@j.gatsb: :) #spinabifida #chronicillness #storytime #disability

jay gatsby
jay gatsby
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Region: US
Sunday 25 October 2026 01:14:50 GMT
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mia.47477447
mia.37474 :
I’m so sorry, too young for that. Are your parents around?
2026-10-25 02:12:35
218
nicolemiller174
Nicole Miller :
where are you located? Not exact Info, but a general area. If I’m close I want to help and hang out!
2026-10-25 05:13:18
47
tammi7751
Tammi 😁🧊 :
all your tiktok aunties are here❤️
2026-10-25 02:32:56
183
edelweiss2.oh
Edelweiss2.0 :
You did amazing babe!! You described everything just like a Dr or Nurse. Nobody knows you… like you 🫶🏼. Thanks for being my coolest brother cousin ex husband bestie 🤣😂. I love dysfunctional family 😛🩷🩷
2026-10-25 07:13:26
17
averystefcia
Stef 💕 :
Just bought the power cord off your wishlist for you! ❤️Keep your head up.
2026-10-25 04:17:48
87
jess..lima
Jess :
I worked in a nursing home where young people like yourself would come sometimes for extra care. You are not alone, thank you for sharing your story ❤️
2026-10-25 04:13:47
89
rohred
Roh Red :
My son has the exact same kind of SpinaBifida. Your videos are reassuring for me that he can grow to be an amazing individual with a good life. Thank you for sharing your journey! Lots of live and prayers from a SpinaBifida Mom 🩷
2026-10-25 01:52:26
96
veronica54469
Veronica :
just remember make the nursing home fun for yourself.. play cards, do some of their activities as dumb as they might seem,gotogroup events like group games. learn to laugh at some of thestuff you see or hear. I remember being in the nursing home and they put me on the dementia wing. one night there was a resident screaming onions!I laughed did he want onions, hate onions, ECT.lol. so look for simple joys it will help make the time to go by faster
2026-10-25 02:20:08
91
jojo.rock1
jojo/rock :
So sorry you have to go through all of this 😔💕
2026-10-25 01:20:45
149
connie92rn
Connie :
I'm a nurse and I'm so sorry you are going through this but you are beautiful inside and out and I'm proud of you and you are are so strong xoxo
2026-10-26 00:34:35
0
okiemomma82
Manda :
You certainly know and understand your medical history. I'm sorry you don't have more support from your family. You're at a great age to obtain more services.
2026-10-25 06:22:52
16
shayla.rushinghat
Shayla Rushing-Hatcher :
My son was born with spinal bifida.
2026-10-26 00:49:53
0
perfectmisadventures5
Perfect Misadventures :
From a PT who worked in a nursing home and with kiddos, take a breath. This is not the best scenario, but like you said you are being managed and cared for, for now. I am hoping they can get you into a rehab facility. You got this
2026-10-26 00:44:48
0
kim.weiss29
Kim Weiss :
thx for educating us
2026-10-25 03:08:33
28
wendy.kay1
Wendy Linder :
The rehab my mom was at was actually a nursing home and a rehab it was a great place The room was huge and set up for 2 people but they only allowed 1 patient per room and used the extra bed for friends and family.
2026-10-25 22:48:23
1
mary.mcguire96
Mary McGuire :
thank you for your openness
2026-10-26 00:47:52
0
i_said_good_day_sir
Good Day :
Don’t ever feel like you need to justify your conditions. People can be ass-hats.
2026-10-25 02:46:22
11
tracypope2768
tracypope2768 :
🙏praying for you
2026-10-25 22:31:04
0
dixiedawn1966
DixieDawn :
Are you getting disability?
2026-10-25 02:31:21
7
jt26512
jt26512 :
So much 🥺
2026-10-25 01:50:24
17
mumsybethany
Bethany :
As a mother myself I want to tell you something. You are enough. You are enough as you are, all of your medical diagnoses physical and mental are just that and are not you deep in your soul. You are an amazing individual! God has huge plans for you my friend. Use this time to rest and heal as much as you can to save some energy. Let the people there take care of you and prepare your body for your spinal surgery. Keep going, you are inspiring little people who are just like you!
2026-10-25 05:26:04
10
krisrey78
Kristina :
my nephew has this and hes not physically limited except his bladder got an overhaul and it affects how he uses bathroom. he also has some mental disabilities for it...yes he has same thing as you. plug in his tummy. but he has his own place works etc.
2026-10-25 02:33:11
19
aedwards140
user71606416462 :
You really seem to have a grip on your situation, good job, keep up the good fight!
2026-10-25 03:32:48
12
stephvernor
Steph Vernor :
Hi jay my name is Stephanie and I have spina bifida meaning I don't have the lower third of my spine.I was born with My legs Partially paralyzed From the waist down
2026-10-25 03:39:55
10
ariannamonique_
Ari✌🏾 :
I have the same type of SB and had a chiari malformation surgery when I was little and now 31 and live on my own for the last 6 yrs if you need another SB buddie ☺️Hi I’m Arianna nice to meet you!
2026-10-25 05:24:01
5
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