I’m so sorry, too young for that. Are your parents around?
2026-10-25 02:12:35
218
Nicole Miller :
where are you located? Not exact Info, but a general area. If I’m close I want to help and hang out!
2026-10-25 05:13:18
47
Tammi 😁🧊 :
all your tiktok aunties are here❤️
2026-10-25 02:32:56
183
Edelweiss2.0 :
You did amazing babe!! You described everything just like a Dr or Nurse. Nobody knows you… like you 🫶🏼. Thanks for being my coolest brother cousin ex husband bestie 🤣😂. I love dysfunctional family 😛🩷🩷
2026-10-25 07:13:26
17
Stef 💕 :
Just bought the power cord off your wishlist for you! ❤️Keep your head up.
2026-10-25 04:17:48
87
Jess :
I worked in a nursing home where young people like yourself would come sometimes for extra care. You are not alone, thank you for sharing your story ❤️
2026-10-25 04:13:47
89
Roh Red :
My son has the exact same kind of SpinaBifida. Your videos are reassuring for me that he can grow to be an amazing individual with a good life. Thank you for sharing your journey! Lots of live and prayers from a SpinaBifida Mom 🩷
2026-10-25 01:52:26
96
Veronica :
just remember make the nursing home fun for yourself.. play cards, do some of their activities as dumb as they might seem,gotogroup events like group games. learn to laugh at some of thestuff you see or hear. I remember being in the nursing home and they put me on the dementia wing. one night there was a resident screaming onions!I laughed did he want onions, hate onions, ECT.lol. so look for simple joys it will help make the time to go by faster
2026-10-25 02:20:08
91
jojo/rock :
So sorry you have to go through all of this 😔💕
2026-10-25 01:20:45
149
Connie :
I'm a nurse and I'm so sorry you are going through this but you are beautiful inside and out and I'm proud of you and you are are so strong xoxo
2026-10-26 00:34:35
0
Manda :
You certainly know and understand your medical history. I'm sorry you don't have more support from your family. You're at a great age to obtain more services.
2026-10-25 06:22:52
16
Shayla Rushing-Hatcher :
My son was born with spinal bifida.
2026-10-26 00:49:53
0
Perfect Misadventures :
From a PT who worked in a nursing home and with kiddos, take a breath. This is not the best scenario, but like you said you are being managed and cared for, for now. I am hoping they can get you into a rehab facility. You got this
2026-10-26 00:44:48
0
Kim Weiss :
thx for educating us
2026-10-25 03:08:33
28
Wendy Linder :
The rehab my mom was at was actually a nursing home and a rehab it was a great place
The room was huge and set up for 2 people but they only allowed 1 patient per room and used the extra bed for friends and family.
2026-10-25 22:48:23
1
Mary McGuire :
thank you for your openness
2026-10-26 00:47:52
0
Good Day :
Don’t ever feel like you need to justify your conditions. People can be ass-hats.
2026-10-25 02:46:22
11
tracypope2768 :
🙏praying for you
2026-10-25 22:31:04
0
DixieDawn :
Are you getting disability?
2026-10-25 02:31:21
7
jt26512 :
So much 🥺
2026-10-25 01:50:24
17
Bethany :
As a mother myself I want to tell you something. You are enough. You are enough as you are, all of your medical diagnoses physical and mental are just that and are not you deep in your soul. You are an amazing individual! God has huge plans for you my friend. Use this time to rest and heal as much as you can to save some energy. Let the people there take care of you and prepare your body for your spinal surgery. Keep going, you are inspiring little people who are just like you!
2026-10-25 05:26:04
10
Kristina :
my nephew has this and hes not physically limited except his bladder got an overhaul and it affects how he uses bathroom. he also has some mental disabilities for it...yes he has same thing as you. plug in his tummy. but he has his own place works etc.
2026-10-25 02:33:11
19
user71606416462 :
You really seem to have a grip on your situation, good job, keep up the good fight!
2026-10-25 03:32:48
12
Steph Vernor :
Hi jay my name is Stephanie and I have spina bifida meaning I don't have the lower third of my spine.I was born with My legs Partially paralyzed From the waist down
2026-10-25 03:39:55
10
Ari✌🏾 :
I have the same type of SB and had a chiari malformation surgery when I was little and now 31 and live on my own for the last 6 yrs if you need another SB buddie ☺️Hi I’m Arianna nice to meet you!
2026-10-25 05:24:01
5
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