@dr.erincarter: If I look mad and exhausted it’s because I am. This is not the first time I’ve seen patients extremely ill after following the advice of wellness influencers who are basically practicing medicine without a license at this point… yet they have no accountability if the advice they give you causes harm or even kills you. If you are interested in stopping or reducing your medications please please please discuss it with your doctor first. #healthcareworker #autoimmunedisease #rheumatology #doctorsoftiktok #lupus
I’ve had so many people tell me not to do cancer treatments. I’m a mom, I can’t not fight cancer.
2026-09-28 03:21:38
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Bella.romero :
Me when people tell me to stop taking my immunosuppressants because I get sick so easily umm, no I prefer to have a cold than a lupus flare up thank you
2026-09-28 02:36:13
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Jennifer Elisa :
It's sad people won't trust science!
2026-09-28 04:59:53
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ekher_891 :
I hate when people tell us that our medications are toxic. we know about the side effects, we are not happy about them either, but the alternative is worse 🙄 do they think we take them for fun? we take these medications because we don't have a choice.
2026-09-28 01:15:34
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Dani :
I'm fighting cancer and I don't think people understand how mentally damaging it is to patients to hear people harp on about how our treatments are poisonous. My oncologist showed me my 10 page document of possible side effects, but I also want to live.
2026-09-28 04:13:11
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Victoria 🎙️ :
“Its synthetic so its bad for you”, I don’t have a thyroid! Imma still take my meds.
2026-09-28 05:12:29
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princessjava60 :
Me reasoning with my diabetic patients to take their meds. They learn their lesson once they have an amputation 🤦🏻♀️
2026-09-28 04:53:28
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sarahw__ :
This needs to stop! Just had an acquaintance in her 30s pass because her husband had her convinced she could heal her curable cancer through alternative medicine/juicing/weed.
2026-09-28 02:46:06
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A Kristine :
It’s so criminal
2026-09-28 05:01:23
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Sharla :
When I got diagnosed with fibromyalgia, my doctor told me to get online and research symptom management because there was nothing she could do to help me. She didn't even prescribe me medicine or explain there were medicines that might help. She just threw me to the influencers. Thanks for being better.
2026-09-28 03:36:37
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Makayla Richards :
I also feel like MLMs and wellness community targets people with autoimmune diseases. which would be okay if any of the shit there are pushing was founded in actual scientific research
2026-09-28 02:29:00
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rheumnurse98 :
Rheumatology nurse clinician.. I feel your frustration everyday !! It’s exhausting.
2026-09-28 02:34:31
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M.K. :
well you can play in the healthcare for at least 50% of that. if the healthcare wasn't so greedy and put patients last people wouldn't have to wonder what to do about their chronic illnesses
2026-09-28 04:56:45
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rcmpsurveillancevan8 :
You have a hard job with all the misinformation out there, even from people you should be able to trust.
2026-09-28 00:38:37
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Jay :
People so quickly forget the fact that before these medication‘s and changes to healthcare overall, the life expectancy was very different than it is today
2026-09-28 03:42:59
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Elle Devost :
I hate people Erin
2026-09-28 01:54:34
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christinaaashley :
The amount of times I’ve been told to not take my toxic meds as a lupus patient is crazy
2026-09-28 02:43:28
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Cat :
When I had Cushing’s disease caused by a brain tumour, someone online told me to eat grapes. They said grapes would reverse my Cushing’s. Smmfh.
2026-09-28 03:20:44
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Mama_Magnolia :
I have close family members that push their “wellness” ideas on vulnerable people, and I’ve seen so much damage caused, including death. It’s beyond upsetting and rage inducing. I can’t really be around them as someone with autoimmune disease. I’m so sorry 😞
2026-09-28 02:05:01
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Jess :
Like when I had strep for the 12 time in a row and someone suggested I gargle with hydrogen peroxide 😳 no thanks I’ll take the abx so I don’t get rheumatic fever thank you
2026-09-28 02:49:59
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Brandystandridge :
I like functional medicine. I like a more holistic approach. I like using less medication when I can. I’m not stupid enough to push western medicine completely out. If I think something could be better for me, I consult with my regular doctor and we outweigh the pros and cons
2026-09-28 02:43:53
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1234ideclareathumbwar09 :
I had MLM moms coming after me in the 2000s. Like ma’am your thrive patch isn’t going to cure my cancer.
2026-09-28 03:25:30
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-.constel(lation).-=☆ :
people in my life have told me to use my humira as a "bridge to healing" instead of a "crutch" for my autoimmune disease that quite literally can not be cured💀
2026-09-28 02:50:08
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Latch :
At what point do we start enforcing recognised practitioner labels on people and entities perpetuating health information to the public? Double benefit of influencers and insurance companies scrutinised over their “advice”.
2026-09-28 03:59:28
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Amanda Kemp-The Weathered Rose :
I am just interested in a licensed practitioner actually being willing to listen and diagnose my daughter instead of blowing her off because she is "too young to be diagnosed" Rheumatology won't see her because she doesnt have a diagnosis and primary Dr says just keeping getting abnormal labs and you will eventually get a diagnosis. Mean while she just has to continue suffering thru chornic symptoms while away at college with no one willing to help her. Healthcare is a joke. That is why people turn to the internet for help when they shouldnt have to.
2026-09-28 04:07:28
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