@j.gatsb: here’s some more updates from the #hospital #chronicillness #disability #spinabifida #advice

j.gatsb
j.gatsb
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Region: US
Friday 16 October 2026 18:47:46 GMT
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luv.like_confetti
luv.like_confetti :
Former hospital social worker here.... Get that hospital social worker in your room and have her earn her paycheck. Most nursing home social workers (which was my job after college) will do a video tour. The social worker can also get referrals in place so your insurance will cover medications, catheter supplies, diapers, necessarily medical equipment, etc. They can also hook you up with foid pantries that deliver. If your insurance doesn't cover necessary supplies, the social worker can get you a list of resources to get them for free. Many phone carriers also offer service for next to nothing if you're disabled. Every hospital and nursing home social worker has access to this info, so you don't have to ask total strangers for help. You just need to initiate those conversations.
2026-10-16 19:40:58
104
frankieflexmex
Frankie :
Oh wow, you are super local to me. Hanover park has a lending closet that can provide many items for free. Can I ask which network are you currently with? I’m sorry this happening.
2026-10-16 19:34:39
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nancie0303
Nancie0303 :
This is important! Going to live in a long term nursing facility, they try and take every penny you have. You get a monthly allowance like $50. So please do not let them know about any PayPal, Venmo or Cash App. Especially such things as gofundme.
2026-10-17 04:29:25
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elizabeth.ducady
chloe :
Doesn't Medicaid pay for most of that if you're put in a rehab facility?
2026-10-17 03:00:22
4
princessdo07
deboreilly :
I'm sorry I'm new here I'm a CNA what state are you wish I could help
2026-10-17 04:17:22
1
la_patrona_la_jefa_jefa
La_franca-La_Patrona :
Stay positive. There’s not much I can say
2026-10-17 11:32:19
0
heatherberridge57
Heather :
Best of luck to you young man
2026-10-17 11:50:58
0
armageddon1972
Angelica Pickles :
Bella Tera Schaumburg is pretty good . Renovated few years back . I work up the street
2026-10-17 02:51:38
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shelly.miller6
Shelly Miller :
Gosh I wish I was closer to you. As a mom. My heart hurts to hear all this for you. I would so be the “other mother”. And being the smother I turn into You’d be taken care of. Being a mom is the only thing I rock at in life.
2026-10-17 11:21:35
0
1monkeymom
monkeymom🐒 :
Be careful setting up money apps because of Medicaid.
2026-10-17 04:20:35
6
karenmet66
karenmet66 :
Northwestern in Chicago..Have them look into that.
2026-10-17 00:25:33
1
blackseahorse100
Nonya :
i’m frugal af for many reasons, but being chronically ill makes us fear so much! for the phone, who’s the carrier? we have been with mint for a few years and it works the same as the overpriced paces. you can get an esim via email and a yr of unlimited is under 550 for each phone. if you have medicade they should provide a set amount of caths each month and diapers. medication- have you looked at good RX for coupons?
2026-10-17 02:38:16
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feralhoosiermama
ChrissyWokeUp❌ :
I’m literally so proud of you for reaching out on a social media app because this is going to help you honey
2026-10-17 02:45:52
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marvelle.badgirl
🍒🍒💋MARVELLE💋🍒🍒 :
Keep your head up
2026-10-17 07:46:10
0
carl.payne3
Carl Payne :
God bless you
2026-10-17 09:34:19
0
kaicid75
Kaicid75 :
Sorry you’re going thru this alone. Please post the money info. Prayers sent.
2026-10-17 05:01:29
2
kt_pettit
Katie Pettit :
Hi, I work at a SNF in the area. These are all good options for you in terms of quality- they are all 4-5 stars on Medicare. You likely will be sharing a room with an elderly person at all of them though 😕
2026-10-16 21:24:00
6
anamarie.cameron
anamariecameron3 :
Love from California 💗💗💗💗💗💗💗
2026-10-17 10:44:15
0
kayloveandrea
Halloweengirl👻🎃👻🎃 :
sending you prayers and hugs
2026-10-17 02:43:44
4
collette.bather
Collette Bather :
When is your condition
2026-10-17 07:09:39
1
maryannern5
Mary Anne Barnes :
Honey ask for there state inspections . Did they have care issues? This is important
2026-10-17 04:39:52
2
trudiem1
user9672292946491 :
Both are good! Bells Terra Schaumburg has a great staff!!
2026-10-17 03:31:13
2
user4628003381408
Jalisco :
I pray you find a facility with great Nurses CNA”s and Doctors. Don’t go by how many stars they have hopefully someone will give you information that will help you find a great facility. God is with you.🙏🙏🙏🙏🦋🦋🦋🦋🌹🌹🌹🌹💝💝💝💝🧸
2026-10-17 06:06:11
1
abedoeslife
abe_does_life :
hope things get better for you. I have a degenerative neurological disorder and it's gotten much worse, so I get it
2026-10-16 18:51:38
1
shawncharlesroger
shawncharlesroger :
just look them up on google
2026-10-17 02:37:54
1
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