Heidi CRNA+SN Momof3
Region: US
Sunday 27 September 2026 12:51:37 GMT
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Hayley H :
I was born with coarctation of the aorta so I have all my children checked with MFM, I already had it set up when my Quad came back as positive markers for DS. My son does have a heart condition but it's regurgitation of the tricuspid valve which isn't as typical with DS from what I've been told. I wonder if it was the DS that caused it or whatever caused my own issues.
2026-10-07 23:05:32
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Chelsea 🩷 :
Whew we are on heart surgery number 7 and a craniotomy 🙃 it’s been a wild ride
2026-09-28 22:48:23
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Millicent :
My daughter has an AVSD and we got her heart diagnosis first before Down syndrome
2026-09-27 14:05:31
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Heather C 💙💛 :
Did only one of the twins have the heart defect?
2026-09-28 18:34:36
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Amanda Paolillo :
My son has 2 VSD, PFO and ASD. He is 3 and all but one VAS has closed on its own. He didn’t need surgery
2026-09-27 19:04:05
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michelle :
My son had Tetralogy of fallot, I knew about it before he was born along with the DS and the gi defect. He's 21 now ❤️
2026-09-27 23:12:07
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Special Needs Mom :
I have an ASD, my son does too.
2026-09-27 14:26:38
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Nicoley GreenOne :
we were screened while i was still pregnant and when he was born he was screened a million tests...we are extreamly thankful that his heart is cleared until hes 10...💙💛
2026-09-27 22:54:20
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🖤MommaJ🖤 :
All our prenatal scans were good, when she was born she had the PDA and then had to have heart surgery at 2 months for a coarctation of the aorta
2026-09-28 01:25:05
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SuiteBaby :
My daughter had a complete AV canal (type of AVSD) but her fetal cardiologist said that while the AVSD is common in those with DS, her type wasn’t. Strangely she was completely balanced and had zero oxygenation issues before her surgery at 5.5mos old. She’s 2.5yrs old now and thriving on only 1 med for PH. She had some massive complications post op with multiple PH crises, but the resilience of our babies and support by God is incredible. 💙💛
2026-09-27 15:43:34
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Jodi Smith :
In 1997 My son had VSD repair at 6 months and mitral valve prolapse repair . At age 7 had to have a pacemaker. He is 29 years old old now.
2026-09-27 22:09:40
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Cara007 :
Thank you for this content
2026-09-29 10:44:45
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Mandy :
my daughter has vsd and asd they did the echo after birth as well as during pregnancy but we had to ask for it. They think her asd may need a catheter surgery to close between 3 and 5 but the vsd may close on its own.
2026-09-27 15:04:44
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🎀 Maria E Lopez 🎀 :
My daughter had the first 4 you mentioned! She was diagnosed at 4 mos and I congestive heart failure. She thrived after the surgery!!
2026-09-27 13:30:08
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Erica DiVario🦋♾️💙💛 :
My daughter was born with a moderate size VSD that was found during pregnancy and then monitored after for a few yrs. She is now almost 7 & it closed on its own and did not require surgery❤️she was then cleared for 5yrs for next check😊
2026-09-27 17:24:33
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sierralawrence1985 :
I love how well you explained this! My boys cardiologist explained his to us so well! Just watching for it to close 💕
2026-09-27 13:39:06
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MarieLou19 :
My eldest had 1cm ASD it was closed when he was 3 his wee brother had complete AVSD ventricle closed itself the hole in his atrium is tiny might never need surgery both boys have T21
2026-09-27 15:52:50
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Heather C 💙💛 :
My little one had #1 and surgery when he was 2 months old. Also, at his last appointment they said it looks like something came undone and to come back in 6 months instead of the standard 1 year. He is 4 😢
2026-09-28 18:36:57
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OwenTheOmazing :
Avsd surgery at 4 months old.. nicked his lymphatic system stayed for 21 days.. mitral valve didn’t stay closed as well as they’d like.. started having lots of respiratory issues surgery number 2 at 3 yrs old.. in and out in 5 days! It’s still not awesome, but we are being monitored every year and hopefully we don’t need another surgery until grown for a valve replacement. 🤞❤️
2026-09-29 02:09:47
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kowandagraves :
My daughter had an open PDA that was closed after she turned one yrs old. Now she’s dealing with reflux and thin liquid dysphasia. 😢
2026-09-27 19:40:12
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Heidi CRNA+SN Momof3 :
What else would you like to know about??
2026-09-27 13:28:35
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Tracy :
My daughter he’s 10 now has down syndrome and she was born with a hole in heart and two splits and two years later my consultant told me that she didn’t need heart surgery
2026-10-06 05:05:28
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