@thebiggersthebetter: I can barely remember anything from those months. I think I’ve blacked them out 😂 #organtransplant #kidneytransplant #kidneydisease #iganephropathy #storytime
My dad has IgA Nephropathy too, it’s very hard. If no one has warned you about this already, getting sick and even getting vaccines can cause an acute kidney injury like what happened to your husband. We didn’t know & now he’s not able to get any vaccines because it’s an autoimmune disease & his body will start attacking itself any time he has any kind of immune response to something.
2026-09-26 10:47:33
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Digestivo :
Stopped reading the minute yall decided to go to bed instead of the ER for that blood pressure?! To Anyone reading this- do NOT make that same choice!
2026-09-25 11:22:32
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2180s_12 :
I went to the doc for a runny nose and had a BP of 298/195. I felt fine.
2026-09-25 13:37:00
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smolpotayoes :
Your husband should look into voyxact or trutakna they are newly approved drugs for IgAN
2026-10-22 19:12:32
0
Brittany Phillips :
Blood pressure that high deserves an ER visit, not waiting until the morning for urgent care.
2026-09-25 10:05:24
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Andy :
hats off to you for the mental juggling of all of that... I am sure you had to downplay all kinds of things with pregnancy and a newborn because of what was happening... and that's a real sacrifice, too
2026-09-25 21:11:40
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Elise | XO, The Macs :
My sister has been a living donor twice - kidney and liver! She’s the most amazing person I know.
2026-09-25 12:03:14
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Annabelle87 :
My older sister was diagnosed with this at 16. She’s been very lucky that it hasn’t progressed but my kidney has been on deck for over 20 years. It is truly wild how fast this progressed for your husband, I’m so sorry. She had migraines they never connected to this but had blood in her urine and recently BP issues.
2026-09-25 14:15:44
25
Amelia :
my husband is on Filspari & I swear this is the first time I have heard anyone else mention this med!
2026-09-26 03:52:18
20
🇨🇦stoiccoast :
my husband's headache was a huge brain tumor 😳
2026-09-25 05:54:53
12
emma :
I had to set the phone down when I got to “and I’m pregnant - did I mention that??” You made my anxiety anxious
2026-09-26 00:42:48
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Danielle Chase :
I’m glad your husband is doing ok now! I have IGA nephropathy and haven’t heard of anyone else talking about it before
2026-09-25 08:12:58
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gabs :
okay wait but why didn’t yall go to the ER immediately with that high of BP😅
2026-09-25 07:03:00
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Simran :
Kudos to the friend
2026-09-25 09:55:31
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ckat :
My friend had swollen legs after a flight- I joked about him having kidney disease. Lo and behold, a diagnosis a few short weeks later 🙃. Pay attention to your bodies yall
2026-09-25 04:31:45
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Liv :
no way, my boyfriend has IgAN!! He’s stable for now thankfully but omg that is so scary
2026-09-26 01:04:40
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difjuzz :
👏👏Spencer 👏👏
2026-09-25 07:21:15
6
mmeegggssss :
I read all of this, and I have horrible health ocd. Adding another fear to my list, but I’m really glad you’re both okay and doing well now. All the well wishes I can send your way, I am! - a stranger
2026-09-25 01:56:21
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skuip6 :
omg what a roller coaster
2026-09-25 01:48:37
11
TheWhiteBarn :
I was diagnosed with IGA when I was 16 they found it by accident and monitored every year at the nephrologist, I’m 41 now and doing great. But most aren’t diagnosed until 40s/50s and most of the time it’s too late. I’m so glad he’s doing well! Thank you for sharing!
2026-09-28 03:01:37
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Amanda RN :
Dialysis nurse here….. I’m using this TikTok on my research paper … I am most definitely looking all this indication up to understand it better. Prayers to your hubby and your family
2026-10-15 06:18:28
4
emily :
why wouldn’t they remove the kidney when giving him the new one? why would they keep it and give him 3 😭
2026-09-26 14:36:59
1
Ashley 🌙✨⚡️ :
Why did they keep his two dud kidneys when he got the donated giant kidney?
2026-09-28 06:04:29
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De’MiaMo :
Where does the fistula come from????😳
2026-09-27 03:50:09
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