@msjesscantwell: Are any of my MS family taking, or have tried, Ampyra? If so, let me know how it went. #multiplesclerosis #ms #mswarrior #msfighter #msawareness

Jessica Cantwell | Author 📖🧡
Jessica Cantwell | Author 📖🧡
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Tuesday 29 September 2026 13:07:20 GMT
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tessajennings
Becky J. :
I have been taking it for a few weeks and when I went on my walk yesterday up a very steep hill I was able to walk up it an didn't feel as tired as I normally would in the past. It does make me wake several times in the night with my mind racing about things I need to do. I have to take it with food or I feel shaky. prayers going your way.
2026-10-07 14:26:06
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sugaboy1991
Sugaboy :
It restored my balance you know with exercise but works with me
2026-10-06 12:29:47
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upperman974
upperman97 :
I have been taking Ampyra for years and it works great for me! good luck!
2026-09-29 17:18:10
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miamicane4ever
He’s him :
I’m on it. It does more than just help you walk. Walking is the only thing they can measure. I would highly recommend it for all the other things that does ask your neurologist
2026-10-06 00:26:27
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amytom164
amytom164 :
I'm on it over a year now. Really don't notice any improvement but I can definitely tell when I miss a dose though.
2026-09-29 17:28:23
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melanuss7
melanuss :
My left leg/foot are the worst, can walk some but powered scooter is used in and out of house, even though I try and “walk” as much as I can. I’ve been on Ampyra for about 3 yrs, can’t say I notice much but also don’t want to stop taking it. I think you might as well try it, why not?
2026-09-29 17:32:10
1
nanousmr3
NmswarrierLA3 :
Works magic for me, if I stopped it my legs wouldn’t work anymore they glue like they are cemented to the ground
2026-09-30 01:08:17
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lalanovemberbaby
Lala 1123 :
What type of MS does this treat?
2026-10-02 23:40:11
1
helloimjennifer_
Jennifer Mitchell :
Thanks for sharing! Look into LDN as well. Best wishes!
2026-09-30 04:26:45
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hazelbazel90
🧡 HazelBazel 🧡 :
I’m starting it during gap in November. I’m honestly scared :( 🧡
2026-10-01 03:31:11
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dmagaw
David Magaw :
I was on this for a couple of months and after a MRI, my doctor took me off of it!
2026-09-29 23:06:30
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supra_torsten
🧡🇩🇰Torsten MS worrier :
I have taking fampyra the last 6years
2026-10-02 09:35:13
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lindaphillipsx
Linda Phillips 🇮🇪 :
It's newly reimbursed in the UK but has been reimbursed in Ireland for over 10 years. I know a few people on it and they find it great.
2026-10-02 00:05:13
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nurglt0
nurguli :
Ive started 3 weeks ago, Im walking faster and the balance is much better. Hope it works for you 🧡
2026-10-01 23:25:28
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paris_anywhere
paris_anywhere🧡 :
I take the generic. I’ve been on it for years and feel it really helps my walking. Also, you you checked out the Cionic sleeve? Helps with my left leg drag.
2026-10-01 00:31:03
1
rapunzelofdoom
Nicole :
I was on Dalfampradine (generic). But it made my good leg worse. It only works for 50% of people.
2026-09-30 17:30:42
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moreenlo
Maureen :
I’ve been talking it for about 4 years. It noticeably helped my walking speed. I stopped taking it because I can’t walk that well anymore. I started it again after a few days because I stiffened up really bad without it.
2026-09-29 18:58:44
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kelly59193
Kelly💕 :
I’m waiting to get put on it in a week or so! I will let u know 😊xx
2026-09-30 21:20:54
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aldensaric
Alden Saric :
Its Fampyra.
2026-10-01 18:51:28
0
neneone00
neneone00 :
it done nothing for me but were all different
2026-09-30 15:34:25
1
angelaou31
Angela :
I’m on it for probably 2yrs. I haven’t seen help me walk better. Ugh I was not told 🤦🏻‍♀️if it doesn’t work to stop! This makes sense because I left it at home once on vacation and it was super stiff without 😤
2026-09-29 18:29:04
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silviucomorod
Silviu Comorod :
fampyra
2026-09-29 14:58:43
1
paulapheard
Paula :
I’ve been taking it for years. It helps my leg heaviness a lot. If I miss a dose I can barely pick up my leg. 🧡
2026-09-30 01:01:04
1
peachiepeach720
Peachie Peach :
It’s the worst it made my walking worse
2026-09-30 20:23:41
1
the_witchy_misfit
the_witchy_misfit :
Hi! I’m SPMS. my Neuro said before I started “it either works well or doesn’t”. For me, I’ve stayed on it and I’m walking okay.
2026-09-30 10:02:07
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