@adytum_official: 670 adults with hEDS or HSD took the SCOFF, a five question eating disorder screen, and 1 in 4 screened positive. But 98% also had a gut disorder, and the screen isn't confirmed accurate in people who do. The strongest predictor was gut worry: 45% screened positive with high worry, 13% with low. High worry meant almost six times the odds of a yes to "would you say food dominates your life?" It can still be both, and the screen alone can't tell which. Save this so you have the numbers, tell me if you've been given this screen, and send it to a friend with hEDS and gut symptoms. Not a doctor, and this isn't medical advice. Sources: Altuwayjiri R, et al. Neurogastroenterol Motil. 2026;38(8):e70417. PMID 42590827 #heds #ehlersdanlos #hsd #hypermobility

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Thursday 24 September 2026 23:32:33 GMT