@victoriapackhem: Respectfully ✋ Kindess first. The rest can wait. You never know what someone is carrying. #chronicillness #invisibleillness #ibd #ulcerativecolitis
Chronic illness sucks but it can't take away my strut.
2026-10-26 09:02:51
0
em :
I see you, my sister. You are not alone.
2026-10-26 08:26:15
0
✨AsbestosMuffins4✨ :
I’m angry for the way my body no longer feels like my own.
2026-10-25 19:59:14
76
(y/n) :
I wanted to do theater. I can’t dance anymore
2026-10-26 07:45:47
0
Destinybookishtbr :
having an chronic illness especially with it being an invisible illness it's not for the weak people always say u don't look sick
2026-10-26 00:19:48
1
Kimberly_Lynn98 :
I just got diagnosed with ulcerative colitis a month ago and still trying to learn and understand it
2026-10-25 23:57:58
1
Van the rescue mom :
If someone says to me again “maybe you should exercise and change your diet “😤
2026-10-26 04:28:50
0
Andi Dawn :
My favorite advice is to get an advocate! It can be so depleting to do it alone. You aren't weak for needing help (talking to myself here too) and you deserve to kindness and compassion of others. ❤️
2026-10-26 00:02:19
7
Kiana :
You’ve got this, girl. Keep fighting. I know how hard the grief is (Crohn’s here)
2026-10-25 20:48:54
9
MegPalm :
I have RA and I’m a surgeon. I gave up my twenties, moved across the country from all knew, and got into hundreds of thousands of dollars in debt.. just for it to maybe be taken away one day. I’ll go as long as I can be of help to my own patients
2026-10-26 04:22:24
4
Lynova💛 :
Every night I dream and I can walk without a cane, no pain, no stress…..then I wake up
2026-10-26 06:19:05
2
Marc :
I used to be an athlete and now I can barely walk. I have CIDP and it’s destroyed my life.😢
2026-10-25 22:37:44
4
user1267709091676 :
Infusion days are so emotional for me. It just really hits me those days. It’s worse than the day I got my trach from my disease
2026-10-25 23:21:21
4
OhanaTravelTales :
All the time!! It has become my fuel to make the good days count…my life looks different and I’ve lost control but there are other blessings and priorities it highlighted! It’s reframing what success looks like! Everyday I wake up get out of bed is a win so everything else is a blessing
2026-10-26 02:56:15
8
Andrea :
Grieved so many times
2026-10-26 03:35:37
1
pineapplebubbles :
I had a dream last night where i could feel my hands, i woke up crying since i lost my feeling in my hands due to MS. I miss my hands. My HEALTHY HANDS
2026-10-26 04:50:11
2
Kalani ✌︎︎ :
"I don't need your advice- on anything." is what I like to say. This journey and path alteration is something only *you* can navigate. The strength to overcome in the darkest, most lonely moments, knowing this is a never ending cycle.. is cruel beyond any comprehension. Stay strong, you can get through anything and healing is only within your reach, many hugs 🫂 - a fellow spoonie/disabled girly
2026-10-26 01:13:34
3
amyv72 :
Literally what I try to explain to my family and friends every day. 🥺
2026-10-26 04:08:04
2
Diana 💕 :
Trust me I am realizing everything I took for granted. 😔
2026-10-25 15:06:09
4
V 🦋 :
Crying with you sis 💔
2026-10-25 14:58:31
4
amydborris_88 :
Praying for you. I suffer daily.
2026-10-25 23:29:28
2
🩷J.A🩷 :
When I realized it was just short of 10 yrs It finally hit me... I wasn't going back to normal. THIS is normal. 😐 I could stop hoping and just deal with it. It actually helped my massive depression.
2026-10-26 04:02:53
1
carly_fagan :
Strongest girl I know 🩷
2026-10-26 02:07:32
1
gloomy.grimdark :
it feels like none of my accomplishments are my own anymore
2026-10-26 01:56:05
1
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