@the.zebra.life8: Having an illness like EDS means seeing doctors who don’t know how to treat you. Thise same doctors may have never even heard of EDS. It means getting treatment that isn’t safe for your body and makes things worse. It means doctors stopping care because they aren’t willing to continue care because your illness is beyond anything they treat. The disgnosis gave me the care I need to deal with this and whatever may come next.