Dr.RuthDottin
Region: US
Friday 16 October 2026 17:33:22 GMT
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🖤🤍✨TheArcher✨🤍🖤 :
My discharge papers say Encephalitis. Does this show on scans?
2026-10-22 00:37:23
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zebra💜flattie :
I believe that there are levels of autoimmune encephalitis, but it’s only recognized when it becomes extremely severe. Systemic strep infections and HSV1 infections are common, and can also cross the blood brain barrier much more easily than has been previously believed, especially in the hEDS population. I don’t believe it’s rare, I believe that neuro inflammation will end up being linked to migraine, dysautonomia, dystonia/FND, fibromyalgia, and a whole lot of psychological/psychiatric symptoms. I experienced this - relapsing remitting, flares linked to MCAS and gut issues, dental infections, soft tissue infections, and oral/nasal HSV1 outbreaks. Treating a long term, hidden dental infection above a root canal, starting daily Valacyclovir, and controlling intestinal bacterial overgrowth have brought me back to baseline - after years of severe neuropsychiatric muscle/movement, and chronic pain symptoms.
2026-10-16 21:46:09
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soρhỉ :
isn’t this what the book / movie ‘Brain on Fire’ is about?
2026-10-16 21:18:32
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a_elle_a :
I think pans/pandas is more common than we know
2026-10-17 05:05:31
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it_s.me.monica :
I was just diagnosed with autoimmune encephalitis myelitis about 2 weeks ago after 2 years of mainly vision issues and other issues that I didn’t really know were caused by this and going from specialist to specialist, tons of labs and MRI imaging and finally a spinal tap which revealed it.
2026-10-19 17:28:39
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dellamarraAuthor :
what about pain behind the eyes
2026-11-07 03:25:28
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JSON :
When the sun is high in the sky, and hit the grass. It’s like I can feel the histamine coming out my neck gets tight. My head hurts. I get crazy and freak out confused, angry. Also, have really weird reactions to foods. In the last few years, my bipolar one has increased 100 fold. The VA is absolutely no help. Few bloodwork things. I generally pray for rain. It gets really bad at times.
2026-10-17 13:03:25
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🌻 Zayna 🌻 :
I had a brain injury in 2001 ❤️encephalitis
2026-10-18 02:27:47
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Inspired_Mind :
Thank you for sharing your story. My daughter is 20. She started having severe psych symptoms last year…auditory and visual hallucinations, psychosis and paranoia. Now, after diagnosis of schizophrenia, bipolar medication’s, involuntary hospitalizations, I came across all these encephalitis videos tonight Monday morning I’m going to start the process of having her tested. Thank you so much for sharing your story. I’m in Atlanta if anyone can recommend a good doctor. Thank you!!!!!!!!!
2026-10-25 09:32:45
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💆🏻♀️ :
So how do we fix this
2026-10-16 21:52:17
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Kathy 💜 :
My sister is going through things like this and they can’t figure her out. She has an appointment for a neurologist in Pittsburgh.
2026-10-18 13:44:13
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Dinks :
It’s funny you mention autonomic… I just got diagnosed with iron overload and they’re trying to figure out if it’s an autoimmune or hereditary… But if you get a chance, can you talk about any experience you have with that in regards to mental health
2026-10-18 05:07:29
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Sheree :
I have started to have phycosis symptoms but only when my brain burns :/ I also have issues with memory and concentration, can’t remember my past and have sort term memory, I can’t hold my wee in or saliva and have sever insomnia is been hell! Iv had bloods taken hospital said it’s clear and iv now pushed for a mri I’m hoping it shows up! What is the best test to have done? I also have autommine disease
2026-10-18 14:19:13
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nasirisa183 :
I wish rheumatologists, psychiatrists, and endocrinologists could work together to investigate the connection between anxiety, autoimmune diseases, and hormonal disorders. Not all anxiety is caused by autoimmune disease, but we must look beyond psychological symptoms and investigate possible underlying medical causes
2026-10-18 10:13:26
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jaku :
i say yes just how i stuggle but im being abused under a gp recruitment program
2026-10-20 09:34:46
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Rebecca Huggins :
Where are you located? Treat pts in Maryland?
2026-10-16 21:43:44
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Bluesprinkles :
My nephew who is only 4 years old has been diagnosed with this ... main neurological symptom is seuzures that are getting worse
2026-10-18 16:46:32
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💆🏻♀️ :
But I don’t have autoimmune disease
2026-10-16 21:50:58
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Einari03 :
I mean if you assume thoughts and by extension mental health disorders are from the brain and not any some soul all mental health problems should have a physical source
2026-10-16 17:45:01
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Slaydi :
My son got it 6 weeks post-covid
2026-10-25 13:27:04
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Yessy :
how or whit whom can I ask for that test??my son was diagnosed with schizophreniform disorder when he was 17 2024,last 2 months was diagnosed with schizophrenia,he is taking 15mg of OLANZapine.but that medicine doesn't really work,my son says that it makes himself slow and he forgets things🥺
2026-11-02 02:18:15
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Rachel K. :
Do you see patients virtually?
2026-10-17 03:57:58
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Alex :
Would a neurologist be the best kind of doctor to see? I’m not sure where to go next for my decades long TRD and excessive sleepiness if my sleep study comes back clear. The one neurologist I saw years ago wasn’t curious in investigating at all
2026-10-17 00:31:13
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gladdlyglow :
There are soo few knowledgeable psychiatrist with your understanding and knowledge. We need this type of training / education in every hospital and every medical school! Too many kids are not getting the care they need .
2026-10-18 12:49:05
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🦋 ✝️🦋 Stephanie 🦋 ✝️🦋 :
can you please pm me? my daughter just recently had autoimmune encephalitis and so much memory loss is still current
2026-10-30 14:17:49
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