@_bodiedbybri: For those who don’t know, Milann has a VNS implant that helps manage her epilepsy. We’ve seen a big difference with her grand mal seizures, but these tonic spasm seizures are a different story. One thing about epilepsy is that not all seizures look the same, and not every treatment works the same for every seizure type. This is another part of our reality living with Rett syndrome. 💜 November is Epilepsy Awareness Month, and we’re going to dive a little deeper into the reality of living with epilepsy. The seizures, the treatments, the challenges, and everything in between. 💜 Because there’s so much more to epilepsy than what people see. 💔 #fyp #momlife #specialneedsmom #epilepsy #disability
The Fitness Way to Cope
Region: US
Friday 16 October 2026 00:49:21 GMT
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fefe1988 :
my son has the VNS as well, but last month he went and had the corpus callosotomy surgery for his tonic clonics seizures and so far we are seizure free, after battling seizures for 9 years.
2026-10-16 01:17:20
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dar3alestcapric0rn :
What are grandma seizures?
2026-10-16 03:21:24
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Krissy :
This breaks my heart it has to be so draining for her ☹️
2026-10-16 01:57:08
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Hey.girl.hey :
She seem so sweet 🥹
2026-10-16 00:57:53
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teemarie :
The fact that you are on top of your game with her every time, you are definitely one strong mama for immediately noticing changes in her movement and behavior. She is so blessed to have you! Is she ever aware when these are happening or does she ever give you signs the seizures are coming?
2026-10-17 00:43:54
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𝓑𝓵𝓾𝓮𝔂𝓮𝓼 :
my bf has a vns. his last appointment they put it on auto and he hasn't had a seizure in over 6 months. it goes off a lot though and it makes him cough and clear his throat.
2026-10-16 05:27:31
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sonianailsby :
Do these type of seizures cause brain damage? [Teary eyed]
2026-10-16 03:49:29
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Nonyabusiness :
I love to see y’all on my timeline but it hurts my heart to see her suffering
2026-10-16 00:53:33
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shardayweaver1 :
🫶🏾 is she ok?
2026-10-16 02:22:56
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LlB :
You’re so calm momma 🫶🏻
2026-10-16 01:17:04
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theredqueen98 :
Yeah magnets don’t work.
2026-10-16 01:21:54
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꧁𓊈𒆜 m𝗶𝕣𝐚 ༻꧂ :
the way she looks at you as soon as the seizure stops. she knows you’re there for her. that kid loves you so much
2026-10-16 10:46:58
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heidijcimwq :
Are those pencil Barrettes in her hair? Never seen those, They are so freakin cute! Also that looks so exhausting poor baby. 😢🤗
2026-10-16 02:32:33
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Sarah❤❤ :
your such a brilliant mamma🩷
2026-10-16 00:54:41
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Endyy_j :
This makes me so sad 😞 😭😭
2026-10-16 01:22:08
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7461234890bs :
U r the strongest woman !! My husband has seizures and they are soo scary!! I couldn’t imagine being a child and staying as calm as u are!
2026-11-01 23:12:46
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Taylar_Lynn_ :
You got this momma you will figure it out you always do 💕💕💜💜
2026-10-16 01:07:34
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Kristal brown 1020 82 :
pray for youboth
2026-10-22 20:38:14
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🍑peaches🍑 :
Prayers
2026-10-22 06:40:28
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Malikamke :
Did you put her back on any medication?
2026-10-17 03:36:01
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mjizzle84 :
What is the swipe for?
2026-10-17 16:31:49
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MzMocha1213 :
This would break my heart. You mentioned in a video once the seizures started again when when she started going to school again. Is there an alternative for her?
2026-10-16 08:51:20
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Max 🧿🪬 :
Genuine question, should you be having her lay on her side when she gets seizures? /g /srs
2026-10-17 02:46:56
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Sarah Percival :
The way you protect her🥰
2026-10-17 17:24:35
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victoriawhine :
Bless you all, you are doing so well! Sending hugs.
2026-10-16 13:43:49
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