@carolinecrouch96: Doing my retinobladotma awareness post again. My last post lead too two people finding out their daughter had it. I WONT stop advocating #cancerawareness #cancer #infants #childhood #retinoblastoma
I seen the glow and my heart dropped. Retinoblastoma mama here. Way to advocate, mama! 🫶🏼
2026-10-09 20:00:01
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✦⁺₊✩☽⋆Sawyer⋆☾✩⁺₊✦ :
so do people ever explain or do they just expect you to get it?
2026-10-09 19:37:29
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Maddie :
Uhm mine are white…
2026-10-09 19:19:22
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Farleys Fabrics :
My son was born blind in one eye and it took 6 years before I found out so don’t feel bad😭 I thought he was just a clumsy baby🥺
2026-10-09 19:51:19
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Mirunia Ortiz :
my boys right and left m eye did this should I be concerned or r we good
2026-10-09 20:23:03
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SusieQDaisy :
It’s amazing that this is not a routine test at pediatrician office
2026-10-09 23:04:58
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madigrzz :
im sorry it might not be a good time to ask but which is bad the white or red pupil?
2026-10-09 19:24:25
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𝒦𝒽𝓁𝑜𝑒❦ :
I had no idea the color or your pupils could mean anything that’s crazyyy
2026-10-09 19:58:13
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Morgan🎀 :
This is your pediatrician job to find this.
2026-10-09 20:37:38
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SPAM🥹 :
that good??? he’s my brother but yk yk better safe then sorry
2026-10-09 19:57:57
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Marie :
No reflection
2026-10-09 22:05:55
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ChaoticGreenWitch :
70 years ago that's how my grandma found out my aunt had it before they fully understood it. no one wanted to listen to her but she aggressively advocated for her baby that something was wrong and and it saved her life. it's crazy to me that it's still the best way to diagnose it early on and that more people aren't aware of it 😭
2026-10-09 20:38:59
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Manda || Shop <3 :
I lost an eye babe. Little mama is gonna be A okay 🥹🫰💕🫶🏼
2026-10-09 22:10:57
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. :
Hey! When I was 1 I got diagnosed with retinoblastoma and now I’m here!! Although i still get insecure having a prosthetic eye sometimes is so cool!!
2026-10-09 21:36:54
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Zara :
4 years ago
2026-10-10 19:13:46
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Tel 🖤 ᛏᛗᛏ :
My little brother had this when he was 17 months old. Waaay back in '93.
We were lucky then and we had an amazing doctor who had him in surgery the following day. Thankfully for him it was localised to the eye itself.
2026-10-10 12:35:48
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🖤 • Candace • 🖤 :
My cousin is a retinoblastoma survivor! Diagnosed at about a year old and she is now 45. Praise the Lord for St Jude.
2026-10-09 20:14:17
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Ani :
what a precious baby 🥺 sending prayers
2026-10-09 19:15:08
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c :
Your kid's doctor is meant to check for this. They even checked at the hospital after my babies were born and at every pediatrician visit since. Dis your Dr. not check?
2026-10-09 19:54:24
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Hailey | SC HAIRSTYLIST :
I was in a DD group on fb for my son and somebody posted a pic with a flash on & their baby has the same white spot and the comments saved that babies life. She immediately rushed her to the er and found out she had cancer. I think about her so much. I believe she’s in remission and doing so well. She was only a few month old at diagnosis, I believe she’s 3 now 🥺
2026-10-09 22:26:30
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Mariah Oberbeck :
Retinoblastoma mama here and my sons didn’t reflect in images at first. I caught it just with light reflection in our living room and he still had both red reflection.. thank god we pushed for a specialist. We’re going into cycle 7 of IAC chemo 🙏🏼💛🎗️
2026-10-09 21:59:44
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Mrs.Stoked.4.Life :
What does the flash show?
2026-10-09 18:25:46
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Barker.Blvd :
This is exactly how I found out my cousin had retinoblastoma at 2 years old , I took a close picture of him with the flash and his eye looked almost like a marble , I thin took my flash light and put it to his eye and he had no reaction the next day we took him to the hospital and he was diagnosed, he did have to get his eye remove and go through chemo but he is now 16 years old in the 11th grade and is the best kid ever ❤️. God bless you and good luck to the both of you 🙏🏾
2026-10-10 00:17:31
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🍂🍁Addy🍂🍁 :
awww i’m so sorry i hope she is ok praying for you guys 😢💕
2026-10-09 19:03:12
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nicoletimmons116 :
Yup they never told me they didn’t see the red reflux on both my son’s eyes at 4 months old this mama knew something was wrong … he was born blind in left eye and NO dr picked it up ….. INSANE
2026-10-09 20:15:01
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