It’s so cruel I still somtimes think theres magically a way to get better because I cannot fathom, accept, or make sense of the fact that we live like this and that’s just the way it is. Sending so much love
2026-10-19 03:57:05
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Tarlov Cyst Info :
I get what you mean. I make similar "funny" meme videos about my condition, but, really it isn't funny. It's actually very agonizing and horrific how paients are treated. I am sorry how MECSF patients are treated, breaks my heart and I related to it alot.
2026-10-19 03:12:07
1
electricache :
it's been a lot of sobbing this week for me too ❤️sometimes i think about it for too long and i can't handle the rage i feel. it is so frustrating having to manage my emotions so i don't crash
2026-10-19 02:47:26
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maya :
im so sorry im sending u so much love i hope theres more research and trials to help and i hope u know ur the reason i learned about mecfs and since seeing ur videos ive done so much research on it and spoken to many friends about it so u really really are making a differencr and spreading awareness 💗
2026-10-19 00:57:16
3
Hannah🌟 :
no like it’s actually evil oh my god🫂
2026-10-19 01:34:23
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🌊 :
love you girl keep going
2026-10-19 03:50:12
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Forest 🌲🦋✨🩵💫❤️🔥 :
Sending love your way. I had a good cry myself a couple of nights ago. I’ve been in a flare up with crashes the last 2 1/2 weeks and it took me a bit to even know what might have triggered it. I don’t recognize myself anymore. Thank you for sharing. It’s comforting to listen and learn from others experiences. ❤️🩹🩵💫✨
2026-10-19 01:09:06
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ezra.g.art :
yup 💙💙💙
2026-10-19 01:01:17
1
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