Evelyn Miller | Living MeSsy🧡
Region: US
Monday 26 October 2026 15:47:22 GMT
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crystal lynn ❌ :
I am still hoping for the answer. Just learned I have a brain aneurysm on top of everything else going on, and still not getting answers.
2026-10-29 20:06:29
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Morgan Cole 😝 :
THIS. I was 14 when my symptoms started. I had weakness, tremors, days where I was so weak my dad had to walk me around since I couldn’t hold my own weight. This lasted about 3 years with no help. I had to quit every team I was on. Eventually some of those more extreme symptoms left. I developed more symptoms having to do with heart rate and shortness of breath and was tested for POTS 2 times. Both times I didn’t meat criteria but they do know it’s some form of dysautonomia which I was officially diagnosed with in April. Now here we are I’m 21 and all those awful symptoms have come back full swing plus some although I am able to walk alone so far this time around. I even lost feeling on the left side of my face and went to the ER and still got no help. I am currently waiting for my referral to neurology to reach out to schedule. 7 years of this and I’m so done. I’m currently on day 38 of a flare up…
2026-10-29 15:17:58
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Jenn💎🫧 :
I was on disability for my anxiety. A few people called me a hypochondriac. Drs. looked at me like I was crazy when I was trying to explain how I was feeling. So when I finally got the diagnosis that I had MS my panic attacks went away and my anxiety was less because now I had an answer and it all made sense and I knew I wasn’t crazy or a hypochondriac because I’ve felt these things.
2026-10-26 18:53:04
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Alex :
Me currently
2026-10-29 17:34:15
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Lindsay 🇨🇦 :
In Nov '25 my Opthalmologist said there's a good chance it'll be MS due to my age, and gender. Fast forward to my (generalized) Neuro who took a look at my brain MR and he said "I really don't see MS. I don't believe it is" then after I answered all his questions/did all his tests, he looked at it again "Everytime you answer the questions, it's less and less likely". So he referred me to a NeuroMuscular Neuro. She did her tests, and everything (neuromuscular) came out fine. LP and C/Tspine MR were ordered and completed. O-bands are elevated, and no lesions on my spine. Now I wait for the MS Neuro in 1.5 weeks.
2026-10-26 17:13:17
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DognKidmom74 :
all I know is the brain MRI showed several t2 hyper intensities. I'm still waiting on a neurologist
2026-10-28 23:53:27
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Cindypaige333 :
Thank you for putting words to this feeling. I get it. ❤️
2026-10-28 01:35:39
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Megan Doyle :
THIS! It was such a relief to finally find out that I have MS, especially after years of doctors playing Whack-a-Mole with my symptoms. And I’m back in that place now, hoping that there are new lesions when I get my next MRI, because then it will validate everything I went through this summer and everything that has followed.
2026-10-27 22:57:30
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Shayna Clines :
I'm at that point. Spend more days in bed than I don't. The tingling in hand, feet, and face. Pressure around my ribs, but still no diagnosis. Brain MRI is fine. Hoping they do a spinal and find something. I'm tired of feeling this way without answers but I think my doctors tired of trying to figure me out. Lay here crying and over thinking everything.
2026-10-26 19:15:52
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kourtneyvonbehren :
I totally understand what you are saying. After 13 years I found out I had endometriosis and after 17 years I found out I have MALS. I would cry when they told me my tests were normal and I have had SO many tests, so there have been a lot of tears! The nurse practitioner I go to called me on a Saturday because she couldn’t wait to tell me that I had MALS.
2026-10-27 02:56:06
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Moonbunny :
I just went for an emg. they found nothing. but that didn't cure my weakness or pain and numbness and tingling--
2026-10-29 10:18:51
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MiAreads 📚 :
Whenever something comes back negative and I don’t have a reaction. They tell me this is good news, you should be happy. But I’m sat there thinking about the fact that I’m at square one trying to figure out what’s going on in my body.
2026-10-27 00:13:15
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Nicole Kirkpatrick (Coco) :
I felt the same way! I was so tired of hearing it’s all in your head
2026-10-26 17:24:10
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Sorry Neighbours :
I think you've found all of us MeSsy people here. We hear you, and you absolutely don't sound like a lunatic. We've been there, and we see you. Look after yourself 🫶🏽
2026-10-27 23:09:23
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🌸Kat🌸 :
I am in that limbo state right now… it sucks!! I just want an answer like you said! 💕 Thanks for giving hope to us
2026-10-27 03:19:04
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Emily Daniel :
It took me a year to be diagnosed and the last thing they did was an MRI. Every day that passed I felt crazy! I was hoping something showed up and when it did, I was at peace and ready to battle. I get it and agree 100 percent.
2026-10-26 17:15:51
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weluvjesus :
I am 55 years old and have been in pain almost that long. Every doctor visit I had I hoped they could figure out why instead of putting me on the fibromyalgia band wagon. I got my answer this years with HEDS diagnoses but I got more than I bargained for. I also got heart problems this year and liver disease. I am done with finding out what is wrong. I don’t want to know anymore.
2026-10-26 22:04:02
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MiSadventures :
Same. It was an answer after 5 years of looking
2026-10-27 01:46:44
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DreAnn Csorba :
I just got my diagnosis last month. I feel so much what you said here. I went from April to September with all these crazy things happening to me. I went to multiple ERs, a neurologist, my primary and walked away with no results and no answers until I went to the ER this last time because I was completely losing my vision and my hearing. I begged for the MRI and he listened. Then like you, I was praying in that MRI machine that they find something, that they find what is wrong with me. Then the relief and excitement when they found those lesions. When he said we are transporting you to a bigger hospital to treat me I was so excited, sounds crazy but I was finally getting answers and feeling like they were finally believing me.
2026-10-26 21:32:41
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Shannon :
Healthy people would never understand how this feels.
2026-10-27 02:01:26
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crystal :
if there is a visible problem its something that can be treated. being stuck in limbo is awful. I have 15+ lesions but am told it doesnt meet the criteria for MS, yet... well that was 3 years ago.. I should probably get that looked at again.
2026-10-26 16:17:40
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Regina Phalange :
my neuro is sending me to a 2nd neuro for a 2nd opinion because she doesn't want to diagnosis me with ms because my brain mri was atypical. it all started with optic neuritis in april/may. ive had multiple mris since then- brain, spine, eye. head and chest CTs. spinal tap. im so ready for answers. im tired of being tired. ive gained SO much weight because I just CANNOT be active no matter how much people say "just go for a walk" -it's not that easy.
2026-10-29 23:31:29
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amyadams512 :
My daughter and I are feeling exactly that way.. Her MRI was completely clear. She did have an elevated NfL blood test result. Praying we can figure it out soon.
2026-10-28 18:14:59
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sophie :
i have this right now, been off for years and now after my hand going numb i finally get a brain and spine mri in 4 weeks 🙏
2026-10-28 16:38:07
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Nicole Alfred Sulliv :
I feel all of this! I’ve been in some intense pain for years. I mean years!!! Mentally exhausted and let’s not talk about the physical exhaustion. They cannot find anything other than it MIGHT be nerve damage. Yet, nothing works. I’m tired. I want them to find something that can be fixed. It does sound crazy to other people but when you’ve done this for this long, u want something found so people can quit treating u like ur crazy! They did find, a tear n my lower disc n my back and arthritis in my tailbone but the amount of pain isn’t explained. Something has to give!
2026-10-28 21:46:27
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