My Ankylosing Spondylitis is in an advanced stage. 🦴 My spine is fused from my neck to my pelvis, including my SI joints. I have severe loss of mobility, chronic pain, bone spurs, and osteopenia. Even small movements can cause grinding, cracking, and pain. This disease has changed my life in ways most people can’t see. I keep fighting every day, even when my body makes it hard. 💙 #AnkylosingSpondylitis #ASWarrior #ChronicPain #InvisibleIllness #SpinalFusion
2026-10-27 14:12:05
13
Stephanie :
How can you feel stiff and dislocated at the same time 😩
2026-10-26 21:11:43
493
Amanda1234 :
Man wish I could stretch like that for my AS and HEDS without passing out from my POTS lol
2026-10-26 22:09:01
141
etvroom :
and at the airport too— literally nothing makes my back hurt more than a plane ride
2026-10-29 18:21:44
1
Just Liz Things :
And always just shifting. Feeling like a kid when ppl look. SORRY. IT HURTS TO BE STILL GUYS.
2026-10-26 20:27:16
137
em :
This except I also have hEDs so it’s actively fighting my spine and hips 💀🙏
2026-10-29 15:32:35
0
buildwithbrandy :
Mobility work all the time! 😂🙋🏻♀️🙌🏼
2026-10-29 13:20:21
1
CJB :
Me always stretching my chest to crack and pop my sternum 😭
2026-10-27 07:59:16
6
Cari Gillespie :
Oh my gosh yes... How is it super tight and super loose at once?! And it needs to pop somewhere but I can't make it.
2026-10-26 21:40:27
55
Meli Reppert :
I cannot sit, nor can I stand.😂
2026-10-26 22:38:15
15
Chelsea :
OK anyklosing spondylitis people, tell did you initially have findings on your imaging? I have positive hla b27 and low back pain but imaging didn’t show anything so no diagnosis
2026-10-26 23:51:35
8
Madeline Nelsen🪴 :
I have found my community
2026-10-29 16:01:19
1
Jannell :
I don’t know for sure if I have it, but I’m about 80% sure I do and I hit this pose at least 40 times a day trying to ease the pain. 😫😅
2026-10-29 00:10:02
8
Thatgirljacki :
Joints loose but the muscles are sooooooo tight🥺😅
2026-10-27 04:16:24
11
tay and the bays 🐟 :
GIRL. I see my spine doc on the 5th, not only does my day to day look just like yours but every other symptom matches up. I’ve been looking into AS for a couple of months now because we keep running into dead ends 🙃
2026-10-26 19:35:04
6
Amy ☀️ :
Been in the worst hotel bed for work all week and I am DYINGGGG. The beds here are like sleeping on bricks (Japan), I’m actually looking forward to the flight home
2026-10-29 09:42:13
1
Gab :
I have confirmed SLE and fibro, but still no answers to why my spine hurts so mf bad all the time🥲 my scans are always clear
2026-10-26 21:35:05
6
rayrayrob :
Exactly why Pilates is my happy place 👏👏👏gotta try and not turn into the tin man every day
2026-10-26 19:13:04
6
traceyfrancisauthor :
Same!
2026-10-27 11:55:31
1
ℳ ♡ :
getting my mri for this lmfaoo
2026-10-27 05:16:09
1
Define Couture :
Hi!! 😊 I'm always upside down lol
2026-10-27 13:12:01
1
Kristin81Moon :
Literally me stretching at the airport just days ago…ugh, traveling is rough on us😅
2026-10-27 10:53:46
1
Elle Blair | Photographer :
No position is good but you can’t stay in the one you’re in 😭
2026-10-27 04:57:25
1
Amir khan :
I have AS
2026-10-28 17:02:17
2
ashleyclemm :
this paired with adhd is like ants in the pants
2026-10-27 15:22:42
2
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