get to work. 🥴
2026-09-25 23:43:50
1
the_witchy_misfit
the_witchy_misfit :
Same! Keep killin it!
2026-09-24 14:43:25
1
kristen_paige_
Kristen-Paige ✝️💋 :
Same girlie! It’s ROUGH.
2026-09-24 21:15:03
3
doddle_1isfine
Doddledeeisfine :
MS Warriors 🧡💪
2026-09-26 01:37:13
1
lindz_0
Lindsey Snoeberger :
I have ankylosing spondylitis and fibromyalgia and I do the same thing but it takes me 3 hours before I can work. This is a great video. There’s so much planning for chronically ill people to get through the day even when more if we work ❤️
2026-09-24 11:14:49
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