@bailey.the.esti: ✨Please let me know if you have any more questions! I am here to help you achieve skin goals 🙂↕️ #ehlersdanlossyndrome #chronicillnessskincare #exfoliation #EDSskin #sensitiveskin
I’m curious to know how many ppl with EDS have KP or Keratosis Pilaris…
2026-10-02 16:39:51
1089
Dana :
GLYCOLIC ACID PEOPLE. When I tell you my entire hEDS body is a giant ingrown hair/clogged pore - Glycolic is the ONLY thing that has helped.
2026-10-02 22:06:43
2022
✿ k e l s e y ✿ :
You mean rubbing off your dead skin in squishy little rolls isn’t part of everyone’s skincare routine? 😩
2026-10-04 04:46:01
305
moooonladder :
does anyone else have too much skin on your fingers and toes? I have to trim the calluses off like weekly.
2026-10-05 19:35:18
80
sentimentallyill :
Everything comes back to Ehlers
2026-10-03 20:59:55
383
spiffyspino :
Oh my God… is this why it doesn’t seem to matter what I do my lips seem to ALWAYS be peeling?? Like no matter how hydrated, clean, moisturized I am or how often I apply lip balm etc they are always just sort of flaky and/or balling up depending on how wet they are. 😭 This has blown my mind!
2026-10-07 12:06:45
173
. :
my sebaceous filaments are soo bad on my chin and nose i wonder if this is why
2026-10-03 04:15:19
280
Kittensquirrel :
Oh.....
Oh...
Oh.
This explains a lot.
My skin has been sloughing off when I dry myself after a shower, just running my towel against my skin or even rubbing my hand against my wet skin. Even like... The day after I exfoliate.
2026-10-02 09:11:48
806
Christa 🦓 :
Wait! This is 🤮…. But is this why I can literally scrape waxy skin off my back in the shower no matter what I do?! 😭
2026-10-03 17:52:38
50
hoth.mess :
Just throwing this out there… this became WAY less of a problem for me when I started eating a can of beans for breakfast every day. I think part of the reason this is suck an issue for those of us with hEDS is because we struggle with gut health!
2026-10-02 15:48:42
233
Obc :
Is this also why it feels like lotion doesn't absorb? I can rub lotion in forever and I get lotion mixed with skin balling up instead 🙃
2026-10-07 01:27:43
46
snikta_11 :
Is this why I feel like I need to scrub a layer of my skin off to feel clean
2026-10-02 15:44:48
85
oatsmeow :
Literally rub my forehead and it’s like balling up dry glue
2026-10-12 00:23:35
19
Awaken Joy :
I have INSANE closed comedones that derms can’t ever understand.
2026-10-03 13:58:35
24
☝️🥕🧃 :
Me watching this uninsured, undiagnosed without an EDS Dr within 500 miles of me
2026-10-04 19:33:55
42
Cass.Eliz :
I have *finally* got a handle on my skin (I was an esthetician for almost 10 years and following classic training for my skin never worked). Once my MCAS was under control (which I'm pretty sure is thanks to a GLP-1) I cleanse using a squalene cleanser and I focus longer on my nose, cheeks, chin and between my brows). I do an AHA/BHA peel (right now once a week but I might increase to every 4 or 5 days). Then I apply a barrier repair serum, then eye cream and a hydrating moisturizer. My skin hasn't been this nice in a long time.
2026-10-07 04:33:21
8
thejessmessv :
I’m so sick of milia everywhere that it’s pissing me off 🥲
2026-10-03 20:03:00
18
Disalexiah :
Chemical exfoliating really really upsets my skin for some reason, I use a really gentle physical exfoliant. Interesting other people with eds find chemical better
2026-10-06 00:22:14
14
SillyStringTheory :
So it’s not normal to shed almost every shower?
2026-10-05 01:00:54
14
Amiah Kroll :
i literally have to scrape certain parts of my body with my nails in the shower to get the dry skin off and then put lotion on immediately after. and it still will immediately get dry again 😩
2026-10-06 15:00:59
19
Cass :
this really does explain why retinol helps my acne more than anything else... my pores just cannot clear the dead skin by themselves
2026-10-02 18:12:15
51
aly :
just a note because a lot of people don't know/forget if you are using ahas please please use sunscreen with at least 30spf daily
2026-10-03 21:33:43
43
EP :
I’ve been doing my own nails the last few years at home and have never understood why it’s so hard to do cuticle prep. The videos I watch it seems to come right off and mine’s been a struggle, even with education and practice.
2026-10-08 21:11:37
11
Kiana Fotoohi - Pilates :
Me exfoliating several times a week
2026-10-02 22:47:09
17
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