@thirstyonmain: We learned how to balance our lives that were outside of the PICU, while living inside it and eventually, the unknown turned into certainty. Not that everything would be okay, but that we could handle it whatever came next. #PICU #NICU #CHD #TGA #prematurebaby
My daughter is 33 and had transposition of the great vessels. One open heart surgery (switch surgery) and she has a 9 year old daughter.
2026-10-01 01:55:26
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Shannon King :
Long time silent follower. I was born with transposition of the great arteries, I’m 25 and this is the first time in my life I’m hearing of someone else out there who had the same thing as me with their heart. Scary as it can be it’s was really comforting to hear there’s others like me.
2026-09-30 20:25:27
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Jenn Budd :
My son spent 8 months in the NICU; it’s a long road & you all have done so well.
2026-09-30 20:53:22
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StancyInTheCity :
Stories like this shock me into realizing that there are still countries that don’t provide healthcare for the most vulnerable of their population.
2026-10-01 23:04:21
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Ibeekatt :
Your hair looks amazing
2026-09-30 21:35:37
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