@eryykc: Reposting because this is still an issue for me and so many of us with chronic health conditions. #chronicillness #chronicpain #lupus #autoimmunedisease
I have a hormonal condition that is debilitating once a month and a friend I’ve had for 20+ years suggested I “go for a walk” to treat it. I realized in that moment that she’s no longer someone I can discuss my health issues with.
2026-10-02 02:43:30
1
Brenda C39 :
I feel this too. The art of supporting people has gotten lost. Just supporting, not trying to fix. I have people who don’t know what to do with the disappointment of my illness, so they live in denial, telling me about peptide shots that worked for their cousins brothers wife. So when I do see them again, I shut down any talk about my illness because I don’t want to be asked if I tried the peptides, have they worked? Because if I didn’t try their cure, then maybe I’m one of those people who just doesn’t want to get better. And if I did try them and they did not help, somehow my body is still a failure. I have done a lot of work in therapy so this kind of thing doesn’t bother me. But sometimes it does.❤️🩹
2026-09-25 19:37:29
8
Hollyberry :
Yep it’s very lonely. No one understands. Especially when we’re fighting ourselves.
2026-09-30 00:45:43
3
She-of-little-faith Free 🇵🇸 :
people think there's a cure. as if I could just go get it fixed.
2026-09-25 13:13:38
3
raggapunk :
They forget you have it if you don't mention it every now and then though
2026-09-25 20:58:43
3
Bamboo Skye :
i have chronic sinus issues & allergies which leads people to think i've got some sharable sickness.
i have to remind folks that no it's not sharable, you're not gonna catch anything.
i was just built wrong and it's a for life kind of thing.
won't go away until i'm ☠️
2026-09-26 12:03:06
3
☽𝕊𝕔𝕒𝕣𝕝𝕖𝕥 𝕊𝕥𝕣𝕖𝕘𝕒☾ :
I’m tired of talking about it too.”Oh what’s wrong?” Like they forget. It’s everything 😭
2026-09-25 12:13:18
5
Mandy :
And some of us dont need to hear you say you're tired of hearing it. We FEEL it. 💛
2026-09-25 11:18:21
5
Jessie Gail :
it's hard when you realize you've kinda hit that point with everyone in your life so you just kinda stop talking all together cause there's little left in your life to talk about and you know everyone is tired of hearing it.
2026-10-01 21:14:46
1
friendliest.flower :
I also feel this way about talking about my grief. My mom died in 2015 but it still very much hurts.
2026-09-27 23:27:01
2
space_poppy :
this was one of the hardest realizations for me too 🩶
2026-09-25 14:39:33
2
RED44BETTYBOOP :
Exactly 💜💜
2026-09-30 23:01:01
1
Christine | UGC :
My husband has neuropathy so bad. I’ll never get tired of hearing about it. I want so much to find a solution for him.
2026-09-25 11:23:24
6
Bear🐻❄️🌳 :
someone at a diff level of consciousness and steps in development process will wanna hear about it tho- so thats where the wisdom of the medicine people comes in- we dont share unless asked- that way- that person is more open to the message and might be ready for it[Heartwarming]plz take or leave that
2026-09-25 14:43:34
1
Michelle Ann Crumly :
Exactly. People/Family/Friends constantly asked me at the “Beginning “. How I was feeling and I couldn’t give them any new answers. I wasn’t getting better. I would never get better. And they never understood that. They will never understand that. And you stop talking. About anything. I’m sorry, Sir Knight. I’m a real downer today
2026-09-25 14:01:02
1
Tiff (creative_tiff78) :
I have my general answer for most people about how I'm doing - "hanging in", "doing alright". Most aren't listening really anyway. And then there's the folks who actually care. 💜
2026-09-25 21:44:42
1
workingmom9711 :
Sorry. Sometimes being human is frustrating. Bees dance about food and threats, but the other bees never get sick of it.🥺
2026-09-26 04:27:18
1
Maven1 :
2026-09-26 02:21:11
1
DramaVoyeur :
Doesn’t necessarily mean they care about us any less, but it’s really hard for people who don’t have our experience to understand the endlessness. I’m back to looking for a support group.
2026-09-28 05:45:41
1
Kyla :
So true. Most people seem to understand feeling sick for about 3 days.
2026-09-25 14:35:30
2
im gay :
❤️🩹❤️🩹❤️🩹❤️🩹❤️🩹
2026-09-26 00:24:50
1
silverymoonbeam :
💙💙💙
2026-09-25 11:56:29
1
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