@evelynmiller48: But knowing about MS & knowing what it’s like to live with MS are not the same thing. When I was first diagnosed, I wish I’d known more about what everyday life with MS could look like & how it can change over time. I love learning about MS, the science, what’s happening in the body & picking John’s brain. I think learning about the medical side is important because it can help us better understand what’s going on in our bodies. Both perspectives matter. Sharing what MS looks like in real life can help people who are newly diagnosed feel less lost & add to our understanding of MS. That’s why I share what I learn & what living with MS looks like for me. 🧡 #MultipleSclerosis #LivingWithMS #MSAwareness #MS #chronicillness

Evelyn Miller | Living MeSsy🧡
Evelyn Miller | Living MeSsy🧡
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Sunday 27 September 2026 14:49:30 GMT
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lucyaw33
Lucywright3 :
Got diagnosed a few years ago now! I’m still learning every day.
2026-09-28 04:47:02
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jordemma2
Emma :
Did you get an EMG at first?
2026-09-28 03:26:20
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megandoyle3355
Megan Doyle :
I am learning from you and others right now while living with MS. I’ve done some homework along the way, but not nearly enough for my liking. I do find the CNS fascinating! I’ve definitely learned a lot from my PT, and she has encouraged me to be patient with my body AND to do different things outside of my comfort zone in order to maintain my independence.
2026-09-28 13:54:56
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emilygreene2596
emilygreene2596 :
Thanks for teaching me how to say oligoclonal 😂 I love researching too
2026-09-27 21:38:49
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robyn.sparkles3
Robyn :
🤎 It's helpful for me to hear other's experiences. sometimes I realize that something I experience is MS related. I get the vocabulary to research things like the MS hug or vertigo. I was diagnosed 5 years ago and watching other people's journeys makes me feel less lonely Thank you for sharing 🤎
2026-09-27 20:59:23
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jewels5580
jewels5580 :
I have a problem cause I am living with MS, but people around me will read a little about it and then try to tell me how to live with it.
2026-09-27 15:14:35
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rapunzelofdoom
Nicole :
Not living, still surviving at the moment. Trying to get through my days with minimal stress. What I don't like is for those who do not have MS, to read or hear something and then think they understand.
2026-09-27 17:08:47
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macheffner
Mac Heffner :
I can’t even explain MS to people
2026-09-27 19:37:58
1
jennifer_cormier45
🧡Jennifer living with MS🧡 :
Both I am trying to get ito doctors
2026-09-28 01:18:46
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tenpoint_brokenarrow
tenpoint_brokenarrow :
First neurologist that I saw told me that MS did not hurt😬😬😬
2026-09-27 20:59:38
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jennifer_cormier45
🧡Jennifer living with MS🧡 :
[Red heart]
2026-09-28 01:17:52
0
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