@healingmila: Ladies with endometriosis, what are we doing about the leg numbing symptom? I have yet to find an endo specialist who is aware about endo impacting your legs yet I see all this information about the two being correlated It’s gotten so bad that I’ve had to stop driving because my leg will randomly go numb. A large part of my endo symptoms are the leg pain, especially when that week comes around. My specialist isn’t that experienced in endo causing pain in this area and the rheumatologist hasn’t found anything. Surely this can’t be it?? #endometriosis #endometriosisawareness #endowarrior #chronicillness #nyc
My excision surgeon is a nerve specialist…they did some crazy stuff to my nerves (decompress them?) and put grafts around them to prevent future adhesions from attaching again. No more pain or tingling down my legs!
2026-10-07 22:26:23
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meliza :
I'm about to start going a getting lymphatic massages. My PT said nothing will help until my uterus is removed because of andemyosis is huge cause of all my symptoms.
2026-10-08 21:35:30
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rosesnotguns :
Mine ended up being endo on my uterosacral ligament. See an excision specialist
2026-10-07 18:14:18
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A.Warrior :
Welp, I have Endo, Endo clusters, Hemangiomas, scar tissue, and adhesions wrapped all around and through my spine and spinal cord. So pain, numbness, and weakness is an every day thing. At this point, it is so severe I've been told to go to the ER when I lose the ability to walk and they would 'consider' doing emergency surgery at that point.😒
2026-10-08 04:09:44
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Endo Warrior :
I would suggest seeing an endo excision specialist who has a background in neuropelvology like Dr Andrea Vidali or Dr Nicholas Fogelson who can address nerve issues, I would also suggest working with a pelvic floor physical therapist who can address muscular issues you can find providers at pelvicglobal.com and APTA.org
2026-10-07 15:25:27
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Leannah Taylor :
You should see a cardiologist/vein specialist
2026-10-07 00:22:50
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MCraftedByLetty🎗📦 :
I dont get the leg one much but I do get the numbing and/or pain in my left arm 😢
2026-10-07 15:24:59
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Ri :
Excision surgery w a specialist if you haven’t already? If it’s adenomyosis some surgeons will do adenomyomectomy. Mine also did presacral neurectomy which helps pain too
2026-10-07 03:35:11
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Yeehaw :
Nothing, i have a bone that bits my spine and scaiatic nerve just sit and rest
2026-10-08 15:01:18
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User :
Get your b12 checked love
2026-10-07 02:58:18
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Erika trillo :
Im the same way, I go see a chiropractor once in a while and it does help for about a week then I have to go back, I think mine is due to sciatic nerve damage from endo
2026-10-07 03:55:19
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UnDisastroBello :
Acupuncture!
2026-10-07 07:39:42
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