@evelynmiller48: But knowing about MS & knowing what it’s like to live with MS are not the same thing. When I was first diagnosed, I wish I’d known more about what everyday life with MS could look like & how it can change over time. I love learning about MS, the science, what’s happening in the body & picking John’s brain. I think learning about the medical side is important because it can help us better understand what’s going on in our bodies. Both perspectives matter. Sharing what MS looks like in real life can help people who are newly diagnosed feel less lost & add to our understanding of MS. That’s why I share what I learn & what living with MS looks like for me. 🧡 #MultipleSclerosis #LivingWithMS #MSAwareness #MS #chronicillness
Got diagnosed a few years ago now! I’m still learning every day.
2026-09-28 04:47:02
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Emma :
Did you get an EMG at first?
2026-09-28 03:26:20
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Megan Doyle :
I am learning from you and others right now while living with MS. I’ve done some homework along the way, but not nearly enough for my liking. I do find the CNS fascinating! I’ve definitely learned a lot from my PT, and she has encouraged me to be patient with my body AND to do different things outside of my comfort zone in order to maintain my independence.
2026-09-28 13:54:56
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emilygreene2596 :
Thanks for teaching me how to say oligoclonal 😂 I love researching too
2026-09-27 21:38:49
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Robyn :
🤎 It's helpful for me to hear other's experiences. sometimes I realize that something I experience is MS related. I get the vocabulary to research things like the MS hug or vertigo. I was diagnosed 5 years ago and watching other people's journeys makes me feel less lonely
Thank you for sharing 🤎
2026-09-27 20:59:23
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jewels5580 :
I have a problem cause I am living with MS, but people around me will read a little about it and then try to tell me how to live with it.
2026-09-27 15:14:35
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Nicole :
Not living, still surviving at the moment. Trying to get through my days with minimal stress. What I don't like is for those who do not have MS, to read or hear something and then think they understand.
2026-09-27 17:08:47
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Mac Heffner :
I can’t even explain MS to people
2026-09-27 19:37:58
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🧡Jennifer living with MS🧡 :
Both I am trying to get ito doctors
2026-09-28 01:18:46
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tenpoint_brokenarrow :
First neurologist that I saw told me that MS did not hurt😬😬😬
2026-09-27 20:59:38
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🧡Jennifer living with MS🧡 :
[Red heart]
2026-09-28 01:17:52
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