@kal_hd_6: كورفا سود 🤪🥷🏻#طرابلس_ليبيا #كورفا_سود #اكسبلورexplore #حي_الاندلس_قرقارش_سياحيه

Khaled maati 🦅💸
Khaled maati 🦅💸
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Region: LY
Friday 16 October 2026 19:13:30 GMT
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user12020339249314
يوسف العسكري💎🖤 :
بويات العاصمة 😂😂
2026-10-16 20:22:58
4
momer010
القهوي🥷🏻 :
تحلم تعكس غادي انتا 😝😂
2026-10-16 22:04:57
1
abdo524144
مهيمن ابوحافه 🔥🦅 :
2026-10-16 21:15:24
3
.201012595
مفتاح 2010❤️💙 :
2026-10-16 23:10:33
1
anesmansoor365
AnOs MansOr :
ولد الكورفه💚🔥
2026-10-16 23:23:14
1
user1815108561912
معتصم🐺 :
2026-10-16 22:38:04
1
m16_i11
﮼مهاب،ساسي🤴🏼🖤. :
🤺🔥
2026-10-17 00:15:08
0
abdalhfed.anmre
🔥🦅Abdulhafiz AINamri :
شعب💚💚
2026-10-16 19:18:17
1
mnad025
مناد المرزوقي✌️🦅🔥 :
2026-10-16 22:00:06
0
ayhem._.77
ايهم الترهوني 🖤. :
🔥🔥🔥🔥
2026-10-16 21:00:23
1
abdora121
؏ــــــــبـدو •┇• 𝑨𝑩𝑫𝑶🔥♣️ :
2026-10-16 22:12:05
0
ik.704
﮼محمد،مهارهـ.🗽 :
2026-10-16 20:08:51
1
abdo.rdurd
Abdo Rdurd :
ذو هادي تعرفه عمك الزوي😉😉
2026-10-16 21:41:56
1
hvkckcnhvc
bashir :
2026-10-16 21:50:11
0
user6309630695451
♣️ مْعّتَصْمَ 🤴 :
✌🏾💚
2026-10-16 21:39:50
1
abub_akr7
ابوبكر الخطابي🦅 :
🔥🔥
2026-10-16 21:30:48
1
alaaelmisawy5
𝑨𝑳𝑨𝑨🕸️🪽 :
🔥🔥🔥
2026-10-16 20:56:28
0
a_b_d_o333
عبدو الجدال :
💚🔥
2026-10-16 20:05:24
1
userayham43
﮼ايهم ﮼العكروت🖤⚜️ :
❤️❤️❤️❤️
2026-10-16 20:00:21
1
mohizahlouk
𝐌𝐎𝐇𝐈 𝐙𝐇𝐋𝐎𝐎𝐆🇱🇾🦅 :
💚🖤
2026-10-16 19:24:36
1
aj__75
عبد الحي عروه :
[نار][نار][نار]
2026-10-16 20:01:28
1
user2560631529999
ليت الترهوني :
🥰🥰🥰🔥
2026-10-16 21:48:18
0
user82626876554718
جابر عرفه :
💚💚💚
2026-10-16 21:46:36
1
maklouf07
مهيمن مخلوف 🩶. :
🔥🔥🔥
2026-10-16 19:38:26
1
mdalhrare
الحراري 🐆💚 :
💚✌🏻
2026-10-17 00:10:38
1
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Other Videos

Summer nights look different with EB.  I spent today prepping for my nephew’s 7th birthday party. My sister and I set up decorations and food, spent hours making 7 year old magic come to life.  In between hanging balloons and decorating a cake, I did a dressing change for Mackenzie with my husband. We held her down while she screamed, performed care on bleeding new wounds.  It was an especially bad change, and Tyler and I had to force ourselves to move on with our day when it ended. And I went back to party prep.  During the party Mackenzie kept asking to go in the water. She couldn’t be distracted with other toys or people, she just wanted to play like her sisters.  And since her cast is off, we let her. I have zero regrets about this, she had the absolute best time playing. She spent hours filling up and dumping cups of water. She smiled and laughed, and got to experience the magic of summer. No regrets for summer joy.  But, as always, life with EB complicates things. And water play means instant dressing change after.  So after hours of party prep and party hosting, while others were leaving to go home and kids were ready for bed, we got ready for Mackenzie’s second dressing change of the day.  And I hate it for her. I hate that when she enjoys herself fully and lives spontaneously like anyone else, I then have to put her through another hour of pain. I have to expose her wounds to air, meticulously clean her bleeding open wounds, for the second time in a day.  This is life with EB.  And as much as I hate it for her, I love that she got to experience the joy of summer. Both feelings are true.  #epidermolysisbullosa #woundcare #Summer #griefjourney #fyp
Summer nights look different with EB. I spent today prepping for my nephew’s 7th birthday party. My sister and I set up decorations and food, spent hours making 7 year old magic come to life. In between hanging balloons and decorating a cake, I did a dressing change for Mackenzie with my husband. We held her down while she screamed, performed care on bleeding new wounds. It was an especially bad change, and Tyler and I had to force ourselves to move on with our day when it ended. And I went back to party prep. During the party Mackenzie kept asking to go in the water. She couldn’t be distracted with other toys or people, she just wanted to play like her sisters. And since her cast is off, we let her. I have zero regrets about this, she had the absolute best time playing. She spent hours filling up and dumping cups of water. She smiled and laughed, and got to experience the magic of summer. No regrets for summer joy. But, as always, life with EB complicates things. And water play means instant dressing change after. So after hours of party prep and party hosting, while others were leaving to go home and kids were ready for bed, we got ready for Mackenzie’s second dressing change of the day. And I hate it for her. I hate that when she enjoys herself fully and lives spontaneously like anyone else, I then have to put her through another hour of pain. I have to expose her wounds to air, meticulously clean her bleeding open wounds, for the second time in a day. This is life with EB. And as much as I hate it for her, I love that she got to experience the joy of summer. Both feelings are true. #epidermolysisbullosa #woundcare #Summer #griefjourney #fyp

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