roban_lampkin
Region: US
Thursday 01 October 2026 20:08:11 GMT
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caseymccray83 :
Did you have very low iron and ferritin? That’s how I was originally diagnosed with MGUS.
2026-10-03 01:51:43
38
jessica tjaden :
I was diagnosed with ITP and I had that in my feet and ankles I couldn’t walk at one point or put anything on my feet socks shoes blankets it was crazy
2026-10-18 06:18:52
0
Sarah :
My mom was originally thought to have Multiple Myeloma because there was a bone lesion on her left leg, but it turned out to be Langerhan’s Cell Histiocytosis, which is another, rarer type of blood cancer that normally appears in children but can also appear in adults. Just an FYI in case anyone needs this info!
2026-10-02 15:13:17
19
TheCakes 🎂 :
And the thing that made me really look in it was I coughed and I felt like my ribs broke so when I went to doctor she sent me straight to er to check me I thought I broke my ribs but it was my spline
2026-10-17 21:13:04
0
Taryn333🇺🇸🇮🇹 :
Apparently I’m fairly healthy according to my blood tests but I feel like crap and have extreme fatigue and sometimes can barely move because my entire body hurts
2026-10-02 01:33:01
169
Kel Lives Life :
I've had 2 bone marrow biopsies. My Dr. is still trying to figure out what is wrong with me but thankfully no multiple myioma
2026-10-17 20:41:56
0
nacho.librah :
What do you mean burning? I have a bunch of weird symptoms and I have had random transient burning in my legs/feer
2026-10-02 05:24:02
17
Elle the Designer :
Yes and because most doctors brush people off
2026-10-02 03:56:57
37
Dawn Weber-Beck :
I also had burning in my hands!!
2026-10-01 22:05:29
6
user9490136986772 :
I was diagnosed with multiple myeloma in July . I had severe pain in my lower back and kept begging for help. The lesion on my sacrum ended up eating the bone and it fractured. I landed in the hospital for 27 days and was finally diagnosed. I have a five lesions in my spine and a small fracture and lesions on my pelvic bone .
2026-10-01 21:57:19
11
vintagewhimsy :
💜 My husband has Multiple Myeloma and it must have been smouldering for a long time. He didn't have any of the "usual" warning signs. We thought his asthma was getting worse because he was getting out of breath really quickly...then he started to become jaundiced. He went for a blood test and got called the same day to say he needed an urgent transfusion, the hospital staff were so shocked that he even walked into A&E because his readings were so low. The week he was diagnosed was also Multiple Myeloma awareness week which was such a weird coincidence.
2026-10-01 20:27:16
10
_aidaofficial :
Mine was high protein in urine (foamy urine) Doc says it could be hypertension. I went to get 2nd opinion and its not hypertension its MM.
2026-10-02 05:01:04
6
Kasey Box :
Do you have nerve pain???
2026-10-16 19:08:36
2
Luna-Tic Tok :
My mum died of myeloma in Feb this year . She has zero symptoms until two weeks before diagnosis and that was back pain . Once diagnosed she died three weeks later. .turned out she had back fractures and broken ribs both current and historic. .so it had defo been in there for a while
2026-10-01 21:21:03
7
Survived cancer :
I think some times the doctors don’t look at all the symptoms together. I had repeat infections a rash on my legs night sweats, high temp. I had acute myeloid leukaemia. I had 70% blast (cancer cells) by the time I was diagnosed. They also don’t expect it if you’re younger I was 33.
2026-10-03 18:56:46
6
KUDA WASA :
Multiple myeloma patient here I was diagnosed last year
2026-10-01 20:38:03
7
lannah :
Not to be rude at all but I do have a question did you always have the marks under your eyes I noticed mine are horrible and been getting really bad very hallow looking praying for you or sending good vibes whatever you prefer hun your a fighter
2026-10-03 09:53:19
6
dawnalcock21 :
I was diagnosed with smoldering myeloma in July but recently I've been having alot of pain in my hips the tiredness is unreal I also have a sore tongue
2026-10-09 10:52:18
0
nate :
God bless
2026-10-04 19:39:05
5
Kate Mendoza :
I had dizziness, migraines and tingling in my face that kept getting treated as vertigo for over a year. Then the dizziness got worse and they finally started listening to my wbc, that started declining 6 months before I was diagnosed, only a few days before I got my bone marrow biopsy. It was leukemia 😬
2026-10-03 02:38:08
9
🦅StreamWeaver76.2🇺🇲 :
They told my husband he had arthritis in his hips. Got some blood work done. His Hematocrit was 16 and they called me to rush him to the hospital for blood transfusion. That was 2019. He's still here. 🙏
2026-10-02 10:56:46
5
Mrs Rutter :
did you have cold aggulation show in your blood test results?
2026-10-08 08:24:40
3
Desiree :
ok so I keep getting these has been happening for over a year now. they are not raised like hives. it's just patches of my skin that burn and itch then go away. doctors don't know what it is. they just put me on an antihistamine regimen and it doesn't help. it's mainly on my fingers and hands every once in a while I'll get it on my feet.
2026-10-03 03:28:49
2
Coach AJ (The Healing Circle) :
But they take blood test, so how is it missed?
2026-10-04 23:35:22
2
mrs.littlechief :
I have polycythemia Vera with jak2 + mutation which is also a rare blood cancer. The symptoms I didn’t know were symptoms were the soles of my feet have a burning/prickling sensations, fatigue and horrible night sweats.
2026-10-06 18:56:04
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