Saving Liv
Region: US
Friday 16 October 2026 19:03:26 GMT
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Hope for Lydia | Mama💜 :
🥹🥹🥹🥹 always thankful for you being so brave sharing Liv!!! 💜💜💜
2026-10-16 19:12:07
122
madelines.mission :
You are just amazing ❤️
2026-10-16 19:10:58
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Traci :
I had not heard of Sanfilippo until your page came across my FYP. I have learned so much from your page and all the other families. You have provided so much knowledge about this syndrome and I’m sure you have helped more families than you know. 💜💜💜
2026-10-16 19:34:27
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Tammy :
praise the Lord!
2026-10-17 02:17:47
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Mimi4 :
You are strong, amazing and a wonderful mom
2026-10-17 01:20:30
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user3910591572163 :
Love this!!! Go LIV!! Go MOM!!💗💗🥰
2026-10-17 02:47:05
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linds :
This is an incredible story. You should be so proud. Of yourself. Of Liv. [Red heart]
2026-10-16 19:32:45
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Ozzie :
Big Hugs[Red heart]
2026-10-17 03:05:16
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Nan :
Wow, that is wonderful. I got chills as you were telling your story. You and Liv are disciples in this world.
2026-10-16 19:57:33
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Jasmine Sturr 수민 :
i just want to say that for some of us in science when we have some huge part of our lives in where we become on the patient and family side of things, it really changes career trajectory. you being a pharmacist makes total sense to me, your whole career was helping people understand med stuff, and now you are doing that with SanFilippo. your way of sharing things in both some science but also human compassion is really wonderful!
2026-10-17 00:46:35
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rbcfr5 :
Being a blessing in the middle of it all!
2026-10-16 20:42:07
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marionhardymarkha :
Thank you for sharing your beautiful daughter to help others
2026-10-16 20:28:37
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Kmplmom :
Bittersweet ❤️
2026-10-17 00:46:44
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Jodie Brooks 😀 :
Praying for this family that they can get the clinical trial and for all the families with this diagnosis! Love your page and always praying for your family! 🙏🏻💕
2026-10-17 02:46:29
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Gracie Lou Freebush :
This is so amazing 🙌🏼🙌🏼
2026-10-16 19:46:52
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Caress :
I tell everyone ahout san fillippo syndrome. Because of this page. Because of Liv. Because of you!
2026-10-16 21:23:10
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♥️ Denise ♥️ :
You are so strong! I know there is probably days you don’t feel it. What you are doing for others even when your baby won’t progress is heroic!! Bless you mamma
2026-10-17 02:38:57
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Wendy Clark :
Celebrating ALL OF YOU! Liv, You, Lydia, Her mom and Grandma!
2026-10-16 22:40:53
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user5179038573594 :
Prayers to everyone 🥰🥰🥰
2026-10-16 21:39:39
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Tiffany Daye :
so proud of you thank you for sharing your daughter story and educating us all. Since being introduced to Liv. I’ve seen several other creators with the same diagnosis and I follow them all. It’s such a heartbreaking diagnosis. Thank goodness they’re finally making strides and helping everyone.
2026-10-16 22:31:00
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𝓃𝑜𝓋𝒶🕸 :
as someone who had no idea what sanfillipo is when i first followed you, i have truly learned SO much. i may not have, and may (hopefully) never have to go through sanfillipo, but your teaching has truly changed the way i see a lot of things. you are moving mountains for sanfillipo kids <3
2026-10-16 22:35:17
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Stacey Witt :
It’s got to be so hard to be happy and sad. I can’t begin to imagine. But you have so much to be proud of. Love you and your family
2026-10-16 23:21:09
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hbyrd :
This is literally lifesaving because of the work you do. Be so proud of yourself!
2026-10-16 23:45:59
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Catherine W. Illingworth :
Here I am crying on your page again!
2026-10-16 19:37:51
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Integritygirl :
Im so proud of you mama😘👌💪
2026-10-16 19:08:56
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