@dryehyehyeh: Endometriosis is complicated... And that's exactly why we need to talk about it! 🎙️ Watch the full episode at the link in my bio! #Endometriosis #AspireFertility #FromEggsToPregs #EndometriosisAwareness #FertilityEducation This is general information, not medical advice. Always talk to your doctor about your specific situation.
Both lungs for me. I was also told left lung was rare and endo continuing after hysterectomy was impossible. After the last 2 years of pushing just had my 2nd lung surgery to remove endo from left lung. Still have it right despite full thoracotomy on right 7 years ago. Maybe not so rare, we are just not believed. I’ve been suffering 15 years & looked at like I’m crazy by doctors despite history of pneumothorax
2026-10-18 16:36:31
1
Endometriosis & Yap :
It isn’t actually that rare. It’s just been rarely looked for.
2026-10-12 03:21:16
628
italy :
am I trippen or does endo mimick cancer to an extent 😫
2026-10-13 16:53:36
23
burnett.AK :
Is it really rare or are we just not testing it enough?
2026-10-12 04:23:31
307
Southern.Belle :
My endometriosis has now spread to my colon.
2026-10-12 01:25:33
101
Chloe 🌙 :
Is it complicated or is there just not enough research??
2026-10-12 16:46:50
98
Egq :
I had endo on my bladder, my appendix, nerves, and bowels
2026-10-12 02:55:51
35
Nat & Rufus :
Women have been severely let down. I’m losing my kidney to Endo and due my 7th surgery F Endo.
2026-10-12 16:17:47
26
Art&Paris456 :
I don’t think they’re “extremely rare” there are so many women with endometriosis and it’s so hard to detect on scans. I think it’s probably in more places then doctors realise
2026-10-12 08:17:41
42
Melissa Bush :
Mine spread to my lung, bladder, sigmoid colon, and rectum. So much adhesions and banding my colon was stuck to my abdominal wall, my ovaries as well
2026-10-12 01:47:18
7
tiffytalks&travels :
I’m tired of my endometriosis being a mystery and not being able to get help
2026-10-12 01:03:52
48
Kamelia92 :
Everyone are giving us theory but no actual treatment ! I’m sick of such videos and doctors … ok we learned what is endo let’s now treat it !
2026-10-12 08:50:38
10
Helen :
Bilateral thoracic endometriosis.Not so rare I dont feel
2026-10-12 22:00:25
0
CreekVVitch :
Pretty sure it’s in my left lung
2026-10-14 01:11:56
1
At_home_with_Rai :
I’ve been living with endometriosis for over 34 years, and the progress in awareness, diagnosis, and treatment still feels painfully slow. I know we’ve made some progress, but I’ve spent an entire lifetime suffering from this disease. We deserve better. We deserve more research, earlier diagnosis, and better treatment options.
2026-10-12 21:31:24
8
creekgreaser :
There is an extreme lack of knowledge and even our "specialists" aren't actually specialized in endo, at least how we expect them to be. I have been suffering for 12 years and I just got diagnosed this year. Not one professional even brought up endo as a possibility. I had to bring it up and fight so hard to be listened to. I have been so dismissed and gaslit all these years.
2026-10-12 18:23:02
7
latelion :
entire body disease —not as rare as you think actually
2026-10-12 02:30:26
22
Monica 🍁 :
They’re not very rare just very underdiagnosed.
2026-10-14 21:53:52
2
Heather Leigh Roberson :
I have lesions on my sacral plexus. It’s not rare.
2026-10-12 22:21:57
4
Beawithadoseofchaos :
I spent 7 years with a painful node at the back of my neck. Near my hairline. It gets swollen and hurts a week before my period and dissapears when it starts. Turns out it was endo all along.
2026-10-14 04:20:19
1
🔫🐧 :
I was diagnosed with endometrioma and endometriosis. It’s like winning a lottery from hell.
2026-10-15 08:19:23
1
🍂Mar.Mar🍂 :
It’s not rare they just aren’t looking for it 😭
2026-10-12 05:41:07
4
asia :
I’m seeing an endo specialist at Stanford and the symptoms overlap with pelvic dysfunction from EDS and I have EDS so we’re unsure what exactly it is I have a surgery scheduled in January to see once and for all 😳 it’s like I obviously don’t hope they find it but I’d like to have answers to all this pain and finding a pelvic floor therapist that specializes in EDS is so hard
2026-10-12 04:10:59
3
Dr Lesedi Letukile :
I have all the symptoms and the doctor just told me it’s constipation 🙄
2026-10-12 13:08:22
3
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