@babyyy_shayyy: All I can really say is about my epilepsy and our community. I'm always thinking about my fellow epileptics and how we can support each other. #SeizureAwareness #epilepsy #epilepsyawareness #community #support

ASIANFURY01 :

#2 is me

Destiny Rice :

I will wake up and look at my bf and go babe did I have a seizure because I just felt different and hed tell me yeah

Jeremy :

Seizures can be weird. For me, it can be a tingling feeling in my head that slowly spreads until I pass out with no shaking. Sometimes I'm only out for a few seconds, others last minutes. Other times the seizure is just a feeling or visual distortions. Depending on what part of the brain is experiencing a seizure, it can show in many different ways.

Carrie :

I prefer having seizures in my sleep instead of being fully aware of having one that I can't do anything about

matt1984 :

I hate epilepsy so much and all the other things that come with it I’ve had it since I was 8 months old and am 42 I just want to be able to be normal

SaturnHusker :

My 16 yr old son is newly diagnosed and this is the hardest thing to read he had a seizure I was 7 miles away. I was at the house in less than 5 min. His brother saved his life. Called 911 grand mal he couldn't breath. I check on him all hrs of the night. Keppra rage I've noticed with his medication. Can’t get into neurologist till Nov. Everyday is a nightmare.

dragonlance71 :

I have epilepsy. I almost died this year. If my wife wasn't there. I wouldn't be here. She saved my live. I got up from my recliner and had a seizure. I don't remember a thing. The next thing I knew I was in the hospital. I was told I almost stopped breathing and barely any blood pressure. The doctor added more medication to stop me having seizures. I now have memory issues. God please help me and people like me.

Jovi :

This💔- diagnosed this year. Covid collapsed both lungs. Made it home but I'm on oxygen. POTS came next. Then Lupus. Then Epilepsy. Now a Cardiologist in a few weeks for another diagnosis. All IN 4yrs. In my family being sick is not an option. I've been alone for 4yrs. I'm a RN BSN so I "Can take care of myself", and every night I just cry/every morning I cry. 24 medications. I'm so tired. Never felt so alone & scared at the same time.

Laly Miranda Forense :

Thank you for this post 🥹

Bigfoots86 :

Truth. As of now all my TC seizures are in my sleep and usually from lack of sleep.

Kara :

Sadly this is our “reality”

Katherine Wallace :

my son experienced SUDEP with his first seizure at 26 months..the only reason he's still here was cpr was started BEFORE ems arrived...most of his seizures are nocturnal....he's 22 now and the strongest warrior I've ever known

nae_bby29 :

Warrior since Feb. 14 2022 ; .. about to turn 30 January 2

ローズ　宇賀 :

I know all of this because I also have epilepsy. 😢 it’s definitely life changing and it’s really hard to deal with but we still do.

ITCCHAMP5 :

I had seizures in my sleep and that’s the only time I would have seizures but I then took the risk of going through brain surgery…I did it 5 times…the seizures haven’t stopped but now they don’t happen in my sleep, they always happen when I’m wide awake and I have an aura right before it starts.

myepi_sodes :

Exactly 💜

PurpleUnicorn🦄 :

45 years since my diagnosis. it doesn't get easier, we learn to adapt

She Iz Rye :

I felt this 🥺

darrellnelson5034 :

yes to all 10

mystikalkrafts :

yes to this.. ppl need to understand even a bump on the head from a simple fall and cause damage and I hate the ones in sleep, had 2 last night and I fell the other day hit my head on a box and it was a facial and inhad to work through it cuz other lady didnt probably see it as a big deal.. it was

birdieperez4785 :

I feel like this every single day for 8 years now, even while on meds. I have daily seizures and nobody ever really notices them only me. I keep trying my best to keep on living a good life but nobody knows exactly the way I feel. I just say I’m ok. Trying to survive.

Karijae :

I dont wish it on Nobody I always feel trapped [Teary eyed]

Amie Garcia :

Laly Miranda Forense :

Keppra has change my mood a little bit, I feel irritated 😣

DravetJourney :

My 9 year old can’t tell me any of this bc he’s very autistic from his epilepsy, so thank you for telling me what he can’t 😔