@vicki6867: **second paragraph is from these last 48 hours** I guess my eyes don’t respond to light and are fixed in a rly rly dilated position so I had an emergent MRV and MRI of head and I get chest MRI tmr that will tell us if it’s a tumor or tissue 😃 regardless I do still have an autoimmune/immunodeficiency disorder. Waiting on a blood test to also tell us the extent of damage in my autonomic nervous system thanks to my own body for attacking it for 21 years. Bc of this radiologist who called the ER doctor, I’m finally being figured out. As someone who has had been extremely popular these last 24 hours, I’m loving but hating the expedited care! It’s a Saturday and I got 3 MRI’s and met with a million specialists - while I was scared to come back to this hospital, it’s for the best bc they are equipt. However, everytime I’m here, I end with smth serious and start it with an ambulance 😭 a contrast head CT revealed this incidental finding on my chest. 3 days ago I sat crying on my floor scared because these last 6 months I’ve gotten a lot sicker with many new and extremely unusual symptoms being blamed on my preexisting conditions. I’ve said from the beginning this is not simply a “worsened baseline.” #chronicmigraine #hemiplegicmigranes #fyp #autoimmunedisease ##autonomicnervoussystem
Also I wouldn’t too scared! True Thymic Hyperplasia is common in young adults 😁 you’ll be fine! Think positive!
2026-10-25 16:09:57
2
ehlers.samlos :
I just got diagnosed with AAG in July after they tested because of my gastroparesis + treatment resistant dysautonomia. Sending lots of love 🫶
2026-10-25 21:21:15
2
sophia:) :
I’m so glad they’re working hard to help!! it’s so relieving when they genuinely want to figure things out ❤️🩹
2026-10-25 16:36:21
1
olivia.snyder20 :
I have AAG if you ever have any questions! It wasn’t discovered until I went to Cleveland clinic
2026-10-25 13:44:09
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laura.depi :
I have AAG, here for you with any questions❤️❤️
2026-10-25 16:49:57
2
alexa :
So glad you are getting attentive care and some answers ❤️🩹 Sorry that it has to be so scary though 🫂
2026-10-26 16:10:00
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tay ❤︎ :
So so proud of you Vicki, I love you and I’m always here for you 🩷🩷
2026-10-25 19:52:44
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Shannon :
I don’t have AAG, but I have a Paraneoplastic Neuro-Autoimmune Disorder that’s sooooo rare. I fought for years saying something just wasn’t right. I’m still struggling to find any providers willing to help
2026-10-26 21:15:24
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Nicole_autoimmuneWarrior :
I have AAG as well
2026-10-25 19:37:30
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julia Horowitz :
sending you lots of love sweet girl. you’re not alone in this. 🫂🩷
2026-10-26 01:30:23
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camrynlorrainej :
praying for you ❤️❤️
2026-10-26 01:49:59
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Kelly 🌺 :
Sending love ❤️🩹
2026-10-25 22:07:06
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May 🩵🌸 :
oh vicki sending you so much love 💗
2026-10-25 13:08:36
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Cassandra Hodge :
So happy you’re getting answers but I’m so sorry it’s been such a whirlwind and super scary! Praying for you!
2026-10-25 16:21:14
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Rebecca :
sending you so much love💕💕
2026-10-25 13:17:01
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taylor🧸💚 :
i’m so sorry girl you cannot catch a break, hang in there love 🫶🫶
2026-10-25 11:04:05
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Sydney Freidin :
I hate all of this for you😭 the universe needs to hand you something amazing after the year you have had bc no one should have to fight as hard as I know you have for quality care
2026-10-25 17:10:02
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cass :
i am so sorry🩵🥺
2026-10-25 11:06:02
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Gabby :
Oh babes, I love you
2026-10-25 12:52:10
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basically brooke :
my team is pretty sure I have aag if you want to message me I can kind of explain my whole situation!
2026-10-25 17:53:13
1
Shannon :
Feel free to shoot me a message if you have any questions
2026-10-26 21:16:19
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\/1|\|q :
:(( ♥️
2026-10-25 10:37:29
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Sara Wessland :
🫶🏻🫶🏻🫶🏻
2026-10-25 10:22:56
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